Nonprofit · EIN 13-5650955
HEMOPHILIA ASSOCIATION OF NEW YORK INC
Tax-exempt · NEW YORK, NY 10001
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $441,005 | $960,241 | -$519,236 | $4,358,738 | $224,150 | $4,134,588 |
| June 30, 2024 | 990 | $2,305,589 | $1,121,457 | $1,184,132 | $4,596,219 | $107,373 | $4,488,846 |
| June 30, 2023 | 990 | $572,223 | $1,013,221 | -$440,998 | $3,242,886 | $131,213 | $3,111,673 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $384,466
- Program service revenue
- $0
- Investment income
- $46,831
- Net gain from sales of assets
- $2,466
- Other revenue
- $9,708
Expenses
- Grants and similar amounts paid
- $104,180
- Compensation of officers, directors and key employees
- $176,078
- Other salaries and wages
- $243,550
- Salaries, compensation and benefits (total)
- $502,706
- Professional fundraising fees
- $0
- Accounting fees
- $109,700
- Travel
- $16,167
- Depreciation
- $28,389
- Program services (functional)
- $623,639
- Management and general (functional)
- $313,419
- Fundraising (functional)
- $23,183
Balance sheet and other
- Total assets, start of year
- $4,596,219
- Total assets, end of year
- $4,358,738
- Total liabilities, end of year
- $224,150
- Net assets, end of year
- $4,134,588
- Land, buildings and equipment
- $808,476
- Publicly traded securities
- $2,064,094
- Net assets without donor restrictions
- $2,891,610
- Net assets with donor restrictions
- $1,242,978
- Gross receipts
- $780,573
- Employees
- 6
- Volunteers
- 15
- Year formed
- 1958
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LINDA E MUGFORD | EXECUTIVE DIRECTOR-THRU 12/31/24 Officer | 24 | $168,448 | $34,254 |
| ELIZABETH CEDENO | EXECUTIVE DIRECTOR-BEGINNING 1/1/25 Officer | 40 | $88,698 | $11,688 |
| MARIAM VOUTSIS | CHAIRMAN OF THE BOARD Trustee or director, Officer | 2 | $0 | $0 |
| EILEEN MARGOLIES | TRUSTEE Trustee or director | 2 | $0 | $0 |
| EDWARD G ROGOFF PHD | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MARK K SVENNINGSON | TRUSTEE Trustee or director | 2 | $0 | $0 |
| JEFFREY ZACHARIA | TRUSTEE Trustee or director | 2 | $0 | $0 |
| JOANA BAQUERO | TRUSTEE Trustee or director | 2 | $0 | $0 |
| THEODORE BUNIN | TRUSTEE Trustee or director | 2 | $0 | $0 |
| BRIAN EGAN | TRUSTEE Trustee or director | 2 | $0 | $0 |
| ROBERT M GREER | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MARK KOVARIK | TRUSTEE Trustee or director | 2 | $0 | $0 |
| JOSEPH MUGFORD | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MAGGI PACK | TRUSTEE Trustee or director | 2 | $0 | $0 |
| AUREO C PINTO JR | TRUSTEE Trustee or director | 2 | $0 | $0 |
2 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CHRISTOPHER N TOUSSAINT | TRUSTEE Trustee or director | 2 | $0 |
| ALEJANDRO BAQUERO | TRUSTEE Trustee or director | 2 | $0 |
990 for the year ended June 30, 2024: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LINDA E MUGFORD | EXECUTIVE DIRECTOR Officer | 40 | $169,781 | $37,264 |
| MARIAM VOUTSIS | CHAIRMAN OF THE BOARD Trustee or director, Officer | 2 | $0 | $0 |
| EILEEN MARGOLIES | TRUSTEE Trustee or director | 2 | $0 | $0 |
| EDWARD G ROGOFF PHD | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MARK K SVENNINGSON | TRUSTEE Trustee or director | 2 | $0 | $0 |
| JEFFREY ZACHARIA | TRUSTEE Trustee or director | 2 | $0 | $0 |
| JOHANNA BAQUERO | TRUSTEE Trustee or director | 2 | $0 | $0 |
| THEODORE BUNIN | TRUSTEE Trustee or director | 2 | $0 | $0 |
| BRIAN EGAN | TRUSTEE Trustee or director | 2 | $0 | $0 |
| ROBERT M GREER | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MARK KOVARIK | TRUSTEE Trustee or director | 2 | $0 | $0 |
| JOSEPH MUGFORD | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MAGGI PACK | TRUSTEE Trustee or director | 2 | $0 | $0 |
| AUREO C PINTO JR | TRUSTEE Trustee or director | 2 | $0 | $0 |
| CHRISTOPHER N TOUSSAINT | TRUSTEE Trustee or director | 2 | $0 | $0 |
990 for the year ended June 30, 2023: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LINDA E MUGFORD | EXECUTIVE DIRECTOR Officer | 40 | $158,963 | $39,930 |
| MARIAM VOUTSIS | PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| EILEEN MARGOLIES | VICE PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| EDWARD G ROGOFF PHD | BOARD CHAIRPERSON Trustee or director, Officer | 2 | $0 | $0 |
| MARK K SVENNINGSON | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| JEFFREY ZACHARIA | VICE PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| JOANA BAQUERO | TRUSTEE Trustee or director | 2 | $0 | $0 |
| THEODORE BUNIN | TRUSTEE Trustee or director | 2 | $0 | $0 |
| BRIAN EGAN | TRUSTEE Trustee or director | 2 | $0 | $0 |
| ROBERT M GREER | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MARK KOVARIK | TRUSTEE Trustee or director | 2 | $0 | $0 |
| JOSEPH MUGFORD | TRUSTEE Trustee or director | 2 | $0 | $0 |
| MAGGI PACK | TRUSTEE Trustee or director | 2 | $0 | $0 |
| AUREO C PINTO JR | TRUSTEE Trustee or director | 2 | $0 | $0 |
| CHRISTOPHER N TOUSSAINT | TRUSTEE Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 131 WEST 33RD STREET, NEW YORK, NY 10001-2908
- Principal officer (990 for 2024)
- ELIZABETH CEDENO, 131 WEST 33RD STREET 11D, NEW YORK, NY 10001
- Signed the 990
- ELIZABETH CEDENO, EXECUTIVE DIRECTOR
- Phone
- (212) 682-5510
- Website
- WWW.HEMOPHILIANY.COM
- Return prepared by
- SAX LLP
Mission
TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS.
Program accomplishments
- MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY. SOME TO SPECIFIC FAMILIES BASED ON NEED. DURING 2024-2025, 65% OF STAFF TIME/EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION. INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2024-2025, 1013 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. 13% OF PATIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $40,226. GROUP MEETINGS AND PATIENTS EVENTS WERE CONDUCTED THROUGHOUT THE YEAR. (CONTINUED ON SCHEDULE O)HIGHLIGHTS INCLUDE A TEEN RETREAT, A FAMILY EDUCATIONAL CONFERENCE, AND A WOMEN'S RETREAT.Expenses $619,716 · grants $102,894
- THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS ASSOCIATED WITH HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2024-2025, THE ASSOCIATION MADE $986 IN PAYMENTS TOWARD THE RESEARCH GRANT AWARDED IN FY 2022-2023.Expenses $2,126 · grants $986
- IN FISCAL YEAR 2024-2025, THE ASSOCATION SUPPORTED BLEEDNG DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. INFORMATION WAS PROVIDED TO THE GENERAL PUBLIC ON BLEEDING DISORDERS.Expenses $1,797 · grants $300
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 13-5650955
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1954
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G030)
- Assets (IRS master file)
- $4,358,738
- Income (IRS master file)
- $780,573
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $441,005 | $960,241 | $4,358,738 | IRS |
| 990 | June 2024 | $2,305,589 | $1,121,457 | $4,596,219 | XML |
| 990 | June 2023 | $572,223 | $1,013,221 | $3,242,886 | XML |
| 990 | June 2022 | $563,478 | $1,016,115 | $3,657,906 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-5650955).
Questions about HEMOPHILIA ASSOCIATION OF NEW YORK INC
- What is the EIN of HEMOPHILIA ASSOCIATION OF NEW YORK INC?
- The employer identification number (EIN) of HEMOPHILIA ASSOCIATION OF NEW YORK INC is 13-5650955.
- Is HEMOPHILIA ASSOCIATION OF NEW YORK INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1954.
- Are donations to HEMOPHILIA ASSOCIATION OF NEW YORK INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HEMOPHILIA ASSOCIATION OF NEW YORK INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HEMOPHILIA ASSOCIATION OF NEW YORK INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HEMOPHILIA ASSOCIATION OF NEW YORK INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of HEMOPHILIA ASSOCIATION OF NEW YORK INC?
- The 990 for the year ended June 30, 2025 names ELIZABETH CEDENO.
- Who are the officers and directors of HEMOPHILIA ASSOCIATION OF NEW YORK INC?
- The 990 for the year ended June 30, 2025 lists 17 people; 2 received compensation from the organization, the highest $168,448 (LINDA E MUGFORD, EXECUTIVE DIRECTOR-THRU 12/31/24).
- How much revenue does HEMOPHILIA ASSOCIATION OF NEW YORK INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $441,005, expenses of $960,241 and total assets of $4,358,738 at year end.
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