2026-03-04T16:34:34-08:00 2025-06-30 462979080 Allman & Associates Inc 9600 Great Hills Trail Suite 150W Austin TX 78759 990 2024-07-01 263223661 BEYOND BATTEN DISEASE FOUNDATION BEYO 5122752600 3305 STECK AVE AUSTIN TX 78757 MARY BETH KISER PRESIDENT/CEO 5122752600 2026-03-04 true true Peter L Allman CPA P00648533 5125023077 2026-03-04 2024 2025-03-06 01:10:19Z MARY BETH KISER 3305 STECK AVE STE 200 AUSTIN TX 78757 349331 false X WWW.BEYONDBATTEN.ORG X 2008 TX TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. 8 8 0 50 0 0 488110 295881 0 71386 37250 -21181 -27068 538315 306063 0 0 0 0 10821 1116750 892974 1116750 892974 -578435 -586911 2121193 1859709 158613 182039 1962580 1677670 TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. false false 722421 0 0 TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH. 722421 true true false false false false false false false false false true false false false false true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 0 0 true 0 true false false false false false true true false false false false false false X 8 8 false true false false false false false true true false false true true true true true true false false false X STRATEGIC ASSOCIATION MANAGEMENT 5122752600 3305 STECK AVE STE 200 AUSTIN TX 78757 X T CRAIG BENSON BOARD CHAIR 20.00 X X 0 0 0 MARY BETH KISER PRESIDENT/CEO AND SECRETARY 40.00 X 0 0 0 JEFF HUNT DIRECTOR 4.00 X 0 0 0 SABRINA BROWN DIRECTOR 4.00 X 0 0 0 WAYNE HERNDON DIRECTOR 4.00 X 0 0 0 WILL MURPHY DIRECTOR 4.00 X 0 0 0 CAROLINE GOODNER DIRECTOR 4.00 X 0 0 0 STEVEN SILBER MD DIRECTOR 4.00 X 0 0 0 JONATHAN FEIFS DIRECTOR 4.00 X 0 0 0 MARK CHANDLER DIRECTOR EMERITUS 4.00 X 0 0 0 false false false STRATEGIC ASSOCIATION MANAGEMENT 3305 STECK AVE STE 200 AUSTIN TX 78757 MANAGEMENT 225000 1 47700 248181 295881 37250 0 37250 16200 47700 43268 -27068 0 -27068 306063 0 0 10182 225000 108228 116772 0 32752 19979 12773 0 20060 12237 7823 0 489073 489073 0 0 20885 4762 10402 5721 27389 27389 0 0 5670 0 570 5100 6240 6240 0 0 64768 54513 10255 0 1137 0 1137 0 892974 722421 159732 10821 246114 176047 1078753 591000 7031 7031 8020 2355 781275 1083276 2121193 1859709 158613 182039 158613 182039 X 1962580 1677670 1962580 1677670 2121193 1859709 -586911 302001 X false true X true false X 0 715251 825881 283680 488110 295881 2608803 0 0 715251 825881 283680 488110 295881 2608803 0 2608803 58 21005 36334 71386 37250 166033 27413 10969 84277 61839 16200 200698 0 2975534 117846 0.87680 0.84170 X 0 0 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1083276 F 1083276 608064 302001 302001 306063 306063 892974 892974 892974 EVENTS 63900 47700 16200 43268 63900 47700 16200 43268 43268 -27068 Pt VI, Line 3 THE ORGANIZATION HIRED STRATEGIC ASSOCIATION MANAGEMENT TO PERFORM MANAGEMENT SERVICES. Pt VI, Line 11b THE FORM 990 IS PROVIDED TO ALL BOARD MEMBERS AND OFFICERS FOR REVIEW BEFORE FILING. Pt VI, Line 12c EACH DIRECTOR AND OFFICER IS REQUIRED TO ANNUALLY SIGN A STATEMENT AFFIRMING THAT THEY HAVE RECEIVED A COPY OF THE BYLAWS CONTAINING THE CONFLICT OF INTEREST POLICY, HAVE READ AND UNDERSTAND THE POLICY, AND HAVE AGREED TO COMPLY WITH THE POLICY. Pt VI, Line 19 INFORMATION AVAILABLE UPON REQUEST. Form 990, Part IX, Line 11g RESEARCH CONTRACTS AND GRANTS 489073. 489073. 0. 0.