Nonprofit · EIN 93-3381308
LILLY AND BLAIR FOUNDATION
Tax-exempt · OAKTON, VA 22124
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $276,912 | $216,875 | $60,037 | $274,932 | $0 | $274,932 |
| December 31, 2023 | 990 | $218,242 | $3,348 | $214,894 | $214,894 | $0 | $214,894 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $245,620
- Program service revenue
- $0
- Investment income
- $0
- Net income from fundraising events
- $31,292
- Other revenue
- $31,292
Expenses
- Grants and similar amounts paid
- $199,125
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $199,125
- Management and general (functional)
- $933
- Fundraising (functional)
- $16,817
Balance sheet and other
- Total assets, start of year
- $214,895
- Total assets, end of year
- $274,932
- Total liabilities, end of year
- $0
- Net assets, end of year
- $274,932
- Net assets without donor restrictions
- $274,932
- Gross receipts
- $293,728
- Employees
- 0
- Volunteers
- 10
- Year formed
- 2023
- State of legal domicile
- VA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jay Coonan | Director Trustee or director | 0.25 | $0 |
| Scott Chilson | Director Trustee or director | 0.25 | $0 |
| Katie Gregg | President Officer | 20 | $0 |
| Christopher Lorek | Vice President Officer | 5 | $0 |
| Michael Gregg | Treasurer Officer | 5 | $0 |
| Stephanie Lorek | Secretary Officer | 5 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Katie Gregg | President and Director Trustee or director, Officer | 10 | $0 |
| Christopher Lorek | Vice President and Director Trustee or director, Officer | 5 | $0 |
| Michael Gregg | Secretary and Director Trustee or director, Officer | 3 | $0 |
| Stephanie Lorek | Treasurer and Director Trustee or director, Officer | 3 | $0 |
| Jay Coonan | Director Officer | 0.5 | $0 |
| Scott Chilson | Director Officer | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- 3011 WEBER PL, OAKTON, VA 22124-1753
- In care of
- % KATIE GREGG
- Signed the 990
- KATIE GREGG, President
- Phone
- (717) 574-1348
- Website
- lillyandblair.org
- Return prepared by
- JOSEPH CIARDIELLO
Mission
The Lilly and Blair Foundation funds and coordinates research to accelerate treatment development for children affected by de novo spastic paraplegia SPG4, while fostering a collaborative and informed community.
Program accomplishments
- Gene Therapy Research Acceleration: Funded multiple academic research programs aimed at advancing AAV9 gene therapy for SPG4, including Drexel University (Baas Lab / Cyagen mouse model), Boston Childrens Hospital (DEF Lab), University of Massachusetts, and University Of Wisconsin.Expenses $199,125 · grants $199,125
- Awareness and Community Engagement: Mobilized families, hosted awareness campaigns, and led community events (golf fundraiser, 5K, year-end campaign) to raise funds for SPG4 research and increase public engagement.revenue $276,912
- Patient and Family Support: Provided educational resources, coordinated family meetings, and built collaborations to education and bring together the SPG4 community.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 93-3381308
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2023
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G50)
- Assets (IRS master file)
- $274,932
- Income (IRS master file)
- $293,728
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $276,912 | $216,875 | $274,932 | IRS |
| 990 | December 2023 | $218,242 | $3,348 | $214,894 | XML |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 93-3381308).
Questions about LILLY AND BLAIR FOUNDATION
- What is the EIN of LILLY AND BLAIR FOUNDATION?
- The employer identification number (EIN) of LILLY AND BLAIR FOUNDATION is 93-3381308.
- Is LILLY AND BLAIR FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2023.
- Are donations to LILLY AND BLAIR FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LILLY AND BLAIR FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LILLY AND BLAIR FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LILLY AND BLAIR FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who are the officers and directors of LILLY AND BLAIR FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 6 people; 0 received compensation from the organization.
- How much revenue does LILLY AND BLAIR FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $276,912, expenses of $216,875 and total assets of $274,932 at year end.
Other nonprofits in OAKTON
- NORTHERN VIRGINIA RESOURCE CENTER FOR DEAF & HARD OF HEARING PERSONS EIN 54-1531504 · last filed 990 for 2025
- RAREGEN YOUTH NETWORK EIN 99-3564877 · last filed 990-N for 2024
- US TCM TUI NA ASSOCIATION EIN 93-4038630 · last filed 990-N for 2025
- SERVICESOURCE INC EIN 54-0901256 · last filed 990 for 2025
- FLINT HILL SCHOOL EIN 54-1538212 · last filed 990 for 2025
- HOPELINK BEHAVIORAL HEALTH EIN 54-0880899 · last filed 990 for 2025
- EMPLOYMENT SOURCE INC EIN 56-2253814 · last filed 990 for 2025
- CENTRAL FAIRFAX SERVICES INC EIN 54-0855731 · last filed 990 for 2025
All nonprofits in OAKTON · Virginia · Voluntary health associations and medical disciplines