2025-10-24T10:33:12-04:00 2023-12-31 223299874 BKC CPAS PC 39 STATE ROUTE 12 STE 2 FLEMINGTON NJ 08822 990 2023-01-01 223283911 THE MYELODYSPLASTIC SYNDROMES FOUNDATION MYEL 8006370839 4573 S BROAD STREET SUITE 150 YARDVILLE NJ 08620 PEGGY ANN TORNEY CEO 8006370839 2025-09-24 true false MICHAEL A HOLK CPA P01315390 9087827900 2025-09-24 2023 2025-03-06 01:10:19Z X MDS FOUNDATION INC PEGGY ANN TORNEY 4573 S BROAD STREET SUITE 150 YARDVILLE NJ 08620 2827959 false X WWW.MDS-FOUNDATION.ORG X 1999 NJ ESTABLISHED BY AN INTERNATIONAL GROUP OF PHYSICIANS AND RESEARCHERS TO PROVIDE AN ONGOING EXCHANGE OF INFORMATION RELATING TO MDS. 6 6 9 30 0 2618926 1558359 405541 972104 8487 32321 -511579 22 2521375 2562806 240484 483164 0 596978 654897 0 136568 1336697 2174787 2174159 3312848 347216 -750042 5422226 5146339 281335 754614 5140891 4391725 X THE MDS FOUNDATION, INC. IS AN INTERNATIONAL ORGANIZATION DEVOTED TO THE SUPPORT AND EDUCATION OF PATIENTS AND HEALTHCARE PROVIDERS WITH INNOVATIVE RESEARCH IN THE FIELDS OF MDS AND RELATED MYELOID NEOPLASMS IN ORDER TO ACCELERATE PROGRESS LEADING TO THE CONTROL AND CURE OF THESE DISEASES false false 741817 753442 THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2023. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATIONS "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIASON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST. 1269537 1205985 EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT. 483164 483164 868532 THE MDS FOUNDATION PROVIDES RESEARCH GRANTS FOR SCIENTIFIC INVESTIGATORS. THE FOUNDATION IS DEDICATED TO FURTHERING THE RESEARCH INTO MDS AND WILL INVITE YOUNG INVESTIGATORS TO SUBMIT PROPOSALS FOR EITHER BASIC RESEARCH OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND MANAGEMENT OF THE MYELODYSPLASTIC SYNDROMES. IN ADDITION, THE FOUNDATION SPONSORS INTERNATIONAL WORKING GROUPS OF SCIENTISTS AND PHYSICIANS TO FURTHER DIAGNOSTIC, PROGNOSTIC AND TREATMENT TECHNIQUES. THE FOUNDATION HAS ALSO ESTABLISHED A PROCEDURE FOR CREATING AWARENESS OF CLINICAL TRIALS IN THE FIELD OF MDS AS WELL AS ASSISTING IN THE CLINICAL TRIAL RECRUITMENT PROCESS BY UTILIZING ITS OUTREACH TO OTHER 2494518 true true false false false false false false false false true false false false true true true false false false true true false false true false false true true false false false false false false false false false true false false false false false false false false true 15 0 9 true false false false false false false false false false false false false X 6 6 false false false false true true false true true false false true true true true true true true false false NJ MA IL TN CA NY X PEGGY ANN TORNEY 8006370839 4573 S BROAD STREET SUITE 150 YARDVILLE NJ 08620 TRACEY A IRACA EXECUTIVE DI 40.00 X 86323 0 0 JANICE BUTCHKO SECRETARY 40.00 X 62041 0 0 SANDRA KURTIN PHD ANP-C AOCN TREASURER 4.00 X X 0 0 0 LUCA MALCOVATI MD BOARD MEMBER 4.00 X 0 0 0 MICHAEL R SAVONA MD BOARD MEMBER 4.00 X 0 0 0 PETER L GREENBERG MD BOARD MEMBER 4.00 X 0 0 0 STEPHEN D NIMER MD CHAIRMAN 4.00 X X 0 0 0 PIERRE FENAUX MD PHD BOARD MEMBER 4.00 X 0 0 0 148364 false false false 40120 1518239 118105 1558359 CONGRESS & SYMPOSIA 890437 890437 PROGRAM INCOME 81667 81667 972104 32321 32321 416280 265153 151127 MANAGEMENT FEES 35972 35972 BAD DEBT EXPENSE -37077 -37077 MISCELLANEOUS INCOME -150000 -150000 -151105 2562806 820999 32321 236773 236773 114795 114795 131596 131596 147110 147110 419221 261913 57562 99746 43078 31113 4378 7587 45488 32853 4623 8012 273041 176 270131 2734 18851 18851 2425 2121 304 208305 73280 116969 18056 16030 560 15470 37136 1 37135 33291 20974 12188 129 1132371 1119647 12724 434 434 182641 173359 9282 VARIOUS PROGRAM EXPENSES 149888 149888 DONATED SERVICES EXPENSE 118105 480 117625 MATERIAL DEVELOPMENT AND 1411 1411 WALK-A-THON EXP - MANAGEM 858 858 3312848 2494518 681762 136568 2321663 1946015 1747808 1783341 240534 819971 181299 57923 12659 1780156 811079 453236 969077 21625 13414 5422226 5146339 256783 740430 2826 21726 14184 281335 754614 X 4247809 3735370 893082 656355 5140891 4391725 5422226 5146339 X -750042 876 X false true X true false X 1837349 2921434 3207538 2618926 1558359 12143606 1837349 2921434 3207538 2618926 1558359 12143606 2222036 9921570 5906 2543 2252 8487 32321 51509 12195115 4923034 0.81360 0.56960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 42903 33910 8993 1021563 777169 244394 253387 LEASE LIABILITY 7620 LEASE LIABILITY:C8145 XEROX FINANCE 6564 14184 X 2563682 876 876 2562806 2562806 3311076 3311076 1772 1772 3312848 SCHEDULE D, PAGE 3, PART X THE FOUNDATION FOLLOWS THE GUIDANCE OF ACCOUNTING STANDARDS CODIFICATION (ASC) TOPIC 740, ACCOUNTING FOR INCOME TAXES, RELATED TO UNCERTAIN INCOME TAX PROVISIONS, WHICH PRESCRIBES A THRESHOLD OF MORE LIKELY THAN NOT, FOR RECOGNITION AND DERECOGNITION OF TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. MANAGEMENT HAS DETERMINED THAT IT IS MORE LIKELY THAN NOT, THAT ALL TAX POSITIONS WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED. THE FOUNDATION FILES A FORM 990, RETURN OF ORGANIZATION EXEMPT FORM TAX, ANNUALLY WITH THE INTERNAL REVENUE SERVICE, AS WELL AS A STATE EQUIVALENT FILING. BOTH FILINGS ARE SUBJECT TO AUDIT BY THE APPROPRIATE AUTHORITY. THE FOUNDATION RETURNS BEFORE THE YEAR ENDED DECEMBER 31, 2019 ARE NO LONGER SUBJECT TO EXAMINATION BY FEDERAL OR STATE AUTHORITIES DUE TO THE STATUTE OF LIMITATIONS. SCHEDULE D, PAGE 4, PART XI, LINE 2D DIRECT FUNDRAISING EXP INCLUDED ON STATEMENT OF REVENUE 0 CURRENCY GAIN/LOSS 876 SCHEDULE D, PAGE 4, PART XII, LINE 2D DIRECT FUNDRAISING EXP INCLUDED ON STATEMENT OF REVENUE 0 SCHEDULE D, PAGE 4, PART XII, LINE 4B BOOK / TAX DEPRECIATION DIFFERENCE 1,772 true EUROPE PROGRAM SERVICE SURVEYS, WORKSHOPS 108379 MIDDLE EAST & NORTH AFRICA PROGRAM SERVICE SYMPOSIUM & FORUM 10150 118529 118529 AWARD 100000 WIRE TREATMENT ACCESS 31596 WIRE false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 108,379 0 MIDDLE EAST & NORTH AFRICA 10,150 0 WALK A THONS 416280 416280 265153 416280 416280 265153 265153 151127 true H LEE MOFFITT CANCER CENTER & RESEARCH 3855 HEALTH SCIENCES DRIVE LA JOLLA CA 92093 956006144 501C3 116819 IWG SEQUENCING WASHINGTON UNIVERSITY IN ST LOUIS 1 BROOKINGS DRIVE ST LOUIS MO 63130 430653611 501C3 100000 RESEARCH UCSD SAN DIEGO MOORES CANCER CENTER 3855 HEALTH SCIENCES DRIVE SAN DIEGO CA 92037 274440873 501C3 19954 SUPPORT TITO BASTIANELLO AWARD 1 10000 TITO BASTIANELLO AWARD 1 5525 TITO BASTIANELLO AWARD 1 11391 TITO BASTIANELLO AWARD 1 10000 AWARDS UNDER 5,000 77879 SCHEDULE I, PAGE 1, PART I, LINE 2 THE MYELODYSPLASTIC SYNDROMES WORKS CLOSELY WITH THOSE WHO RECEIVE GRANTS FROM THE ORGANIZATIONS TO ENSURE THE GRANT FUNDS ARE BEING USED APPROPRAITELY. CHECKING IN AND RECIEVING UPDATES ON RESEARCH IS KEY TO SHOWING GRANT FUNDS ARE BEING USED FOR THE CORRECT CAUSES. X DIGITAL MARKETI 4 118005 FAIR MARKET VALUE X ACCOUNTING 1 100 FAIR MARKET VALUE false false false FORM 990, PAGE 1, ITEM B CHANGE IN AUDITED FINANCIAL STATEMENTS FORM 990 - ORGANIZATION'S MISSION THE MDS FOUNDATION, INC. IS AN INTERNATIONAL ORGANIZATION DEVOTED TO THE SUPPORT AND EDUCATION OF PATIENTS AND HEALTHCARE PROVIDERS WITH INNOVATIVE RESEARCH IN THE FIELDS OF MDS AND RELATED MYELOID NEOPLASMS IN ORDER TO ACCELERATE PROGRESS LEADING TO THE CONTROL AND CURE OF THESE DISEASES FORM 990, PART III LINE 4 A, IN ADDITION, EDUCATIONAL SYMPOSIA ARE CONDUCTED FOR ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. AN MDS FOUNDATION BI-ANNUAL CONFERENCE IS CONDUCTED AS WELL. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE DIRECTED TOWARD HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY, AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT. LINE 4C, HEMATOLOGISTS WORLDWIDE WHO CAN REFER PATIENTS INTO THESE PROTOCOLS. FORM 990, PAGE 2, PART III, LINE 4D OTHER FORM 990, PAGE 6, PART VI, LINE 6 THERE ARE TWO CLASSES OF MEMBERS, PROFESSIONAL MEMBERS, INCLUDING PHYSICIANS AND ACCREDITED RESEARCHERS, WHO ARE PROFESSIONALLY INVOLVED IN TREATING PATIENTS WITH ONE OR MORE OF THE MYELODYSPLASTIC SYNDROMES AND INDIVIDUAL PATIENT MEMBERS/VOLUNTEERS INTERESTED IN REPORTING AND PROMOTING THE ACTIVITIES OF THE FOUNDATION. FORM 990, PAGE 6, PART VI, LINE 7A THERE SHALL BE TWO MEMBER ELECTED DIRECTORS, BOTH TO BE ELECTED BY A PLURALITY OF THE QUALIFIED PROFESSIONAL MEMBERS AND THE STANDING BOARD MEMBERS. FORM 990, PAGE 6, PART VI, LINE 11B THE DRAFT OF THE FORM 990 IS PREPARED BY AN ACCOUNTING FIRM AND PROVIDED TO THE BOARD AND THE OPERATING DIRECTOR OF THE FOUNDATION FOR REVIEW. THE 990 IS APPROVED BY THE CHAIRMAN OF THE EXECUTIVE COMMITTEE AND THE OPERATING DIRECTOR PRIOR TO SUBMISSION TO THE IRS. THE FINALIZED FORM 990 IS MADE AVAILABLE TO THE BOARD FOR FURTHER REVIEW AND COMMENT PRIOR TO FILING WITH THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C THE BOARD REVIEWS AND SUBMITS A DISCLOSURE OF RELATIONSHIPS STATEMENT TO THE MANAGEMENT OF MDS FOUNDATION, INC. ANNUALLY. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD PERFORMS A SALARY COMPARABILITY ANALYSIS USING THE 990 INFORMATION FOR SIMILAR NONPROFIT ORGANIZATIONS. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9 GAIN OF FOREIGN CURRENCY 876