Nonprofit · EIN 13-4166186
FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE
Tax-exempt · NEW YORK, NY 10028
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| March 31, 2025 | 990 | $194,150 | $327,957 | -$133,807 | $1,947,402 | $0 | $1,947,402 |
| March 31, 2024 | 990 | $497,707 | $354,917 | $142,790 | $2,062,361 | $0 | $2,062,361 |
Financial details: 990 for the year ended March 31, 2025
Revenue
- Contributions, gifts and grants
- $127,517
- Program service revenue
- $0
- Investment income
- $64,169
- Net gain from sales of assets
- $41
- Other revenue
- $2,464
Expenses
- Grants and similar amounts paid
- $250,000
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $8,064
- Program services (functional)
- $250,000
- Management and general (functional)
- $77,957
Balance sheet and other
- Total assets, start of year
- $2,062,361
- Total assets, end of year
- $1,947,402
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,947,402
- Publicly traded securities
- $1,744,062
- Net assets without donor restrictions
- $1,947,402
- Gross receipts
- $1,136,771
- Employees
- 0
- Volunteers
- 0
- Year formed
- 2001
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended March 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| GWEN M ENGELHARD DDS | PRESIDENT Trustee or director, Officer | 0 | $0 |
| JILL DALTON | CHIEF FINANCIAL OFFICER Trustee or director, Officer | 0 | $0 |
| JOHN Z JACOBY | PRESIDENT EMERITUS/SECRETA Trustee or director, Officer | 0 | $0 |
| MARNEE MCCARTHY | ASSISTANT SECRETARY Trustee or director, Officer | 0 | $0 |
| KAITLYN CHENEY | DIRECTOR Trustee or director | 0 | $0 |
| ROBERT M HUTCHINSON | DIRECTOR Trustee or director | 0 | $0 |
| SEAN MCCOOE | DIRECTOR Trustee or director | 0 | $0 |
| JUDY NANCE | DIRECTOR Trustee or director | 0 | $0 |
| LUMI CASTLEN | DIRECTOR Trustee or director | 0 | $0 |
| MELISSA ARGENIO | DIRECTOR Trustee or director | 0 | $0 |
| DAVID SHEPHERD | DIRECTOR Trustee or director | 0 | $0 |
| THOMAS G LEAHY | VICE PRESIDENT Trustee or director, Officer | 0 | $0 |
| ROSE MARIE MANGER | DIRECTOR Trustee or director | 0 | $0 |
| MELISSA SMITH | DIRECTOR Trustee or director | 0 | $0 |
| LISA TROYANO-ASCOLESE | DIRECTOR Trustee or director | 0 | $0 |
990 for the year ended March 31, 2024: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| GWEN M ENGELHARD DDS | PRESIDENT Trustee or director, Officer | 0 | $0 |
| JILL DALTON | CHIEF FINANCIAL OFFICER Trustee or director, Officer | 0 | $0 |
| JOHN Z JACOBY | PRESIDENT EMERITUS/SECRETA Trustee or director, Officer | 0 | $0 |
| MARNEE MCCARTHY | ASSISTANT SECRETARY Trustee or director, Officer | 0 | $0 |
| KAITLYN CHENEY | DIRECTOR Trustee or director | 0 | $0 |
| ROBERT M HUTCHINSON | DIRECTOR Trustee or director | 0 | $0 |
| SEAN MCCOOE | DIRECTOR Trustee or director | 0 | $0 |
| JUDY NANCE | DIRECTOR Trustee or director | 0 | $0 |
| LUMI CASTLEN | DIRECTOR Trustee or director | 0 | $0 |
| MELISSA ARGENIO | DIRECTOR Trustee or director | 0 | $0 |
| DAVID SHEPHERD | DIRECTOR Trustee or director | 0 | $0 |
| THOMAS G LEAHY | VICE PRESIDENT Trustee or director, Officer | 0 | $0 |
| ROSE MARIE MANGER | DIRECTOR Trustee or director | 0 | $0 |
| MELISSA SMITH | DIRECTOR Trustee or director | 0 | $0 |
| LISA TROYANO-ASCOLESE | DIRECTOR Trustee or director | 0 | $0 |
Address and contacts
- Address (IRS master file)
- 55 E END AVE APT 14D, NEW YORK, NY 10028-7937
- In care of
- % GWEN ENGELHARD
- Principal officer (990 for 2024)
- GWEN ENGELHARD, 212 WEST 15TH STREET 1ST FLOOR, NEW YORK, NY 10011
- Signed the 990
- GWEN ENGELHARD, PRESIDENT
- Phone
- (212) 764-1234
- Return prepared by
- ALAN S HONIG ASSOCIATES INC
Mission
FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE, INC. IS AN ORGANIZATION COMMITTED TO ENHANCING THE QUALITY OF LIFE OF CYSTIC FIBROSIS PATIENTS WHILE THEY AWAIT A CURE. THE ORGANIZATION ACCOMPLISHES THIS BY SUPPORTING AND ENDEAVORING TO IMPROVE THE SPECIAL PROGRAMS AVAILABLE FOR PATIENTS.
Program accomplishments
- THE ORGANIZATION PROVIDES GRANTS TO OPERATE A CYSTIC FIBROSIS CENTER FOR THE PURPOSE OF ENHANCING THE QUALITY OF LIFE OF PATIENTS. IN THE CURRENT FISCAL YEAR A GRANT IN THE AMOUNT OF $250,000 WAS MADE TO NORTHWELL HEALTH FOUNDATION TO PROVIDE SUPPORT TO A CYSTIC FIBROSIS CENTER IN LENOX HILL HOSPITAL IN NEW YORK.Expenses $250,000 · grants $250,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in March, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | March 31, 2026 | August 17, 2026 | Not on file |
| 2024 | March 31, 2025 | August 15, 2025 | 990 on file |
| 2023 | March 31, 2024 | August 15, 2024 | 990 on file |
IRS record
- EIN
- 13-4166186
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2002
- Accounting year ends
- March
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $1,947,402
- Income (IRS master file)
- $1,136,771
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | March 2025 | $194,150 | $327,957 | $1,947,402 | XML |
| 990 | March 2024 | $497,707 | $354,917 | $2,062,361 | XML |
| 990 | March 2023 | $817,705 | $755,393 | $1,901,654 | IRS |
| 990 | March 2022 | – | – | – | IRS |
| 990 | March 2019 | – | – | – | IRS |
| 990 | March 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-4166186).
Questions about FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE
- What is the EIN of FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE?
- The employer identification number (EIN) of FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE is 13-4166186.
- Is FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2002.
- Are donations to FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE due?
- The return for tax year 2025 (the year ending March 31, 2026) is due August 17, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended March 2025.
- Who is the principal officer of FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE?
- The 990 for the year ended March 31, 2025 names GWEN ENGELHARD.
- Who are the officers and directors of FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE?
- The 990 for the year ended March 31, 2025 lists 15 people; 0 received compensation from the organization.
- How much revenue does FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE have?
- On its 990 for the year ended March 31, 2025 it reported revenue of $194,150, expenses of $327,957 and total assets of $1,947,402 at year end.
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