Nonprofit · EIN 83-2545342
PROJECT 8P FOUNDATION
Tax-exempt · NEW YORK, NY 10019
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,888,508 | $1,387,442 | $501,066 | $2,943,272 | $86,971 | $2,856,301 |
| December 31, 2023 | 990 | $2,011,359 | $913,309 | $1,098,050 | $2,492,008 | $188,594 | $2,303,414 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,787,094
- Program service revenue
- $19,288
- Investment income
- $53,281
- Net income from fundraising events
- $28,845
- Other revenue
- $28,845
Expenses
- Grants and similar amounts paid
- $491,099
- Compensation of officers, directors and key employees
- $102,083
- Other salaries and wages
- $127,025
- Salaries, compensation and benefits (total)
- $248,683
- Professional fundraising fees
- $0
- Legal fees
- $20,576
- Accounting fees
- $20,424
- Travel
- $33,714
- Program services (functional)
- $1,180,179
- Management and general (functional)
- $155,969
- Fundraising (functional)
- $51,294
Balance sheet and other
- Total assets, start of year
- $2,492,008
- Total assets, end of year
- $2,943,272
- Total liabilities, end of year
- $86,971
- Net assets, end of year
- $2,856,301
- Net assets without donor restrictions
- $1,706,301
- Net assets with donor restrictions
- $1,150,000
- Gross receipts
- $1,888,508
- Employees
- 3
- Volunteers
- 10
- Year formed
- 2018
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lauren Chaby | Executive Director Officer | 40 | $102,083 |
| Wissam Nesr | Director Trustee or director | 1 | $0 |
| David Jackson | Director Trustee or director | 1 | $0 |
| Jahn Marie Surette | Director Trustee or director | 1 | $0 |
| Bina Shah | FounderCEOTreasurer Trustee or director, Officer | 5 | $0 |
| Erica Seaborne | Secretary Officer | 1 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jahn Marie Surette | Director Trustee or director | 1 | $0 |
| Thomas Peterson | Director Trustee or director | 1 | $0 |
| Mehul Shah | Director Trustee or director | 1 | $0 |
| Wissam Nesr | Director Trustee or director | 1 | $0 |
| Bina Shah | FounderCEOTreasurer Trustee or director, Officer | 5 | $0 |
| Shannon Clarke | Director Secretary Trustee or director, Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 787 SEVENTH AVENUE 31ST FLOOR, NEW YORK, NY 10019-6018
- In care of
- % BINA SHAH
- Principal officer (990 for 2024)
- Bina Shah, 787 Seventh Avenue 31st floor, New York, NY 10019
- Signed the 990
- BINA SHAH, FounderCEOTreasurer
- Phone
- (212) 248-3260
- Website
- www.project8p.org
- Return prepared by
- Mullins PC
Mission
To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. Activities include clinical care, research, AI data-driven platform and biorepository, and education and advocacy.
Program accomplishments
- Scientific Programs: Project 8p Foundation partners with top researchers and biopharma to uncover the causes of chromosome 8p disorders and improve the lives of those affected. Our work addresses urgent biological questionssuch as symptom progression, mitochondrial dysfunction, gut-brain interactions, and cellular stressto deliver actionable clinical tools for families today, while accelerating discoveries that can lead to scalable treatments for all communities affected by complex neurodevelopmental and neuromuscular conditions. Were advancing innovative technologies and accelerating therapeutic discovery by harnessing data in new ways. Our proprietary 8p Insights Portal is a growing, patient-centered resource that integrates clinical records, caregiver-reported outcomes, and biospecimen datadriving scientific breakthroughs and delivering meaningful impact for those living with chromosome 8p disorders.Expenses $927,478 · grants $468,599
- Community Outreach & Conferences: Project 8p supported over 200 families with clinical tools, education, and services. We hosted a three-day Family & Science Conference, bringing together researchers, clinicians, and families to foster collaboration and accelerate progress. Through monthly roundtables and ongoing stakeholder education, we promote a team science approach while sharing the latest research, clinical insights, and lived experiences. These efforts strengthen our shared goals and ensure the voices of those affected by 8p remain central to every initiative.Expenses $218,505 · grants $2,500 · revenue $19,288
- Patient Impact (Clinics & Care): Project 8p advanced its mission to improve clinical care for individuals with chromosome 8p disorders through several key initiatives. We published the first-ever Clinical Care Guidelines for 8p, providing an evidence-informed framework to guide physicians and care teams worldwide. We also launched the Patient Navigator, a free, interactive, online tool that helps families and clinicians understand symptoms across body systemsdrawing on real-world data from our 8p Insights Portal.Additionally, we expanded our Multidisciplinary Hospital Clinic Model, supporting the development of coordinated care hubs that bring together specialists to provide comprehensive, patient-centered services. These efforts mark important strides in reducing diagnostic delays, improving care coordination, and empowering families with accessible, data-driven resources.Expenses $34,196 · grants $20,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 83-2545342
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2019
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $2,943,272
- Income (IRS master file)
- $1,888,508
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,888,508 | $1,387,442 | $2,943,272 | XML |
| 990 | December 2023 | $2,011,359 | $913,309 | $2,492,008 | XML |
| 990 | December 2022 | $611,641 | $301,268 | $1,162,555 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-2545342).
Questions about PROJECT 8P FOUNDATION
- What is the EIN of PROJECT 8P FOUNDATION?
- The employer identification number (EIN) of PROJECT 8P FOUNDATION is 83-2545342.
- Is PROJECT 8P FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
- Are donations to PROJECT 8P FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does PROJECT 8P FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of PROJECT 8P FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did PROJECT 8P FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of PROJECT 8P FOUNDATION?
- The 990 for the year ended December 31, 2024 names Bina Shah.
- Who are the officers and directors of PROJECT 8P FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 6 people; 1 received compensation from the organization, the highest $102,083 (Lauren Chaby, Executive Director).
- How much revenue does PROJECT 8P FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,888,508, expenses of $1,387,442 and total assets of $2,943,272 at year end.
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