2025-03-31T10:21:26-00:00 2024-05-31 751647559 NAN SAUER MITCHELL CPA 10515 FM 349 LONGVIEW TX 75603 990 2023-06-01 752245195 AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC AMER 9032367079 PO BOX 1586 LONGVIEW TX 756061586 Annie Chapman Treasurer 9032367079 2025-03-24 true NAN S MITCHELL P00142493 9036439476 2025-03-23 X 2023 2025-03-06 01:10:19Z American Syringomyelia & Chiari Alliance Project Inc Annie Chapman 12900 Shadowcreek Parkway STE 4102 Pearland TX 77584 988518 false X www.asap.org X 1988 TX To provide support for persons affected by Syringomyelia and Chiari Malformation while raising funds to conduct research for a cure. 13 13 4 40 0 181216 181319 5158 10642 28638 275335 672628 502243 887640 969539 33333 24413 0 183476 195607 0 24694 184220 197296 401029 417316 486611 552223 3880209 4423982 31235 22785 3848974 4401197 To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research. false false 284086 ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the disorders. We accomplish this through newsletters, website, annual medical conference, support group meetings, and webinars. 24413 24413 ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting research efforts and raising funds to find all causes, to develop new treatments and to improve existing treatments coordinating the efforts of organizations working towards improving the lives of people with Syringomyelia and/or Chiari 308499 true false false false false false false false false false true true false false true false true false false false false false false true true false false true false false false false false false false false false false true false false false false false false false false true 3 0 true 4 true false false false false false false false false false false false false 13 13 false false false false false false false true true false false true true true false true false false false false CA FL IL MA MD MN NJ NY OH OR PA VA X X X NAN MITCHELL CPA 9036439476 10515 FM 349 LONGVIEW TX 75603 Patrice Schaublin Executive Director 035.00 X X 65726 0 0 Eric Berning President 001.00 X X 0 0 0 Gerald Grant MD Research chair 001.00 X 0 0 0 Robert Keating MD Medical advisory chair 001.00 X 0 0 0 Annie Chapman Treasurer 002.00 X X 0 0 0 Richard Simon director 001.00 X 0 0 0 Paolo Bolognese MD director 001.00 X 0 0 0 John Caemmerer Vice President 001.00 X X 0 0 0 Molly Lichtenstein director 005.00 X 0 0 0 Michele Raye Secretary 002.00 X X 0 0 0 Brian Dlouhy MD director 001.00 X 0 0 0 Ilene Ruhoy MD PhD director 001.00 X 0 0 0 Carina Yang MD director 001.00 X 0 0 0 Jeni Adair director 001.00 X 0 0 0 65726 false false false 60 50432 16254 114573 34493 181319 Annual conference 10642 10642 275335 499154 21489 50432 18979 2510 Other 579 579 969539 X 24413 24413 0 0 0 67209 47046 10081 10082 0 113775 90425 19265 4085 0 554 501 53 14069 10685 2298 1086 0 0 26265 26265 0 21069 21069 0 0 4267 3968 299 13073 11518 1555 0 3600 2700 900 250 250 0 108024 108024 0 0 660 660 5726 2838 2585 303 Printing, Postage shipping 4342 1705 67 2570 State registration 1174 1174 Credit Card Bank Charges 3271 3271 Telephone Internet 2836 2836 2739 1590 933 216 417316 308499 84123 24694 475119 365009 332419 373292 26142 147996 29080 17404 10156 7513 803 2643 1477685 1688775 1517510 1807290 21451 21573 3880209 4423982 22292 13355 4915 5230 4028 4200 31235 22785 X 3848974 4401197 3848974 4401197 3880209 4423982 552223 X false true X true false X 311509 145453 156128 181215 181319 975624 311509 145453 156128 181215 181319 975624 975624 540796 526051 1047905 713486 774489 3602727 7655 13998 7705 22948 13730 66036 4644387 0.21010 0.21960 X Part II Section C Line 17 a The organization meets the facts and circumstances test because it maintains a continuous and bonifide program for solicitation of funds from the general public and the community it serves. Many volunteers are involved in fundraising and awareness events. It should be noted that the percentage of revenue which comes from royalties skews the ratio of public support to the total. The royalties are from oil and gas minerals which were bequeathed to the organization. Part II Section C Line 17 a During the past six years these minerals have been developed and have generated a very significant revenue stream to the organization. They were in fact, the result of a testamentary gift and should not cause the organization to be penalized because the revenue is large. This revenue stream will fluctuate with the rise and fall of energy prices and depletion of the mineral reserves so that it will eventually be exhausted. These funds are used in the charitable function of the organization, Part II Section C Line 17 a They are used to support the programs which serve those affected by the disorders and to fund medical research for better treatment methods for those suffering from syringomyelia and chiari malformation and to pursue a cure and to produce an annual medical conference which serves to educate the community of affected individuals as well as many medical providers. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false 8607 6545 2062 1549 968 581 2643 Financial derivatives and other financial products Closely-held equity interests Certificates of Deposit 1807290 F 1807290 Federal income taxes Short Term Lease Liability 968 Long Term Lease Liability 3232 4200 988518 18979 18979 969539 969539 436295 18979 18979 417316 417316 XI 2 d Special Event Fundraising Expenses XII 2 d Special Event Fundraising Expenses X X false Walks Golf Tourney 71921 50432 21489 6446 6047 6486 71921 50432 21489 6446 6047 6486 18979 2510 true University of Akron 302 Buchtel Common Akron OH 44325 346002924 501 c 3 11167 Medical Research University of Utah 201 Presidents Cir Rm 406 Salt Lake City UT 84112 876000525 501 c 3 13246 Medical Research 2 Part I Line 2 Operations Director uses basic monthly report to monitor progress. false false false false false false X 2 34493 Traded market value false false false Form 990, Part IX, Line 24 e Dues and Subscriptions 1,538, Merchandise 630, Governance 250, Miscellaneous 321.