Nonprofit · EIN 82-3888108
YAYA FOUNDATION FOR 4H LEUKODYSTROPHY
Tax-exempt · MINNEAPOLIS, MN 55408
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $284,117 | $410,790 | -$126,673 | $323,449 | $30,718 | $292,731 |
| December 31, 2023 | 990 | $210,490 | $524,912 | -$314,422 | $441,329 | $21,925 | $419,404 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $255,431
- Program service revenue
- $0
- Investment income
- $3,595
- Net income from fundraising events
- $25,091
- Other revenue
- $25,091
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $150,000
- Salaries, compensation and benefits (total)
- $161,977
- Professional fundraising fees
- $0
- Accounting fees
- $6,149
- Occupancy
- $6,042
- Travel
- $87,651
- Program services (functional)
- $205,283
- Management and general (functional)
- $78,522
- Fundraising (functional)
- $126,985
Balance sheet and other
- Total assets, start of year
- $441,329
- Total assets, end of year
- $323,449
- Total liabilities, end of year
- $30,718
- Net assets, end of year
- $292,731
- Net assets without donor restrictions
- $292,731
- Gross receipts
- $300,401
- Employees
- 2
- Volunteers
- 12
- Year formed
- 2017
- State of legal domicile
- MN
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Benjamin Smith | Executive Director | 40 | $150,000 |
| GABRIEL BASSIN | Director Trustee or director | 1 | $0 |
| JUNE GARBER CHENG | Secretary Trustee or director | 1 | $0 |
| CHRIS CLEARY | Director Trustee or director | 2 | $0 |
| MARCIE FLORES | Director Trustee or director | 5 | $0 |
| RON GARBER | Chairman Trustee or director | 15 | $0 |
| DR DANIEL GROSSMAN | Chairman Trustee or director | 2 | $0 |
| JUDE TALLMAN | Director Trustee or director | 2 | $0 |
| DR MARGO HUTCHINSON | Director Trustee or director | 2 | $0 |
| KURT TRIPTOW | Director Trustee or director | 2 | $0 |
| DEBBIE TRIPTOW | Director Trustee or director | 2 | $0 |
| JIM ST JOHN | Director Trustee or director | 0 | $0 |
| TIM ARMOUR | Director Trustee or director | 0 | $0 |
| SOLOMON LIEBERMAN | Director Trustee or director | 0 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Benjamin Smith | Executive Director | 40 | $126,602 |
| GABRIEL BASSIN | CFO & DIRECTOR Trustee or director | 7 | $0 |
| ZHU CHENG | VICE CHAIR Trustee or director | 2 | $0 |
| CHRIS CLEARY | Director Trustee or director | 2 | $0 |
| MARCIA CLEARY | Director Trustee or director | 5 | $0 |
| RON GARBER | Secretary Trustee or director | 15 | $0 |
| DANIEL GROSSMAN | Director Trustee or director | 2 | $0 |
| SOLOMAN LIEBERMAN | Director Trustee or director | 2 | $0 |
| RACHEL SCHONBACHLER | Director Trustee or director | 2 | $0 |
| KURT TRIPTOW | Director Trustee or director | 2 | $0 |
| DEBBIE TRIPTOW | Director Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 8670, MINNEAPOLIS, MN 55408-0670
- In care of
- % JUNE CHENG AND RON GARBER
- Principal officer (990 for 2024)
- GABRIEL BASSIN, PO BOX 80685, MINNEAPOLIS, MN 55408
- Signed the 990
- RON GARBER, SECRETARY AND CHAIR
- Phone
- (347) 268-7066
- Website
- www.yayafoundation4hl.org
- Return prepared by
- Rifkin & Company LLP
Mission
Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.
Program accomplishments
- Launched #4HLFamilies, comprised of programming and supportive resources for families affected by 4H Leukodystrophy. #4HLFamilies aims to connect affected families so that they can share experiences and best practices and provide emotional and educational support for one another, provide educational resources for families and their healthcare providers in order to streamline and improve the standard of care for patients affected by 4H Leukodystrophy, and to share patient stories to raise awareness of the disease. The Yaya Foundation held several videoconferences attended by families and children affected by 4H and began creation of a suite of educational resources for newly diagnosed families and their healthcare providers aimed at streamlining and improving their care.Expenses $138,446
- Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.Expenses $66,837
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 82-3888108
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E12)
- Assets (IRS master file)
- $323,449
- Income (IRS master file)
- $300,401
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $284,117 | $410,790 | $323,449 | XML |
| 990 | December 2023 | $210,490 | $524,912 | $441,329 | XML |
| 990 | December 2022 | $542,579 | $506,046 | $743,023 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-3888108).
Questions about YAYA FOUNDATION FOR 4H LEUKODYSTROPHY
- What is the EIN of YAYA FOUNDATION FOR 4H LEUKODYSTROPHY?
- The employer identification number (EIN) of YAYA FOUNDATION FOR 4H LEUKODYSTROPHY is 82-3888108.
- Is YAYA FOUNDATION FOR 4H LEUKODYSTROPHY tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to YAYA FOUNDATION FOR 4H LEUKODYSTROPHY tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does YAYA FOUNDATION FOR 4H LEUKODYSTROPHY file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of YAYA FOUNDATION FOR 4H LEUKODYSTROPHY due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did YAYA FOUNDATION FOR 4H LEUKODYSTROPHY last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of YAYA FOUNDATION FOR 4H LEUKODYSTROPHY?
- The 990 for the year ended December 31, 2024 names GABRIEL BASSIN.
- Who are the officers and directors of YAYA FOUNDATION FOR 4H LEUKODYSTROPHY?
- The 990 for the year ended December 31, 2024 lists 14 people; 1 received compensation from the organization, the highest $150,000 (Benjamin Smith, Executive Director).
- How much revenue does YAYA FOUNDATION FOR 4H LEUKODYSTROPHY have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $284,117, expenses of $410,790 and total assets of $323,449 at year end.
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