Nonprofit · EIN 52-1704978
CUREPSP INC
Tax-exempt · NEW YORK, NY 10013
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $7,903,274 | $5,865,853 | $2,037,421 | $11,029,404 | $1,139,409 | $9,889,995 |
| June 30, 2024 | 990 | $5,127,686 | $4,845,918 | $281,768 | $8,687,169 | $1,133,772 | $7,553,397 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $7,506,914
- Program service revenue
- $0
- Investment income
- $370,642
- Net gain from sales of assets
- $1,529
- Net income from sales of inventory
- $3,218
- Other revenue
- $25,718
Expenses
- Grants and similar amounts paid
- $1,740,086
- Compensation of officers, directors and key employees
- $310,127
- Other salaries and wages
- $1,385,868
- Salaries, compensation and benefits (total)
- $2,059,203
- Professional fundraising fees
- $0
- Legal fees
- $61,277
- Accounting fees
- $135,576
- Occupancy
- $65,209
- Travel
- $242,177
- Depreciation
- $110,254
- Program services (functional)
- $4,752,756
- Management and general (functional)
- $594,283
- Fundraising (functional)
- $518,814
Balance sheet and other
- Total assets, start of year
- $8,687,169
- Total assets, end of year
- $11,029,404
- Total liabilities, end of year
- $1,139,409
- Net assets, end of year
- $9,889,995
- Land, buildings and equipment
- $151,438
- Publicly traded securities
- $7,631,258
- Net assets without donor restrictions
- $7,258,098
- Net assets with donor restrictions
- $2,631,897
- Gross receipts
- $8,077,951
- Employees
- 17
- Volunteers
- 350
- Year formed
- 1990
- State of legal domicile
- MD
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KRISTOPHE J DIAZ | EXE DIR AND CHIEF SCIENCE OFFICER Officer | 40 | $266,514 | $23,982 |
| RICHARD T SPAIN IV | DIRECTOR, DEVELOPMENT Highest-paid employee | 40 | $161,643 | $22,585 |
| JENNIFER L BRUMMET | ASSOC. DIR. CLINICAL AFFAIRS AND ADVOCACY Highest-paid employee | 40 | $149,533 | $22,420 |
| JESSICA SHURER | DIR. CLINICAL AFFAIRS AND ADVOCACY Highest-paid employee | 40 | $113,088 | $21,205 |
| JACK PHILLIPS | CHAIR Trustee or director, Officer | 25 | $0 | $0 |
| AMY BRANCH | VICE CHAIR Trustee or director, Officer | 8 | $0 | $0 |
| JUSTIN SHEA | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| LAWRENCE LEVIEN | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| LAWRENCE GOLBE | CHAIR - SCIENTIFIC ADVISOR Trustee or director, Officer | 2 | $0 | $0 |
| WILLIAM MCFARLAND | DIRECTOR Trustee or director | 3 | $0 | $0 |
| JAMES MCCLELLAN | DIRECTOR Trustee or director | 0.5 | $0 | $0 |
| ILEEN MCFARLAND | DIRECTOR Trustee or director | 35 | $0 | $0 |
| LOUIS FOXWELL | DIRECTOR Trustee or director | 3 | $0 | $0 |
| ALEXANDER PANTELYAT | DIRECTOR Trustee or director | 3 | $0 | $0 |
| PAUL FREEMAN | DIRECTOR Trustee or director | 3 | $0 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MANA BHATT SANGHVI | DIRECTOR Trustee or director | 2 | $0 |
| NADINE TATTON | DIRECTOR Trustee or director | 0.5 | $0 |
| MARIA SCHMIDT | DIRECTOR Trustee or director | 2 | $0 |
990 for the year ended June 30, 2024: 19 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KRISTOPHE J DIAZ | EXE DIR AND CHIEF SCIENCE OFFICER Officer | 40 | $234,003 | $17,628 |
| RICHARD T SPAIN IV | DIRECTOR, DEVELOPMENT Highest-paid employee | 40 | $131,237 | $17,467 |
| JACLYN C ZENDRIAN | VP-EVENTS Highest-paid employee | 40 | $126,164 | $18,343 |
| JENNIFER L BRUMMET | ASSOC. DIR, SCIENTIFIC AFFAIRS AND PARTNER Highest-paid employee | 40 | $125,677 | $17,410 |
| JESSICA SHURER | DIR. CLINICAL AFFAIRS AND ADVOCACY Highest-paid employee | 40 | $104,783 | $20,158 |
| JACK PHILLIPS | CHAIR (BEGINNING 1/24) Trustee or director, Officer | 21 | $0 | $0 |
| WILLIAM MCFARLAND | CHAIR (THROUGH 1/24) Trustee or director, Officer | 2 | $0 | $0 |
| AMY BRANCH | VICE CHAIR Trustee or director, Officer | 10 | $0 | $0 |
| JUSTIN SHEA | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| LAWRENCE LEVIEN | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| LAWRENCE GOLBE | CHAIR - SCIENTIFIC ADVISORY BOARD Trustee or director, Officer | 6 | $0 | $0 |
| JAMES MCCLELLAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ILEEN MCFARLAND | DIRECTOR Trustee or director | 35 | $0 | $0 |
| MAGGIE ORSETH | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LOUIS FOXWELL | DIRECTOR Trustee or director | 3 | $0 | $0 |
| ALEXANDER PANTELYAT | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL FREEMAN | DIRECTOR Trustee or director | 2.5 | $0 | $0 |
| MANA BHATT SANGHVI | DIRECTOR Trustee or director | 2 | $0 | $0 |
| NADINE TATTON | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 325 HUDSON STREET 4TH FLOOR, NEW YORK, NY 10013-1045
- Principal officer (990 for 2024)
- KRISTOPHE DIAZ, 325 HUDSON STREET 4TH FLOOR, NEW YORK, NY 100131045
- Signed the 990
- KRISTOPHE DIAZ, EXECUTIVE DIRECTOR
- Phone
- (646) 725-1453
- Website
- WWW.CUREPSP.ORG
- Return prepared by
- SAX ADVISORS LLC
Mission
TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA.
Program accomplishments
- CUREPSP SUPPORTS SCIENTIFIC RESEARCH AIMED AT DEVELOPING NEW TREATMENTS AND ULTIMATELY A CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP) AND CORTICOBASAL DEGENERATION (CBD), BOTH PRIMARY TAUOPATHIES. THE ORGANIZATION FUNDS AND FACILITATES RESEARCH PROJECTS THAT ADVANCE UNDERSTANDING OF THESE DISEASES WHILE ALSO CONTRIBUTING TO BROADER SCIENTIFIC KNOWLEDGE RELEVANT TO OTHER NEURODEGENERATIVE CONDITIONS, INCLUDING ALZHEIMER'S DISEASE, PICK'S DISEASE, ARGYROPHILIC GRAIN DISEASE, CHRONIC TRAUMATIC ENCEPHALOPATHY, AND CERTAIN FORMS OF FAMILIAL FRONTOTEMPORAL DEMENTIA.CONTINUED ON SCHEDULE OCUREPSP'S FUNDING AND PARTNERSHIPS ARE STRATEGICALLY FOCUSED ON ADVANCING RESEARCH IN SEVERAL KEY AREAS: (A) UNDERSTANDING THE CAUSES AND RISK FACTORS OF NEURODEGENERATION, (B) DISCOVERING AND VALIDATING ACTIONABLE BIOMARKERS AND CLINICAL TESTS TO ENHANCE DIAGNOSIS AND INCREASE THE LIKELIHOOD OF MORE EFFECTIVE CLINICAL TRIALS, (C) IDENTIFYING GENETIC VARIANTS LINKED TO THESE DISEASES, (D) DEVELOPING THERAPIES THAT COULD PREVENT, HALT, OR REVERSE THE BRAIN DAMAGE CAUSED BY THE PATHOLOGICAL ACCUMULATION OF PROTEINS, (E) ASSISTING PHARMACEUTICAL, BIOTECH, AND DIAGNOSTIC COMPANIES, AS WELL AS RESEARCH INSTITUTIONS, IN RECRUITING AND PROMOTING PARTICIPATION IN CLINICAL TRIALS, AND (F) DEVELOPING STRATEGIC ASSETS THAT DIRECTLY BENEFIT INDUSTRY PARTNERS, SUCH AS THE COMPREHENSIVE PATIENT JOURNEY STUDY, WHICH PROVIDES DETAILED INSIGHTS INTO THE REAL-WORLD EXPERIENCES OF PATIENTS TO INFORM AND OPTIMIZE CLINICAL TRIAL DESIGN. ADDITIONALLY, CUREPSP COLLABORATES WITH LEADING INSTITUTIONS LIKE THE MAYO CLINIC'S BRAIN BANK IN JACKSONVILLE, FLORIDA, TO PROVIDE ESSENTIAL BRAIN TISSUE SAMPLES TO RESEARCHERS WORLDWIDE, EXPANDING ACCESS TO THESE CRUCIAL BIOLOGICAL RESOURCES. CUREPSP'S PARTNERSHIPS ARE DESIGNED TO FAST-TRACK SHARED OBJECTIVES. IN THIS EFFORT, CUREPSP WORKS CLOSELY WITH AND CO-INVESTS IN PROGRAMS AND RESEARCH ALONGSIDE PROMINENT NONPROFIT ORGANIZATIONS AND FOUNDATIONS, SUCH AS THE ALZHEIMER'S ASSOCIATION, THE MICHAEL J. FOX FOUNDATION, THE PARKINSON'S FOUNDATION, AND THE RAINWATER CHARITABLE FOUNDATION, AS WELL AS PATIENT-LED ORGANIZATIONS LIKE MISSION MSA IN THE UNITED STATES AND THE PSP ASSOCIATION IN THE UNITED KINGDOM.Expenses $2,252,697 · grants $1,170,733 · revenue $3,218
- THE PREVALENCE OF PROGRESSIVE SUPRANUCLEAR PALSY (PSP) IS COMPARABLE TO THAT OF ALS (AMYOTROPHIC LATERAL SCLEROSIS), YET PSP, ALONG WITH CORTICOBASAL DEGENERATION (CBD) AND MULTIPLE SYSTEM ATROPHY (MSA), REMAINS SIGNIFICANTLY UNDERRECOGNIZED COMPARED TO ALS. CUREPSP IS DEDICATED TO RAISING AWARENESS FOR THESE CONDITIONS AND SUPPORTING THE PATIENTS, FAMILIES, AND CAREGIVERS AFFECTED BY THEM, EMPOWERING THEM TO ADVOCATE EFFECTIVELY FOR THEIR NEEDS. THE ORGANIZATION IS COMMITTED TO ENHANCING QUALITY OF LIFE AND PATIENT OUTCOMES BY BUILDING A RESILIENT AND SUPPORTIVE COMMUNITY THAT GROW AWARENESS NATIONALLY AND GLOBALLY. CONTINUED ON SCHEDULE OCUREPSP PURSUES THESE GOALS THROUGH VOLUNTEER DEVELOPMENT PROGRAMS, PROFESSIONAL EDUCATION, AND THE DISTRIBUTION OF EDUCATIONAL RESOURCES BOTH ONLINE AND IN PRINT FOR THE PUBLIC AND HEALTHCARE PROFESSIONALS. ADDITIONALLY, IT ACTIVELY SHARES VITAL INFORMATION THROUGH SOCIAL MEDIA AND ONLINE NEWSLETTERS. CUREPSP ENGAGES IN ADVOCACY TO ADVANCE PUBLIC POLICIES THAT IMPROVE CARE, SUPPORT RESEARCH, AND INCREASE AWARENESS. THE ORGANIZATION MOBILIZES PATIENTS, CARE PARTNERS, AND VOLUNTEERS TO PARTICIPATE IN LEGISLATIVE OUTREACH, EDUCATES POLICYMAKERS ABOUT THE NEEDS OF THE COMMUNITY, AND COLLABORATES WITH NATIONAL ADVOCACY COALITIONS TO PROMOTE POLICIES THAT EXPAND ACCESS TO CARE, SUPPORT FAMILY CARE PARTNERS, IMPROVE DIAGNOSTICS, AND INCREASE FEDERAL INVESTMENT IN RESEARCH. THROUGH THESE EFFORTS, CUREPSP HAS HELPED ADVANCE FEDERAL AND STATE POLICY INITIATIVES RELATED TO TELEHEALTH ACCESS, COORDINATED NATIONAL STRATEGIES FOR PARKINSONIAN DISEASES, AND INCREASED RECOGNITION OF THESE CONDITIONS WITHIN FEDERAL RESEARCH PRIORITIES.Expenses $1,101,271 · grants $30,000
- CUREPSP PUBLISHES A LIBRARY OF PRINTED AND ONLINE EDUCATIONAL MATERIALS FOR FAMILIES, PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS. THESE MATERIALS ARE DEVELOPED IN COLLABORATION WITH CUREPSP CENTERS OF CARE, A NETWORK OF HOSPITALS AND BEST-IN-CLASS ACADEMIC CENTERS SPECIALIZING IN TREATING PATIENTS WITH PSP, CBD, AND MSA. CUREPSP SPONSORS EDUCATIONAL CONFERENCES IN COLLABORATION WITH LEADING INSTITUTIONS TO INCREASE KNOWLEDGE AND SUPPORT PEOPLE LIVING WITH THESE FATAL DISEASES. THE OBJECTIVE IS TO PROMOTE EDUCATION, EARLIER AND MORE ACCURATE DIAGNOSIS AND BETTER PATIENT CARE. SEVERAL DOZEN VOLUNTEER EVENTS ANNUALLY, SUPPORTED BY CUREPSP, FURTHER EDUCATE, AND EMPOWER OUR COMMUNITY TO PREPARE FOR THEIR CARE NEEDS. (CONTINUE ON SCHEDULE O)CUREPSP UTILIZES SOCIAL MEDIA, ONLINE PLATFORMS, AND EDUCATIONAL PROGRAMMING TO COMMUNICATE WITH AND SUPPORT PATIENTS, CARE PARTNERS, AND HEALTHCARE PROFESSIONALS. THE ORGANIZATION MAINTAINS AN ONLINE PATIENT AND CAREGIVER FORUM, PRODUCES NATIONAL WEBINARS AND EDUCATIONAL PRESENTATIONS FROM CLINICIANS AND RESEARCHERS, AND HOSTS "ASK THE EXPERTS" INTERACTIVE SESSIONS. CUREPSP ALSO ORGANIZES ONLINE SUPPORT GROUPS, ANNUAL WELLNESS WORKSHOPS, AND AN IN-PERSON COMMUNITY GATHERING TO HELP INDIVIDUALS MANAGE DISEASE BURDEN AND THE CHALLENGES OF CAREGIVING. THROUGH THE CUREPSP QUALITY OF LIFE RESPITE GRANT PROGRAM, SUPPORTED BY THE CHERIE LEVIEN QUALITY OF LIFE FUND AND OTHER DONORS, THE ORGANIZATION PROVIDES FINANCIAL ASSISTANCE TO HELP FAMILIES ACCESS PROFESSIONAL IN-HOME CARE. CUREPSP SUPPORTS MORE THAN 50 VIRTUAL AND IN-PERSON SUPPORT GROUPS AND LEVERAGES A GLOBAL NETWORK OF MORE THAN 350 VOLUNTEERS TO PROVIDE ONLINE, TELEPHONE, AND FACE-TO-FACE SUPPORT.CUREPSP ESTABLISHED THE CUREPSP CENTERS OF CARE NETWORK IN 2017 TO IMPROVE ACCESS TO HIGH-QUALITY, SPECIALIZED CLINICAL CARE. MEDICAL CENTERS ARE DESIGNATED BASED ON CRITERIA INCLUDING EXPERTISE IN DIAGNOSIS AND MANAGEMENT, AVAILABILITY OF MULTIDISCIPLINARY CARE AND SUPPORT SERVICES, AND PARTICIPATION IN CLINICAL RESEARCH. THROUGH THIS NETWORK, CUREPSP COLLABORATES WITH LEADING MEDICAL CENTERS TO PROMOTE EARLIER DIAGNOSIS, ADVANCE BEST PRACTICES IN CARE, EXPAND ACCESS TO SPECIALIZED SERVICES, AND SUPPORT CLINICAL RESEARCH. THE NETWORK NOW INCLUDES CENTERS IN THE UNITED STATES AND CANADA, WITH ADDITIONAL CENTERS PLANNED IN EUROPE.Expenses $1,398,788 · grants $539,353
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 52-1704978
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1991
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G90Z)
- Assets (IRS master file)
- $11,029,404
- Income (IRS master file)
- $8,077,951
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $7,903,274 | $5,865,853 | $11,029,404 | IRS |
| 990 | June 2024 | $5,127,686 | $4,845,918 | $8,687,169 | IRS |
| 990 | June 2023 | $3,308,947 | $4,256,576 | $7,777,249 | IRS |
| 990 | June 2022 | $3,806,911 | $3,461,407 | $7,863,202 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-1704978).
Questions about CUREPSP INC
- What is the EIN of CUREPSP INC?
- The employer identification number (EIN) of CUREPSP INC is 52-1704978.
- Is CUREPSP INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1991.
- Are donations to CUREPSP INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CUREPSP INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CUREPSP INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CUREPSP INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of CUREPSP INC?
- The 990 for the year ended June 30, 2025 names KRISTOPHE DIAZ.
- Who are the officers and directors of CUREPSP INC?
- The 990 for the year ended June 30, 2025 lists 18 people; 4 received compensation from the organization, the highest $266,514 (KRISTOPHE J DIAZ, EXE DIR AND CHIEF SCIENCE OFFICER).
- How much revenue does CUREPSP INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $7,903,274, expenses of $5,865,853 and total assets of $11,029,404 at year end.
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