Nonprofit · EIN 22-3283911
MYELODYSPLASTIC SYNDROMES FOUNDATION
Tax-exempt · NEW YORK, NY 10003
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,859,509 | $3,034,024 | -$1,174,515 | $2,623,801 | $208,943 | $2,414,858 |
| December 31, 2024 | 990 | $2,002,126 | $2,953,868 | -$951,742 | $3,847,112 | $257,739 | $3,589,373 |
| December 31, 2023 | 990 (amended) | $2,562,806 | $3,312,848 | -$750,042 | $5,146,339 | $754,614 | $4,391,725 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $1,828,816
- Membership dues
- $48,846
- Program service revenue
- $0
- Investment income
- $27,075
- Other revenue
- $3,618
Expenses
- Grants and similar amounts paid
- $165,590
- Compensation of officers, directors and key employees
- $335,541
- Other salaries and wages
- $631,758
- Salaries, compensation and benefits (total)
- $1,109,957
- Professional fundraising fees
- $0
- Legal fees
- $53,198
- Occupancy
- $24,813
- Travel
- $77,012
- Depreciation
- $269,583
- Program services (functional)
- $2,051,169
- Management and general (functional)
- $453,393
- Fundraising (functional)
- $529,462
Balance sheet and other
- Total assets, start of year
- $3,847,112
- Total assets, end of year
- $2,623,801
- Total liabilities, end of year
- $208,943
- Net assets, end of year
- $2,414,858
- Land, buildings and equipment
- $652,052
- Net assets without donor restrictions
- $1,861,020
- Net assets with donor restrictions
- $553,838
- Gross receipts
- $1,859,509
- Employees
- 12
- Volunteers
- 24
- Year formed
- 1999
- State of legal domicile
- NJ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| PEGGY ANN TORNEY | CEO Officer | 40 | $228,441 | $0 |
| ASHLEY R MONCRIEF | PATIENT CARE DIRECTOR Highest-paid employee | 40 | $144,213 | $0 |
| TANYA RHODES | DEVELOPMENT DIRECTOR Highest-paid employee | 40 | $112,801 | $3,465 |
| LEA HARRISON | SECRETARY Trustee or director, Officer | 40 | $105,000 | $2,100 |
| DR STEPHEN NIMER | CHAIRMAN Trustee or director, Officer | 3 | $0 | $0 |
| SANDY KURTIN | TREASURER Trustee or director, Officer | 4 | $0 | $0 |
| DR PIERRE FENAUX | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DR PETER GREENBERG | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DR LUCA MALCOVATI | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DR MICHAEL SAVONA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JIM WILLIAMS | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| TRACEY IRACA | EXECUTIVE DIRECTOR (THROUGH 1/25) Officer | 40 | $151,094 | $4,580 |
| ASHLEY R MONCRIEF | PATIENT CARE DIRECTOR Highest-paid employee | 40 | $136,505 | $1,198 |
| TANYA RHODES | DEVELOPMENT DIRECTOR Highest-paid employee | 40 | $124,310 | $3,717 |
| LEA HARRISON | SECRETARY Trustee or director, Officer | 40 | $93,316 | $2,676 |
| DR STEPHEN NIMER | CHAIRMAN Trustee or director, Officer | 4 | $0 | $0 |
| SANDY KURTIN | TREASURER Trustee or director, Officer | 4 | $0 | $0 |
| DR PIERRE FENAUX | DIRECTOR Trustee or director | 4 | $0 | $0 |
| DR PETER GREENBERG | DIRECTOR Trustee or director | 4 | $0 | $0 |
| DR LUCA MALCOVATI | DIRECTOR Trustee or director | 4 | $0 | $0 |
| DR MICHAEL SAVONA | DIRECTOR Trustee or director | 4 | $0 | $0 |
990 for the year ended December 31, 2023: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TRACEY A IRACA | EXECUTIVE DI Officer | 40 | $86,323 |
| JANICE BUTCHKO | SECRETARY Officer | 40 | $62,041 |
| SANDRA KURTIN PHD ANP-C AOCN | TREASURER Trustee or director, Officer | 4 | $0 |
| LUCA MALCOVATI MD | BOARD MEMBER Trustee or director | 4 | $0 |
| MICHAEL R SAVONA MD | BOARD MEMBER Trustee or director | 4 | $0 |
| PETER L GREENBERG MD | BOARD MEMBER Trustee or director | 4 | $0 |
| STEPHEN D NIMER MD | CHAIRMAN Trustee or director, Officer | 4 | $0 |
| PIERRE FENAUX MD PHD | BOARD MEMBER Trustee or director | 4 | $0 |
Address and contacts
- Address (IRS master file)
- 228 PARK AVE S PMB 118983, NEW YORK, NY 10003-0103
- In care of
- % OPERATING DIRECTOR
- Principal officer (990 for 2025)
- PEGGY ANN TORNEY, 228 PARK AVENUE S PMB 118983, NEW YORK, NY 10003
- Signed the 990
- PEGGY ANN TORNEY, CEO
- Phone
- (800) 637-0839
- Website
- WWW.MDS-FOUNDATION.ORG
- Return prepared by
- SAX ADVISORY LLC
Mission
THE MDS FOUNDATION IS A GLOBAL NONPROFIT DEDICATED TO IMPROVING THE LIVES OF PATIENTS WITH MYELODYSPLASTIC SYNDROMES (MDS) THROUGH PATIENT SUPPORT, EDUCATION, ADVOCACY, RESEARCH, AND COLLABORATION TO ADVANCE BETTER CARE AND OUTCOMES WORLDWIDE.
Program accomplishments
- THE MDS FOUNDATION ADVOCATES ON BEHALF OF INDIVIDUALS AFFECTED BY MYELODYSPLASTIC SYNDROMES (MDS), A RARE AND COMPLEX BLOOD CANCER. THROUGH EDUCATION, AWARENESS, AND PATIENT ENGAGEMENT, WE EMPOWER PATIENTS AND CAREGIVERS TO MAKE INFORMED HEALTHCARE DECISIONS AND ACCESS APPROPRIATE CARE.WE WORK WITH HEALTHCARE PROFESSIONALS, RESEARCHERS, AND INDUSTRY STAKEHOLDERS TO ENSURE THE PATIENT VOICE IS REPRESENTED IN TREATMENT DEVELOPMENT, POLICY DISCUSSIONS, AND CLINICAL GUIDELINES. WE PROVIDE MULTILINGUAL EDUCATIONAL MATERIALS, PATIENT NAVIGATION SERVICES, PUBLIC AWARENESS CAMPAIGNS, AND REFERRALS TO MDS CENTERS OF EXCELLENCE AROUND THE WORLD.Expenses $1,464,845
- EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED IN PARTNERSHIP WITH SEVERAL SOCIETIES AND ASSOCIATIONS, INCLUDING THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. IN ADDITION, THE FOUNDATION HOSTS ITS OWN PROFESSIONAL EDUCATIONAL PROGRAMS DESIGNED TO ADVANCE THE UNDERSTANDING OF MYELODYSPLASTIC SYNDROMES (MDS), IMPROVE THE QUALITY OF PATIENT CARE, AND SUPPORT THE CONTINUING EDUCATION OF HEALTHCARE PROFESSIONALS. THESE INFORMATIVE AND INTERACTIVE PROGRAMS ARE AIMED AT HEMATOLOGISTS, ONCOLOGY NURSES, HEMATOLOGY FELLOWS, PHARMACISTS WORKING WITH MDS PATIENTS, AND OTHER ALLIED HEALTH PROFESSIONALS INVOLVED IN THE CARE AND TREATMENT OF INDIVIDUALS WITH MDS.Expenses $269,674
- THE MDS FOUNDATION SUPPORTS AND ADVANCES SCIENTIFIC RESEARCH IN MYELODYSPLASTIC SYNDROMES (MDS) THROUGH ITS YOUNG INVESTIGATOR RESEARCH PROGRAM. THE FOUNDATION INVITES EARLY-CAREER INVESTIGATORS TO SUBMIT PROPOSALS FOCUSED ON BASIC SCIENCE OR CLINICAL RESEARCH RELATED TO THE CAUSES, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS, AND MANAGEMENT OF MDS.IN ADDITION TO FUNDING INDIVIDUAL RESEARCH, THE FOUNDATION CONVENES INTERNATIONAL WORKING GROUPS COMPOSED OF LEADING SCIENTISTS AND PHYSICIANS TO COLLABORATIVELY IMPROVE DIAGNOSTIC STANDARDS, PROGNOSTIC TOOLS, AND TREATMENT STRATEGIES.Expenses $316,650 · grants $165,590
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 22-3283911
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2000
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G30)
- Assets (IRS master file)
- $2,623,801
- Income (IRS master file)
- $1,859,509
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,859,509 | $3,034,024 | $2,623,801 | XML |
| 990 | December 2024 | $2,002,126 | $2,953,868 | $3,847,112 | XML |
| 990 | December 2023 | $2,562,806 | $3,312,848 | $5,146,339 | XML |
| 990 | December 2022 | $2,521,375 | $2,174,159 | $5,422,226 | IRS |
| 990 | December 2021 | $4,660,616 | $2,815,786 | $5,238,327 | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-3283911).
Questions about MYELODYSPLASTIC SYNDROMES FOUNDATION
- What is the EIN of MYELODYSPLASTIC SYNDROMES FOUNDATION?
- The employer identification number (EIN) of MYELODYSPLASTIC SYNDROMES FOUNDATION is 22-3283911.
- Is MYELODYSPLASTIC SYNDROMES FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2000.
- Are donations to MYELODYSPLASTIC SYNDROMES FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MYELODYSPLASTIC SYNDROMES FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of MYELODYSPLASTIC SYNDROMES FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MYELODYSPLASTIC SYNDROMES FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of MYELODYSPLASTIC SYNDROMES FOUNDATION?
- The 990 for the year ended December 31, 2025 names PEGGY ANN TORNEY.
- Who are the officers and directors of MYELODYSPLASTIC SYNDROMES FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 11 people; 4 received compensation from the organization, the highest $228,441 (PEGGY ANN TORNEY, CEO).
- How much revenue does MYELODYSPLASTIC SYNDROMES FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,859,509, expenses of $3,034,024 and total assets of $2,623,801 at year end.
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