Nonprofit · EIN 26-3223661
BEYOND BATTEN DISEASE FOUNDATION
Tax-exempt · AUSTIN, TX 78757
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $306,063 | $892,974 | -$586,911 | $1,859,709 | $182,039 | $1,677,670 |
| June 30, 2024 | 990 | $538,315 | $1,116,750 | -$578,435 | $2,121,193 | $158,613 | $1,962,580 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $295,881
- Program service revenue
- $0
- Investment income
- $37,250
- Net income from fundraising events
- -$27,068
- Other revenue
- -$27,068
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $32,752
- Accounting fees
- $20,060
- Occupancy
- $5,670
- Travel
- $6,240
- Program services (functional)
- $722,421
- Management and general (functional)
- $159,732
- Fundraising (functional)
- $10,821
Balance sheet and other
- Total assets, start of year
- $2,121,193
- Total assets, end of year
- $1,859,709
- Total liabilities, end of year
- $182,039
- Net assets, end of year
- $1,677,670
- Net assets without donor restrictions
- $1,677,670
- Gross receipts
- $349,331
- Employees
- 0
- Volunteers
- 50
- Year formed
- 2008
- State of legal domicile
- TX
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| T CRAIG BENSON | BOARD CHAIR Trustee or director, Officer | 20 | $0 |
| MARY BETH KISER | PRESIDENT/CEO AND SECRETARY Officer | 40 | $0 |
| JEFF HUNT | DIRECTOR Trustee or director | 4 | $0 |
| SABRINA BROWN | DIRECTOR Trustee or director | 4 | $0 |
| WAYNE HERNDON | DIRECTOR Trustee or director | 4 | $0 |
| WILL MURPHY | DIRECTOR Trustee or director | 4 | $0 |
| CAROLINE GOODNER | DIRECTOR Trustee or director | 4 | $0 |
| STEVEN SILBER MD | DIRECTOR Trustee or director | 4 | $0 |
| JONATHAN FEIFS | DIRECTOR Trustee or director | 4 | $0 |
| MARK CHANDLER | DIRECTOR EMERITUS Trustee or director | 4 | $0 |
990 for the year ended June 30, 2024: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| T CRAIG BENSON | BOARD CHAIR Trustee or director, Officer | 20 | $0 |
| MARY BETH KISER | PRESIDENT/CEO AND SECRETARY Trustee or director, Officer | 40 | $0 |
| JEFF HUNT | DIRECTOR Trustee or director | 4 | $0 |
| SABRINA BROWN | DIRECTOR Trustee or director | 4 | $0 |
| WAYNE HERNDON | DIRECTOR Trustee or director | 4 | $0 |
| WILL MURPHY | DIRECTOR Trustee or director | 4 | $0 |
| CAROLINE GOODNER | DIRECTOR Trustee or director | 4 | $0 |
| STEVEN SILBER MD | DIRECTOR Trustee or director | 4 | $0 |
Address and contacts
- Address (IRS master file)
- 3305 STECK AVE, AUSTIN, TX 78757-8154
- In care of
- % PATRICK S MCCLAIN
- Principal officer (990 for 2024)
- MARY BETH KISER, 3305 STECK AVE STE 200, AUSTIN, TX 78757
- Signed the 990
- MARY BETH KISER, PRESIDENT/CEO
- Phone
- (512) 275-2600
- Website
- WWW.BEYONDBATTEN.ORG
- Return prepared by
- Allman & Associates Inc
Mission
TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.
Program accomplishments
- TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH.Expenses $722,421
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 26-3223661
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2009
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Education (B90)
- Assets (IRS master file)
- $1,859,709
- Income (IRS master file)
- $349,331
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $306,063 | $892,974 | $1,859,709 | XML |
| 990 | June 2024 | $538,315 | $1,116,750 | $2,121,193 | IRS |
| 990 | June 2023 | $1,028,636 | $1,036,148 | $3,231,365 | IRS |
| 990-T | June 2023 | – | – | – | IRS |
| 990 | June 2022 | $1,219,815 | $1,220,690 | $3,581,583 | IRS |
| 990-T | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990-T | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-3223661).
Questions about BEYOND BATTEN DISEASE FOUNDATION
- What is the EIN of BEYOND BATTEN DISEASE FOUNDATION?
- The employer identification number (EIN) of BEYOND BATTEN DISEASE FOUNDATION is 26-3223661.
- Is BEYOND BATTEN DISEASE FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2009.
- Are donations to BEYOND BATTEN DISEASE FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does BEYOND BATTEN DISEASE FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of BEYOND BATTEN DISEASE FOUNDATION due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did BEYOND BATTEN DISEASE FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of BEYOND BATTEN DISEASE FOUNDATION?
- The 990 for the year ended June 30, 2025 names MARY BETH KISER.
- Who are the officers and directors of BEYOND BATTEN DISEASE FOUNDATION?
- The 990 for the year ended June 30, 2025 lists 10 people; 0 received compensation from the organization.
- How much revenue does BEYOND BATTEN DISEASE FOUNDATION have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $306,063, expenses of $892,974 and total assets of $1,859,709 at year end.
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