Nonprofit · EIN 99-1303165
CURE CDKL5 EPILEPSY FOUNDATION
Tax-exempt · NEW YORK, NY 10024
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $192,305 | $14,000 | $178,305 | $178,305 | $0 | $178,305 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $192,305
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $14,000
- Program services (functional)
- $14,000
Balance sheet and other
- Total assets, start of year
- $0
- Total assets, end of year
- $178,305
- Total liabilities, end of year
- $0
- Net assets, end of year
- $178,305
- Cash, savings and investments
- $178,305
- Gross receipts
- $192,305
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Aurelie Hasse | Treasurer | 5 | $0 |
| Andreas Borg | President | 5 | $0 |
| Camille Ranadive | Secretary | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 241 CENTRAL PARK W APT 8D, NEW YORK, NY 10024-4545
- In care of
- % AURELIE HASSE
- Signed the 990-EZ
- Aurelie Hasse, Treasurer
- Phone
- (914) 715-8912
- Website
- https://cure5.foundation/
Mission
Cure CDKL5 Epilepsy Foundation's mission is to find a cure for children suffering from CDKL5 Deficiency Disorder and improve the qualtiy of life for them and their families. We will provide financial grants and payments to advance science and research to the academic, biopharma, scientific and medical community to pursue our mission. CDKL5 is a rare developmental epileptic encephalophathy caused by mutations in the CDKL5 gene, and this can manifest in a broad range of clinical symptoms and severity.
Program accomplishments
- In 2024, CURE5 raised $192k to advance research and therapeutic development for CDKL5 Deficiency Disorder. The Foundation paid $14k to Unravel Biosciences which provided specialized scientific services supporting preclinical research. Specifically, Unravel Biosciences leveraged its AI-driven RNA analysis for a rapid drug repurposing screen. The data collected will be used in partnership with other CURE5 grantees. In addition, the Foundation designed and launched its grantmaking framework, identified research collaborators, and initiated planning for larger research grants to be awarded in 2025. These activities represent the Foundation's first year of programmatic operations in pursuit of its exempt purpose of supporting scientific discovery and treatments for CDKL5 Deficiency Disorder. The principal project funded in 2025 will be an iPSC portfolio with Boston Children's and building on our repurposing work with several other partners.Expenses $14,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 99-1303165
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2024
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G54)
- Assets (IRS master file)
- $178,305
- Income (IRS master file)
- $192,305
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $192,305 | $14,000 | $178,305 | XML |
| 990-EZ | December 2023 | $0 | $0 | $1 | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 99-1303165).
Questions about CURE CDKL5 EPILEPSY FOUNDATION
- What is the EIN of CURE CDKL5 EPILEPSY FOUNDATION?
- The employer identification number (EIN) of CURE CDKL5 EPILEPSY FOUNDATION is 99-1303165.
- Is CURE CDKL5 EPILEPSY FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2024.
- Are donations to CURE CDKL5 EPILEPSY FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CURE CDKL5 EPILEPSY FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CURE CDKL5 EPILEPSY FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CURE CDKL5 EPILEPSY FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who are the officers and directors of CURE CDKL5 EPILEPSY FOUNDATION?
- The 990-EZ for the year ended December 31, 2024 lists 3 people; 0 received compensation from the organization.
- How much revenue does CURE CDKL5 EPILEPSY FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $192,305, expenses of $14,000 and total assets of $178,305 at year end.
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