Nonprofit · EIN 75-2245195
AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC
Tax-exempt · LONGVIEW, TX 75601
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| May 31, 2024 | 990 | $969,539 | $417,316 | $552,223 | $4,423,982 | $22,785 | $4,401,197 |
| May 31, 2023 | 990 | $887,640 | $401,029 | $486,611 | $3,880,209 | $31,235 | $3,848,974 |
Financial details: 990 for the year ended May 31, 2024
Revenue
- Contributions, gifts and grants
- $181,319
- of which government grants
- $16,254
- Membership dues
- $60
- Program service revenue
- $10,642
- Investment income
- $275,335
- Royalties
- $499,154
- Net income from fundraising events
- $2,510
- Other revenue
- $502,243
Expenses
- Grants and similar amounts paid
- $24,413
- Compensation of officers, directors and key employees
- $67,209
- Other salaries and wages
- $113,775
- Salaries, compensation and benefits (total)
- $195,607
- Professional fundraising fees
- $0
- Accounting fees
- $26,265
- Occupancy
- $3,600
- Travel
- $250
- Depreciation
- $660
- Program services (functional)
- $308,499
- Management and general (functional)
- $84,123
- Fundraising (functional)
- $24,694
Balance sheet and other
- Total assets, start of year
- $3,880,209
- Total assets, end of year
- $4,423,982
- Total liabilities, end of year
- $22,785
- Net assets, end of year
- $4,401,197
- Land, buildings and equipment
- $2,643
- Publicly traded securities
- $1,688,775
- Net assets without donor restrictions
- $4,401,197
- Gross receipts
- $988,518
- Employees
- 4
- Volunteers
- 40
- Year formed
- 1988
- State of legal domicile
- TX
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended May 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Patrice Schaublin | Executive Director Key employee, Highest-paid employee | 35 | $65,726 |
| Eric Berning | President Trustee or director, Officer | 1 | $0 |
| Gerald Grant MD | Research chair Trustee or director | 1 | $0 |
| Robert Keating MD | Medical advisory chair Trustee or director | 1 | $0 |
| Annie Chapman | Treasurer Trustee or director, Officer | 2 | $0 |
| Richard Simon | director Trustee or director | 1 | $0 |
| Paolo Bolognese MD | director Trustee or director | 1 | $0 |
| John Caemmerer | Vice President Trustee or director, Officer | 1 | $0 |
| Molly Lichtenstein | director Trustee or director | 5 | $0 |
| Michele Raye | Secretary Trustee or director, Officer | 2 | $0 |
| Brian Dlouhy MD | director Trustee or director | 1 | $0 |
| Ilene Ruhoy MD PhD | director Trustee or director | 1 | $0 |
| Carina Yang MD | director Trustee or director | 1 | $0 |
| Jeni Adair | director Trustee or director | 1 | $0 |
990 for the year ended May 31, 2023: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Patrice Schaublin | Executive Director Key employee, Highest-paid employee | 35 | $65,984 |
| Eric Berning | President Trustee or director, Officer | 1 | $0 |
| Gerald Grant MD | Research chair Trustee or director | 1 | $0 |
| Robert Keating MD | Medical advisory chair Trustee or director | 1 | $0 |
| Annie Chapman | Treasurer Trustee or director, Officer | 2 | $0 |
| Richard Simon | director Trustee or director | 1 | $0 |
| Paolo Bolognese MD | director Trustee or director | 1 | $0 |
| John Caemmerer | Vice President Trustee or director, Officer | 1 | $0 |
| Molly Lichtenstein | director Trustee or director | 5 | $0 |
| Michele Raye | Secretary Trustee or director, Officer | 2 | $0 |
| Brian Dlouhy MD | director Trustee or director | 1 | $0 |
| Ilene Ruhoy MD PhD | director Trustee or director | 1 | $0 |
| Carina Yang MD | director Trustee or director | 1 | $0 |
| Jeni Adair | director Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 300 N GREEN ST STE 412, LONGVIEW, TX 75601-7337
- Principal officer (990 for 2023)
- Annie Chapman, 12900 Shadowcreek Parkway STE 4102, Pearland, TX 77584
- Signed the 990
- Annie Chapman, Treasurer
- Phone
- (903) 236-7079
- Website
- www.asap.org
- Return prepared by
- NAN SAUER MITCHELL CPA
Mission
To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research.
Program accomplishments
- ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the disorders. We accomplish this through newsletters, website, annual medical conference, support group meetings, and webinars.Expenses $284,086
- ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting research efforts and raising funds to find all causes, to develop new treatments and to improve existing treatments coordinating the efforts of organizations working towards improving the lives of people with Syringomyelia and/or ChiariExpenses $24,413 · grants $24,413
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in May, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | May 31, 2026 | October 15, 2026 | Not on file |
| 2024 | May 31, 2025 | October 15, 2025 | Not on file |
| 2023 | May 31, 2024 | October 15, 2024 | 990 on file |
IRS record
- EIN
- 75-2245195
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1989
- Accounting year ends
- May
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $4,423,982
- Income (IRS master file)
- $988,518
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | May 2024 | $969,539 | $417,316 | $4,423,982 | XML |
| 990 | May 2023 | $887,640 | $401,029 | $3,880,209 | XML |
| 990 | May 2022 | $1,211,738 | $346,847 | $3,398,622 | IRS |
| 990 | May 2021 | – | – | – | IRS |
| 990 | May 2020 | – | – | – | IRS |
| 990 | May 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 75-2245195).
Questions about AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC
- What is the EIN of AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC?
- The employer identification number (EIN) of AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC is 75-2245195.
- Is AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1989.
- Are donations to AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC due?
- The return for tax year 2025 (the year ending May 31, 2026) is due October 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended May 2024.
- Who is the principal officer of AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC?
- The 990 for the year ended May 31, 2024 names Annie Chapman.
- Who are the officers and directors of AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC?
- The 990 for the year ended May 31, 2024 lists 14 people; 1 received compensation from the organization, the highest $65,726 (Patrice Schaublin, Executive Director).
- How much revenue does AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC have?
- On its 990 for the year ended May 31, 2024 it reported revenue of $969,539, expenses of $417,316 and total assets of $4,423,982 at year end.
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