2026-09-04T06:36:03-07:00 2025-12-31 451869055 Coworth Financial Services LLC 11155 Kenwood Rd Ste 6D Cincinnati OH 45242 990 2025-01-01 311438001 The LAM Foundation LAMF 5137776889 PO Box 42084 Cincinnati OH 45242 Patti Martin Executive Dir. 2026-09-04 true Kevin L Holmes P00227061 5136735469 2025 X PO Box 42084 Cincinnati OH 45242 1677760 false X www.thelamfoundation.org X 1995 OH To catalyze new treatments - and ultimately a cure - for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases. 11 11 8 150 0 1811620 891585 234250 102577 93424 8213 376726 1922410 1595985 339630 402212 0 550207 721980 0 233976 702926 895215 1592763 2019407 329647 -423422 2870285 2386726 291061 230924 2579224 2155802 To catalyze new treatments - and ultimately a cure - for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases. false false 863888 398624 Research Costs The LAM Foundation awarded $200,000 to fund four new research projects in 2025. The Foundation continued to fund seven active grants which had been approved in prior years. In September 2025, we hosted an International Research Conference which featured 97 researchers and clinicians who shared their research and trials to further advance a cure for LAM. 544913 Patient Services In September 2025 we hosted a LAMposium which brought 211 patients, family and friends together in collaboration with our LAM clinic directors, liaisons and scientists. We offered 41 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social gatherings. More than 1,000 members of our global community attended our virtual events, and the recordings continue to be watched. More than 300 individuals registered with the Foundation. Eleven Circle of Hope Transplant Support Program participants received lung transplants this year, resulting in more than 54 tissue samples to further LAM research. 117182 Clinical The LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added one clinic in 2025 in Turkey. The LAM Foundation hosted more than 40 members of the LAM Clinic and Research Network at the LAM Foundation luncheon at the ATS Conference in San Francisco, CA. 1525983 true true false false false false false false false false false false false false false true true false false false false true false false true false false true false false false false false false false false false false false false false false false false false false false true 17 0 true 8 true false false false false false false false 0 false false false false false false false X 11 11 false false false false false false false true true false false true true true true true true true true false AL AR CA FL HI IL KS KY MA MD MI MN NC ND NH NJ NM NY OR PA RI SC TN UT VA WI X X Jennifer Jostworth 5137776889 PO Box 42084 Cincinnati OH 45242 Patti Martin Executive Dir. 40.00 0.00 X 139068 0 0 Abigail Passeri Director 1.00 0.00 X 0 0 0 Andrew Romanosky Treasurer 2.00 0.00 X X 0 0 0 Greg Downey MD Chairman 2.00 0.00 X X 0 0 0 Ed Reisinger Director 1.00 0.00 X 0 0 0 Pat Venters Director 1.00 0.00 X 0 0 0 Nancy Specter Director 1.00 0.00 X 0 0 0 Dr Lyndsay Hoy Vice Chair 2.00 0.00 X X 0 0 0 Stephan Hammes MD PhD Director 1.00 0.00 X 0 0 0 Christine Krueger Secretary 2.00 0.00 X X 0 0 0 Andrea Slattery Director 1.00 0.00 X 0 0 0 Kaela Varberg Director 1.00 0.00 X 0 0 0 139068 1 false false false 0 891585 891585 Conference Registration 541700 234250 234250 234250 93424 93424 0 0 0 0 449550 81775 367775 367775 0 0 Miscellaneous 561499 8951 8951 8951 1595985 243201 461199 X 312212 312212 0 90000 90000 0 139068 103008 16130 19930 0 582912 431763 67609 83540 0 0 0 0 0 14700 6830 6315 1555 0 0 0 352315 147453 139119 65743 0 5794 1824 3745 225 0 0 40458 23502 6554 10402 14389 6005 5835 2549 0 3642 3642 0 0 0 0 LAMposium Conference 441150 344164 3143 93843 Publicity and communications 39327 30236 10 9081 Printing and Publications 24589 4693 43 19853 Misc 12514 7760 4579 175 -53663 12891 6366 -72920 2019407 1525983 259448 233976 79870 158318 2731822 2159075 35000 50600 0 0 0 0 0 23593 18733 0 0 0 0 0 0 2870285 2386726 32918 35924 258143 195000 291061 230924 X 2353091 2034833 226133 120969 2579224 2155802 2870285 2386726 -423422 X false true X true false X 2207809 1563975 1364526 1811620 1341135 8289065 0 0 2207809 1563975 1364526 1811620 1341135 8289065 454852 7834213 5832 85293 100120 93424 284669 0 1776 1866 5770 8213 8951 26576 8600310 915028 0.91090 0.92060 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1677760 81775 81775 1595985 1595985 2101182 81775 81775 2019407 2019407 Part X : FIN48 Footnote The Foundation is exempt from income taxes under Section 501(c)(3)of the Internal Revenue Code and a similar provision of Ohio law. However, the Foundation is subject to federal income tax on any unrelated business taxable income.The Foundation's IRS Form 990 is subject to review and examination by federal and state authorities. The Foundation believes it has appropriate support for any tax positions taken, and therefore, does not have any uncertain income tax positions that are material to the financial statements. Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 Gala Expenses $81775 Part XII, Line 2d: Other expenses and losses per audited F/S Gala Expenses $81775 true Hungary Research 45000 United Kingdom Research 45000 2 false false false false false false X X X X X false Find-A-Cure Gala 313451 313451 81775 Community Events 136099 136099 449550 449550 81775 81775 367775 true Cincinnati Childrens Med Cen 3333 Burnet Ave Cincinnati OH 45229 310833936 85500 0 Research National Tubrous Sclerosis As 8737 Colesville RD Ste 400 Silver Spring MD 20910 953018799 43290 0 Research New York Medical College 40 Sunshine Cottage road Valhalla NY 10595 9000 0 Research Northwestern University 750 N Lake Drive Chicago IL 60611 362167817 60000 0 Research President & Fellows of Harvar PO 41569 Boston MA 02441 042103580 45000 0 Research University of Washington 3917 University Way NE Seattle WA 98105 916001537 30000 0 Research 3 3 Form 990, Part VI, Section B, Line 11b The Form 990 is provided electronically to all Board members prior to its filing. The Board Chair and Board Treasurer meet with the CEO and Finance Director to review Form 990 in detail and to approve. Form 990, Part VI, Section B, Line 12c Each director and principal officer and a member of a committtee with governing board delegated powers annually signs a statement which affirms their understanding and compliance with the conflict policy. Form 990, Part VI, Section B, Line 15a The Executive Board Members are responsible for hiring the CEO. A salary range is established based on salary surveys and comparable data. Form 990, Part VI, Section B, Line 15b The salaries of all personnel are compared to studies conducted both locally and nationally. Form 990, Part VI, Section C, Line 19 The Foundation makes governing documents, the conflict of interest policy and financial statements available upon request.