2024-07-29T09:46:27-07:00 2023-12-31 451869055 Coworth Financial Services LLC 11155 Kenwood Road Suite 6D Cincinnati OH 45242 990 2023-01-01 311438001 The LAM Foundation LAMF 5137776889 4520 Cooper Road 300 Cincinnati OH 45242 Andrew Romanosky Treasurer 2024-07-29 true true Kevin L Holmes P00227061 5136735469 2023 2024-08-08 14:25:15Z 4520 Cooper Road 300 Cincinnati OH 45242 1455589 false X www.thelamfoundation.org X 1995 OH The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. 9 9 7 100 0 871488 1354526 156627 10000 5832 85293 537726 5770 1571673 1455589 431511 439442 0 603077 759512 0 213868 838820 604118 1873408 1803072 -301735 -347483 2903030 2596985 306334 347702 2596696 2249283 The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. false false 831965 398197 Research CostsThe LAM Foundation awarded $330,000 to fund two new research projects in 2023. The Foundation continued to fund twelve grants which had been approved in prior years. The Foundation prioritized funding for two innovative patient-focused studies: LAM PREP and LAMFit. The LAM Foundation Early Career Network (TEN) met on four occasions, providing a unique environment for young investigators to discuss their LAM research and career goals. 356910 Patient ServicesIn collaboration with our LAM clinic directors, liaisons and scientists we offered 21 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social gatherings. 811 members of our global community attended our virtual events, and the recorded presentation received over 1200 viewings, further spreading LAM education and awareness around the globe. More than 231 individuals registered with the Foundation. Ten Circle of Hope Transplant Support Program participants received lung transplants this year, resulting in more than 54 tissue samples to further LAM research. We produced four joint regional educational conferences in partnership with the TSC Alliance in Denver, Brimingham, Washington D.C. and Seattle. 118220 ClinicalThe LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added 4 clinics in 2023: Richmond, VA, Johannesburg, South Africa; Charlottesville, VA and Mainz, Germany. The LAM Foundation hosted 55 members of the LAM Clinic and Research Network at the LAM Foundation luncheon at the ATS Conference in Washington, D.C. 1307095 true true false false false false false false false false true false false false false true true false false false false true false false false false false true false true false false false false false false false false false false false false false false false false false true 9 0 true 7 true false false false false false false false 0 false false false false false false false X 9 9 false false false false false false false true true false false true true true true true true true true false AL AR CA FL GA HI IL KS KY LA MA MD ME MI MN MS NC ND NH NM NY OK OR RI SC TN WA WI WV X X Jenny Jostworth 5137776889 4520 Cooper Road Suite 300 Cincinnati OH 45242 X Susan Sherman CEO 40.00 0.00 X 221520 0 5963 Vera Krymskaya PhD Director 1.00 0.00 X 0 0 0 Andrew Romanosky Treasurer 1.00 0.00 X X 0 0 0 Dan Dilling MD Director 1.00 0.00 X 0 0 0 Pat Venters Director 1.00 0.00 X 0 0 0 Stephanie Nemser-Dreyer Director 1.00 0.00 X 0 0 0 Chuck Wehland Chairman 1.00 0.00 X X 0 0 0 Dr Lyndsay Hoy Director 1.00 0.00 X 0 0 0 Eden Pontz Director 1.00 0.00 X 0 0 0 Andrea Slattery Director 1.00 0.00 X 0 0 0 221520 5963 1 false true false 0 1354526 1354526 Conference Registration 541700 10000 10000 10000 85293 85293 0 0 0 0 0 0 0 Miscellaneous 561499 5770 5770 5770 1455589 10000 91063 X 404442 404442 0 35000 35000 0 227483 135240 56319 35924 0 399888 237736 99005 63147 5963 3545 1476 942 85634 50910 21201 13523 40544 24104 10038 6402 0 0 104765 49799 47738 7228 0 0 0 228857 165591 20177 43089 0 6951 4676 1443 832 0 0 36671 21299 5942 9430 19014 14091 4 4919 0 12526 11929 597 0 0 161 161 0 Clinical Research Support 71464 71464 Publicity and communications 42337 37559 4778 Printing and Publications 24809 10429 14380 Meetings 15728 3071 11848 809 40835 26210 6757 7868 1803072 1307095 282109 213868 277275 187589 2558985 2364363 1500 0 34736 32745 0 0 0 0 30334 12250 50829 50829 0 0 0 0 200 38 0 2903030 2596985 73011 151106 210000 196596 23323 306334 347702 X 2401680 2004609 195016 244674 2596696 2249283 2903030 2596985 X -347483 68 2 X false true X true false X 1201372 1306396 2207809 1563975 1364526 7644078 0 0 1201372 1306396 2207809 1563975 1364526 7644078 285267 7358811 32209 3134 5832 85293 126468 0 1776 1866 5770 9412 7779958 742191 0.94590 0.92020 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 11560 11560 39269 39269 X 1487157 68 31500 31568 1455589 1455589 1834572 31500 31500 1803072 1803072 Part X : FIN48 Footnote The Foundation is exempt from income taxes under Section 501(c)(3)of the Internal Revenue Code and a similar provision of Ohio law. However, the Foundation is subject to federal income tax on any unrelated business taxable income.The Foundation's IRS Form 990 is subject to review and examination by federal and state authorities. The Foundation believes it has appropriate support for any tax positions taken, and therefore, does not have any uncertain income tax positions that are material to the financial statements. true New Zealand Research 35000 1 1 false false false false false false true Brigham & Womens Hospital 75 Francis Street Boston MA 02115 042312909 56891 0 Research Cincinnati Childrens Med Cen 3333 Burnet Ave Cincinnati OH 45229 310833936 163000 0 Research New York Medical College 40 Sunshine Cottage road Valhalla NY 10595 10000 0 Research Northwestern University 750 N Lake Drive Chicago IL 60611 362167817 50000 0 Research University of Maryland 7809 Regents Drive College Park MD 20742 522197313 60000 0 Research University of Pennsylvania 700 Clinical Research Bldg Philadelphia PA 19104 231352685 60000 0 Resarch University of Washington 3917 University Way NE Seattle WA 98105 916001537 25000 0 Research 6 1 true false false false false false false false false false Susan Sherman CEO 199247 22273 5963 227483 Form 990, Part VI, Section B, Line 11b The Form 990 is provided electronically to all Board members prior to its filing. The Board Chair and Board Treasurer meet with the CEO and Finance Director to review Form 990 in detail and to approve. Form 990, Part VI, Section B, Line 12c Each director and principal officer and a member of a committtee with governing board delegated powers annually signs a statement which affirms their understanding and compliance with the conflict policy. Form 990, Part VI, Section B, Line 15a The Executive Board Members are responsible for hiring the CEO. A salary range is established based on salary surveys and comparable data. Form 990, Part VI, Section B, Line 15b The salaries of all personnel are compared to studies conducted both locally and nationally. Form 990, Part VI, Section C, Line 19 The Foundation makes governing documents, the conflict of interest policy and financial statements available upon request. Form 990, Part XI, Line 9 Roudning = $2