Nonprofit · EIN 30-0215842
MELORHEOSTOSIS ASSOCIATION
Tax-exempt · NEW YORK, NY 10022
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $15,446 | $34,253 | -$18,807 | $58,700 | – | $58,700 |
| December 31, 2024 | 990-EZ | $22,447 | $4,836 | $17,611 | $77,507 | $0 | $77,507 |
| December 31, 2023 | 990-EZ | $25,752 | $29,748 | -$3,996 | $59,896 | $0 | $59,896 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $15,444
- Investment income
- $2
Expenses
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $2,685
- Other expenses
- $31,568
- Program services (functional)
- $31,568
Balance sheet and other
- Total assets, start of year
- $77,507
- Total assets, end of year
- $58,700
- Total liabilities, end of year
- –
- Net assets, end of year
- $58,700
- Cash, savings and investments
- $58,700
- Gross receipts
- $15,446
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jen Gordy | President | 2 | $0 |
| Kathleen Harper | Chairman | 2 | $0 |
| Amanda Shapiro | Secretary | 1 | $0 |
| Katrina Wells | Treasurer | 3 | $0 |
990-EZ for the year ended December 31, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jen Gordy | President | 2 | $0 |
| Kathleen Harper | Chairman | 2 | $0 |
| Amanda Shapiro | Secretary | 1 | $0 |
| Katrina Wells | Treasurer | 3 | $0 |
990-EZ for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jen Gordy | President | 2 | $0 |
| Kathleen Harper | Chairman | 2 | $0 |
| Amanda Shapiro | Secretary | 1 | $0 |
| Katrina Wells | Treasurer | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 410 E 50TH ST, NEW YORK, NY 10022-8071
- In care of
- % KATHLEEN HARPER
- Signed the 990-EZ
- Katrina Wells, Treasurer
- Website
- MELORHEOSTOSIS.COM
Mission
Organization strives to promote awareness of melorheostosis and its treatment and to provide support for patients and their families.
Program accomplishments
- Plan patient and medical professional conference for US international patients and researchers to advance research mission - conference held in 2025 for over 100 participants. Next conference in 2027.Expenses $31,568
- NORD Membership - participate in advancing the position of rare diseases
- Communicate with patient community on a regular basis regarding rare disease community research studies updates on medical breakthroughs and patient advocacy events. Support online community of over 800 and create online resources for patients doctors and researchers interested in supporting treatments cures.
What it must file and when
IRS records say it files Form 990-N (e-Postcard). Gross receipts normally $50,000 or less. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 30-0215842
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2003
- Accounting year ends
- December
- Files
- Form 990-N (e-Postcard)
- Category (NTEE)
- Voluntary health associations and medical disciplines (G50)
- Assets (IRS master file)
- $58,700
- Income (IRS master file)
- $15,446
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $15,446 | $34,253 | $58,700 | XML |
| 990-EZ | December 2024 | $22,447 | $4,836 | $77,507 | XML |
| 990-EZ | December 2023 | $25,752 | $29,748 | $59,896 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 30-0215842).
Questions about MELORHEOSTOSIS ASSOCIATION
- What is the EIN of MELORHEOSTOSIS ASSOCIATION?
- The employer identification number (EIN) of MELORHEOSTOSIS ASSOCIATION is 30-0215842.
- Is MELORHEOSTOSIS ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2003.
- Are donations to MELORHEOSTOSIS ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MELORHEOSTOSIS ASSOCIATION file?
- Form 990-N (e-Postcard). Gross receipts normally $50,000 or less.
- When is the next return of MELORHEOSTOSIS ASSOCIATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MELORHEOSTOSIS ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of MELORHEOSTOSIS ASSOCIATION?
- The 990-EZ for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does MELORHEOSTOSIS ASSOCIATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $15,446, expenses of $34,253 and total assets of $58,700 at year end.
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