Nonprofit · EIN 87-1389001
PKD FREE BABIES ALLIANCE LTD
Tax-exempt · WESTBURY, NY 11590
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $657,659 | $588,428 | $69,231 | $1,286,936 | $32,920 | $1,254,016 |
| December 31, 2024 | 990 | $445,120 | $391,130 | $53,990 | $1,184,785 | $0 | $1,184,785 |
| December 31, 2023 | 990 (amended) | $830,899 | $228,614 | $602,285 | $1,129,357 | $0 | $1,129,357 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $664,811
- Program service revenue
- $0
- Investment income
- -$7,152
- Net gain from sales of assets
- -$44,850
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $257,860
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $11,033
- Travel
- $378
- Program services (functional)
- $563,892
- Management and general (functional)
- $10,036
- Fundraising (functional)
- $14,500
Balance sheet and other
- Total assets, start of year
- $1,184,785
- Total assets, end of year
- $1,286,936
- Total liabilities, end of year
- $32,920
- Net assets, end of year
- $1,254,016
- Net assets without donor restrictions
- $1,254,016
- Gross receipts
- $1,966,259
- Employees
- 0
- Volunteers
- 0
- Year formed
- 2022
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Richard Kellner | Founder Trustee or director, Officer | 15 | $0 |
| Marlene Wald | Director Trustee or director | 1 | $0 |
| Larry Wald | Director Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Richard Kellner | Founder Trustee or director, Officer | 15 | $0 |
| Marlene Wald | Director Trustee or director | 1 | $0 |
| Larry Wald | Director Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Richard Kellner | Founder Trustee or director, Officer | 15 | $0 |
| Marlene Wald | Director Trustee or director | 1 | $0 |
| Larry Wald | Director Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 695 MERRICK AVE APT 445, WESTBURY, NY 11590-6724
- Mailing address (990-N for 2021)
- PO Box 982857, Park City UT 84098
- Principal officer (990 for 2025)
- Richard Kellner, 695 Merrick Ave 445, Westbury, NY 11590
- Principal officer (990-N for 2021)
- Richard Kellner, PO Box 982857, Park City UT 84098
- Signed the 990
- Richard Kellner, President
- Phone
- (516) 802-2094
- Website
- www.pkdo.org
- Return prepared by
- Getzel Schiff & Pesce LLP
Mission
PKD Free Babies Alliance, Ltd. (PKD-Free Alliance) is a 501(c)(3) nonprofit organization dedicated to ending Polycystic Kidney Disease (PKD) by using proven approaches to prevent it from being passed down to future generations.
Program accomplishments
- PKD Free-Alliance Alliance provides qualified PKD-impacted families with resources, grants, and discounts from top fertility centers nationwide for Preimplantation Genetic Testing (PGT-M) and In Vitro Fertilization (IVF) treatments. Collectively, this allows PKD-impacted individuals to help actualize a PKD-free future.Since the launch of the PKD-Free Babies program in July of 2023, the Alliance has received over 200 grant applications and provided support to 100+ families on their PKD-free journey, with more than 20 PKD-Free Babies welcomed to the world as of February 2026. The PKD-Free Babies Grant Program ranges from $3,000 - $9,000 on a case-by-case basis to cover uninsured costs of preimplantation genetic testing for monogenic disorders (PGT-M) and costs associated with in vitro fertilization (IVF). Approved grant applicants are also eligible for discounts from allied Genetic Testing Laboratories and Fertility Clinics, if they choose to work with those facilities.In addition to helping actualize a PKD-free child for affected families, the Alliance is contributing to long-term reductions in health care costs for patients and their health insurance providers. Each child born free of the disease avoids the need for life-long medical treatment, such as years of dialysis, kidney transplant(s) maintenance, and ongoing specialty care. These outcomes translate into millions of dollars saved by government and/or commercial insurance over time, with annual savings increasing as more families are supported and additional PKD-free children are born, stopping disease transmission to future generations. Each PKD-free birth also reduces burden on the National Waiting list, where over 94,000 individuals are awaiting a life-saving kidney transplant.Over 30 medical centers, fertility clinics, genetic companies, and advocacy organizations have aligned themselves with the Alliance's mission and continue to propel family planning education forward for families impacted by PKD.Key medical centers supporting the Alliance's mission include Columbia University Medical Center, Rogosin Institute, University of Utah Health, and University of Miami Katz Family Division of Nephrology and Hypertension.Expenses $563,892 · grants $257,860
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 87-1389001
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E12)
- Assets (IRS master file)
- $1,286,936
- Income (IRS master file)
- $1,966,259
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $657,659 | $588,428 | $1,286,936 | XML |
| 990 | December 2024 | $445,120 | $391,130 | $1,184,785 | XML |
| 990 | December 2023 | $830,899 | $228,614 | $1,129,357 | XML |
| 990 | December 2022 | $979,586 | $444,922 | $527,072 | IRS |
| 990-N for 2021 Officer: Richard Kellner | December 31, 2021 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 87-1389001).
Questions about PKD FREE BABIES ALLIANCE LTD
- What is the EIN of PKD FREE BABIES ALLIANCE LTD?
- The employer identification number (EIN) of PKD FREE BABIES ALLIANCE LTD is 87-1389001.
- Is PKD FREE BABIES ALLIANCE LTD tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to PKD FREE BABIES ALLIANCE LTD tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does PKD FREE BABIES ALLIANCE LTD file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of PKD FREE BABIES ALLIANCE LTD due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did PKD FREE BABIES ALLIANCE LTD last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of PKD FREE BABIES ALLIANCE LTD?
- The 990 for the year ended December 31, 2025 names Richard Kellner.
- Who are the officers and directors of PKD FREE BABIES ALLIANCE LTD?
- The 990 for the year ended December 31, 2025 lists 3 people; 0 received compensation from the organization.
- How much revenue does PKD FREE BABIES ALLIANCE LTD have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $657,659, expenses of $588,428 and total assets of $1,286,936 at year end.
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