2024-03-28T12:15:19-00:00 2023-05-31 751647559 Nan Sauer Mitchell CPA 10515 FM 349 Longview TX 75603 990 2022-06-01 752245195 AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC AMER 9032367079 PO BOX 1586 LONGVIEW TX 756061586 Annie Chapman Treasurer 9032367079 2024-03-27 true Annie Chapman XXX-XX-XXXX Nan S Mitchell P00142493 9036439476 2024-03-27 X 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z American Syringomyelia & Chiari Alliance Project Inc Annie Chapman 4167 Galloway Dr Pearland TX 77584 917649 false X www.asap.org X 1988 TX To provide support for persons affected by Syringomyelia and Chiari Malformation while raising funds to conduct research for a cure. 13 13 3 40 0 145778 181216 5158 -17894 28638 1095465 672628 1223349 887640 80123 33333 0 183246 183476 0 23725 83478 184220 346847 401029 876502 486611 3398622 3880209 36259 31235 3362363 3848974 To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research. false false 262036 ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the disorders. We accomplish this through newsletters, website, annual medical conference, support group meetings, and webinars. 33333 33333 ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting research efforts and raising funds to find all causes, to develop new treatments and to improve existing treatments coordinating the efforts of organizations working towards improving the lives of people with Syringomyelia and/or Chiari 295369 true true false false false false false false false false true true false false true false true false false false false false false true true false false true false false false false false false false false false false false false false false false false false false false true 2 0 true 3 true false false false false false false false false false false false false X 13 13 false false false false false false false true true false false true true true false true false false false false CA FL IL MA MD MN NJ NY OH OR PA VA X X X NAN MITCHELL CPA 9036439476 10515 FM 349 LONGVIEW TX 75603 Patrice Schaublin Executive Director 035.00 X X 65984 0 0 Eric Berning President 001.00 X X 0 0 0 Gerald Grant MD Research chair 001.00 X 0 0 0 Robert Keating MD Medical advisory chair 001.00 X 0 0 0 Annie Chapman Treasurer 002.00 X X 0 0 0 Richard Simon director 001.00 X 0 0 0 Paolo Bolognese MD director 001.00 X 0 0 0 John Caemmerer Vice President 001.00 X X 0 0 0 Molly Lichtenstein director 005.00 X 0 0 0 Michele Raye Secretary 002.00 X X 0 0 0 Brian Dlouhy MD director 001.00 X 0 0 0 Ilene Ruhoy MD PhD director 001.00 X 0 0 0 Carina Yang MD director 001.00 X 0 0 0 Jeni Adair director 001.00 X 0 0 0 65984 false false false 40000 141216 181216 Annual conference 5158 5158 28638 684848 17544 40000 30009 -12465 245 245 887640 X 33333 33333 0 0 0 65984 46188 9898 9898 0 103916 80130 19748 4038 0 554 501 53 13022 9705 2245 1072 0 0 24211 24211 0 19588 19588 0 0 683 614 69 10876 9507 1369 0 3826 2926 900 577 577 0 91517 91517 0 0 1647 1647 5465 2638 2546 281 Printing, Postage shipping 13031 12549 51 431 State registration 1948 1948 Credit Card Bank Charges 3613 52 150 3411 Telephone Internet 2546 2546 4692 3163 898 631 401029 295369 81935 23725 477595 475119 2055518 332419 79525 26142 16946 29080 7656 6853 1028 803 749170 1477685 1517510 1417 17423 21451 3398622 3880209 2142 22292 34117 4915 4028 36259 31235 X 3362363 3848974 3362363 3848974 3398622 3880209 486611 X false true X true false X 171954 311509 145453 156128 181215 966259 171954 311509 145453 156128 181215 966259 966259 536878 540796 526051 1047905 713486 3365116 16010 7655 13998 7705 22948 68316 4399691 0.21960 0.31980 X X Part II Section C Line 17 a The organization meets the facts and circumstances test because it maintains a continuous and bonifide program for solicitation of funds from the general public and the community it serves. Many volunteers are involved in fundraising and awareness events. It should be noted that the percentage of revenue which comes from royalties skews the ratio of public support to the total. The royalties are from oil and gas minerals which were bequeathed to the organization. Part II Section C Line 17 a During the past five years these minerals have been developed and have generated a very significant revenue stream to the organization. They were in fact, the result of a testamentary gift and should not cause the organization to be penalized because the revenue is large. This revenue stream will fluctuate with the rise and fall of energy prices and depletion of the mineral reserves so that it will eventually be exhausted. These funds are used in the charitable function of the organization, Part II Section C Line 17 a They are used to support the programs which serve those affected by the disorders and to fund medical research for better treatment methods for those suffering from syringomyelia and chiari malformation and to pursue a cure and to produce an annual medical conference which serves to educate the community of affected individuals as well as many medical providers. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false 6107 6107 1549 746 803 803 Financial derivatives and other financial products Closely-held equity interests Certificates of Deposit 1517510 F 1517510 Federal income taxes Short Term Lease Liability 893 Long Term Lease Liability 3135 4028 898061 30009 30009 868052 19588 19588 887640 411449 30009 30009 381440 19589 19589 401029 X X false Various Walks Golf 52643 40000 12643 15949 14060 Online Auction 4901 4901 57544 40000 17544 15949 14060 30009 -12465 true University of Wisconsin Madison Office of Research - Drawer 538 Madison WI 532780538 396006492 501 c 3 33333 Medical Research 1 Part I Line 2 Operations Director uses asic monthly report to monitor progress. false false false false false false Form 990, Part IX, Line 24 e Dues and Subscriptions expense 2,290.03 Form 990, Part IX, Line 24 e Equipment lease and Maintenance 1,530.60 Form 990, Part IX, Line 24 e Misc. Bank charges 265.97 Form 990, Part IX, Line 24 e Miscellaneous 606 Form 990, Part VI, Line 11 b Completed Form 990 is circulated to the officers before the treasurer approves and signs. It is then provided to the entire board of directors for their information Form 990, Part VI, Line 19 Made available on its website and circulated to board members via email and during board meetings