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Nonprofit · EIN 31-1438001

THE LAM FOUNDATION

Tax-exempt · CINCINNATI, OH 45242

Financials

$1.5M$1.8M2023$1.9M$1.6M2024$1.6M$2M2025
Revenue Expenses · by fiscal year end
Financials of THE LAM FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$1,595,985$2,019,407-$423,422$2,386,726$230,924$2,155,802
December 31, 2024990$1,922,410$1,592,763$329,647$2,870,285$291,061$2,579,224
December 31, 2023990$1,455,589$1,803,072-$347,483$2,596,985$347,702$2,249,283
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$891,585
Program service revenue
$234,250
Investment income
$93,424
Net income from fundraising events
$367,775
Other revenue
$376,726

Expenses

Grants and similar amounts paid
$402,212
Compensation of officers, directors and key employees
$139,068
Other salaries and wages
$582,912
Salaries, compensation and benefits (total)
$721,980
Professional fundraising fees
$0
Accounting fees
$14,700
Occupancy
$40,458
Travel
$14,389
Program services (functional)
$1,525,983
Management and general (functional)
$259,448
Fundraising (functional)
$233,976

Balance sheet and other

Total assets, start of year
$2,870,285
Total assets, end of year
$2,386,726
Total liabilities, end of year
$230,924
Net assets, end of year
$2,155,802
Net assets without donor restrictions
$2,034,833
Net assets with donor restrictions
$120,969
Gross receipts
$1,677,760
Employees
8
Volunteers
150
Year formed
1995
State of legal domicile
OH

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
Patti MartinExecutive Dir.
Officer
40$139,068
Abigail PasseriDirector
Trustee or director
1$0
Andrew RomanoskyTreasurer
Trustee or director, Officer
2$0
Greg Downey MDChairman
Trustee or director, Officer
2$0
Ed ReisingerDirector
Trustee or director
1$0
Pat VentersDirector
Trustee or director
1$0
Nancy SpecterDirector
Trustee or director
1$0
Dr Lyndsay HoyVice Chair
Trustee or director, Officer
2$0
Stephan Hammes MD PhDDirector
Trustee or director
1$0
Christine KruegerSecretary
Trustee or director, Officer
2$0
Andrea SlatteryDirector
Trustee or director
1$0
Kaela VarbergDirector
Trustee or director
1$0
990 for the year ended December 31, 2024: 13 people
NameTitleHours / weekCompensation
Vera Krymskaya PhDVice Chair
Trustee or director, Officer
1$0
Andrew RomanoskyTreasurer
Trustee or director, Officer
1$0
Greg Downey MDDirector
Trustee or director
1$0
Dan Dilling MDDirector
Trustee or director
1$0
Pat VentersDirector
Trustee or director
1$0
Stephanie Nemser-DreyerVice Chair
Trustee or director, Officer
1$0
Chuck WehlandChairman
Trustee or director, Officer
1$0
Dr Lyndsay HoyVice Chair
Trustee or director, Officer
1$0
Eden PontzSecretary
Trustee or director, Officer
1$0
Stephanie Hammes MD PcDDirector
Trustee or director
1$0
Christine KruegerDirector
Trustee or director
1$0
Andrea SlatteryVice Chair
Trustee or director, Officer
1$0
Kaela VarbergDirector
Trustee or director
1$0
990 for the year ended December 31, 2023: 10 people
NameTitleHours / weekCompensationOther / benefits
Susan ShermanCEO
Officer
40$221,520$5,963
Vera Krymskaya PhDDirector
Trustee or director
1$0$0
Andrew RomanoskyTreasurer
Trustee or director, Officer
1$0$0
Dan Dilling MDDirector
Trustee or director
1$0$0
Pat VentersDirector
Trustee or director
1$0$0
Stephanie Nemser-DreyerDirector
Trustee or director
1$0$0
Chuck WehlandChairman
Trustee or director, Officer
1$0$0
Dr Lyndsay HoyDirector
Trustee or director
1$0$0
Eden PontzDirector
Trustee or director
1$0$0
Andrea SlatteryDirector
Trustee or director
1$0$0

Address and contacts

Address (IRS master file)
PO BOX 42084, CINCINNATI, OH 45242-0084
Signed the 990
Patti Martin, Executive Dir.
Phone
(513) 777-6889
Return prepared by
Coworth Financial Services LLC

Mission

To catalyze new treatments - and ultimately a cure - for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.

990 for the year ended December 31, 2025

Program accomplishments

  • Research Costs The LAM Foundation awarded $200,000 to fund four new research projects in 2025. The Foundation continued to fund seven active grants which had been approved in prior years. In September 2025, we hosted an International Research Conference which featured 97 researchers and clinicians who shared their research and trials to further advance a cure for LAM.
    Expenses $863,888 · grants $398,624
  • Patient Services In September 2025 we hosted a LAMposium which brought 211 patients, family and friends together in collaboration with our LAM clinic directors, liaisons and scientists. We offered 41 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social gatherings. More than 1,000 members of our global community attended our virtual events, and the recordings continue to be watched. More than 300 individuals registered with the Foundation. Eleven Circle of Hope Transplant Support Program participants received lung transplants this year, resulting in more than 54 tissue samples to further LAM research.
    Expenses $544,913
  • Clinical The LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added one clinic in 2025 in Turkey. The LAM Foundation hosted more than 40 members of the LAM Clinic and Research Network at the LAM Foundation luncheon at the ATS Conference in San Francisco, CA.
    Expenses $117,182

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
31-1438001
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1995
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$2,386,726
Income (IRS master file)
$1,677,760

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$1,595,985$2,019,407$2,386,726XML
990December 2024$1,922,410$1,592,763$2,870,285XML
990December 2023$1,455,589$1,803,072$2,596,985XML
990December 2022$1,571,673$1,873,408$2,903,030IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 31-1438001).

Questions about THE LAM FOUNDATION

What is the EIN of THE LAM FOUNDATION?
The employer identification number (EIN) of THE LAM FOUNDATION is 31-1438001.
Is THE LAM FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1995.
Are donations to THE LAM FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does THE LAM FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of THE LAM FOUNDATION due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did THE LAM FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who are the officers and directors of THE LAM FOUNDATION?
The 990 for the year ended December 31, 2025 lists 12 people; 1 received compensation from the organization, the highest $139,068 (Patti Martin, Executive Dir.).
How much revenue does THE LAM FOUNDATION have?
On its 990 for the year ended December 31, 2025 it reported revenue of $1,595,985, expenses of $2,019,407 and total assets of $2,386,726 at year end.

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