2025-08-11T07:44:15-07:00 2024-12-31 451869055 Coworth Financial Services LLC 11155 Kenwood Rd Ste 6D Cincinnati OH 45242 990 2024-01-01 311438001 The LAM Foundation LAMF 5137776889 4520 Cooper Road 300 Cincinnati OH 45242 Andrew Romanosky Treasurer 2025-08-11 true true Kevin L Holmes P00227061 5136735469 2024 2025-03-06 01:10:19Z 4520 Cooper Road 300 Cincinnati OH 45242 1922410 false X www.thelamfoundation.org X 1995 OH The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. 13 13 8 150 0 1354526 1811620 10000 0 85293 102577 5770 8213 1455589 1922410 439442 339630 0 759512 550207 0 242147 604118 702926 1803072 1592763 -347483 329647 2596985 2870285 347702 291061 2249283 2579224 The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. false false 676813 339630 Research Costs The LAM Foundation awarded $424,603 to fund five new research projects in 2024. The Foundation continued to fund eight active grants which had been approved in prior years. The LAM Patient Research Priorities (LAM PREP) survey collected more than 750 responses from patients, their loved ones, scientists and clinicians. The LAM Foundation Early Career Network (TEN) met on three occasions providing a unique environment for young investigators to discuss their LAM research and career goals. 391703 Patient Services In collaboration with our LAM clinic directors, liaisons and scientists we offered 34 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social gatherings. More than 1,000 members of our global community attended our virtual events, and the recorded presentation received over 5700 viewings, further spreading LAM education and awareness around the globe. More than 255 individuals registered with the Foundation. Nine Circle of Hope Transplant Support Program participants received lung transplants this year, resulting in more than 38 tissue samples to further LAM research. 86226 Clinical The LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added one clinic in 2024: Oslo, Norway. The LAM Foundation hosted more than 50 members of the LAM Clinic and Research Network at the LAM Foundation luncheon at the ATS Conference in San Diego, CA. 1154742 true true false false false false false false false false true false false false false true true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 12 0 true 8 true false false false false false false false 0 false false false false false false false X 13 13 false false false false false false false true true false false true true true true true true true true false AL AR CA FL GA HI IL KS KY LA MA MD ME MI MN MS NC ND NH NM NY OK OR RI SC TN WA WI WV X X Jenny Jostworth 5137776889 4520 Cooper Road Suite 300 Cincinnati OH 45242 X Vera Krymskaya PhD Vice Chair 1.00 0.00 X X 0 0 0 Andrew Romanosky Treasurer 1.00 0.00 X X 0 0 0 Greg Downey MD Director 1.00 0.00 X 0 0 0 Dan Dilling MD Director 1.00 0.00 X 0 0 0 Pat Venters Director 1.00 0.00 X 0 0 0 Stephanie Nemser-Dreyer Vice Chair 1.00 0.00 X X 0 0 0 Chuck Wehland Chairman 1.00 0.00 X X 0 0 0 Dr Lyndsay Hoy Vice Chair 1.00 0.00 X X 0 0 0 Eden Pontz Secretary 1.00 0.00 X X 0 0 0 Stephanie Hammes MD PcD Director 1.00 0.00 X 0 0 0 Christine Krueger Director 1.00 0.00 X 0 0 0 Andrea Slattery Vice Chair 1.00 0.00 X X 0 0 0 Kaela Varberg Director 1.00 0.00 X 0 0 0 0 false false false 0 1811620 1811620 Conference Registration 541700 0 100120 100120 0 0 0 2457 2457 2457 2457 0 0 0 Miscellaneous 561499 8213 8213 8213 1922410 10670 100120 X 294462 294462 0 45168 45168 0 0 0 438166 319861 33870 84435 12955 9457 1001 2497 49441 36092 3822 9527 49645 36241 3837 9567 216000 123228 60437 32335 0 66357 37856 18566 9935 0 0 0 172524 84282 43573 44669 0 6013 2713 2536 764 0 0 38116 22141 6175 9800 9567 5634 1368 2565 0 10066 10066 0 0 38 38 0 Publicity and communications 55811 41479 14332 Research Project and Meets 29209 29209 Printing and Publications 24118 9649 395 14074 Clinical Research Support 21606 21606 53501 25598 20256 7647 1592763 1154742 195874 242147 187589 79870 2364363 2731822 35000 32745 0 0 0 0 0 12250 23593 50829 50829 0 0 0 0 38 0 0 2596985 2870285 151106 32918 196596 258143 347702 291061 X 2004609 2353091 244674 226133 2249283 2579224 2596985 2870285 329647 294 X false true X true false X 1306396 2207809 1563975 1364526 1811620 8254326 0 0 1306396 2207809 1563975 1364526 1811620 8254326 460210 7794116 3134 5832 85293 100120 194379 0 1776 1866 5770 8213 17625 8466330 507893 0.92060 0.94590 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 11560 11560 39269 39269 X 1922704 294 294 1922410 1922410 1592763 1592763 1592763 Part X : FIN48 Footnote The Foundation is exempt from income taxes under Section 501(c)(3)of the Internal Revenue Code and a similar provision of Ohio law. However, the Foundation is subject to federal income tax on any unrelated business taxable income.The Foundation's IRS Form 990 is subject to review and examination by federal and state authorities. The Foundation believes it has appropriate support for any tax positions taken, and therefore, does not have any uncertain income tax positions that are material to the financial statements. true Canada Research 44643 New Zealand Research 525 2 false false false false false false true Childrens Mercy Hospital 2401 Gilham Road Kansas City MO 64108 440605373 45000 0 Research Cincinnati Childrens Med Cen 3333 Burnet Ave Cincinnati OH 45229 310833936 92962 0 Research Northwestern University 750 N Lake Drive Chicago IL 60611 362167817 35000 0 Research University of Cincinnati 51 Goodman Street Suite 530 Cincinnati OH 45221 316000989 75000 0 Research University of Washington 3917 University Way NE Seattle WA 98105 916001537 90000 0 Research 4 1 Form 990, Part VI, Section B, Line 11b The Form 990 is provided electronically to all Board members prior to its filing. The Board Chair and Board Treasurer meet with the CEO and Finance Director to review Form 990 in detail and to approve. Form 990, Part VI, Section B, Line 12c Each director and principal officer and a member of a committtee with governing board delegated powers annually signs a statement which affirms their understanding and compliance with the conflict policy. Form 990, Part VI, Section B, Line 15a The Executive Board Members are responsible for hiring the CEO. A salary range is established based on salary surveys and comparable data. Form 990, Part VI, Section B, Line 15b The salaries of all personnel are compared to studies conducted both locally and nationally. Form 990, Part VI, Section C, Line 19 The Foundation makes governing documents, the conflict of interest policy and financial statements available upon request.