2025-01-23T09:58:12-06:00 2023-12-31 113575844 Getzel Schiff & Pesce LLP 100 Crossways Park West Suite 403 Woodbury NY 11797 990 2023-01-01 871389001 PKD Outreach Foundation Ltd PKDO 5168022094 695 Merrick Avenue 445 Westbury NY 11590 Richard Kellner President 5168022094 2025-01-23 1 1 Michael Getzel CPA P01072561 5166928500 2025-01-20 X 2023 2024-10-15 13:58:12Z X Richard Kellner 695 Merrick Ave 445 Westbury NY 11590 1571941 0 X pkdo.org X 2022 NY The PKD Outreach Foundation (pkDO) mission is to end Polycystic Kidney Disease by preventing the disease from being passed down to the next generation. We are the ONLY charitable organization with this mission. While our mission is to end PKD, we also suport initiatives to help PKD impacted families during the entire lifecycle of the disease. Such as: -Increase Live Kidney Donation -Slow the Progression of PKD in Young Adults -Prevent PKD from Being Passed Down to Future Generations 3 0 0 3 0 0 976031 807103 0 0 3419 23796 136 0 979586 830899 201475 35918 0 0 0 2160 0 7875 7875 251039 182661 452514 228614 527072 602285 527072 1129357 0 0 527072 1129357 X The PKD Outreach Foundation (pkDO) mission is to end Polycystic Kidney Disease by preventing the disease from being passed down to the next generation. We are the ONLY charitable organization with this mission. While our mission is to end PKD, we also suport initiatives to help PKD impacted families during the entire lifecycle of the disease. -Increase Live Kidney Donation-Slow the Progression of PKD in Young Adults -Prevent PKD from Being Passed Down to Future Generations 0 0 204686 35918 During 2024 and into 2024 we have two major initiatives: 1) PKD Free Babies - Our 100 PKD-Free Babies initiative is providing the funding and support to bring about a new generation of PKD-free children. Our ambition is to reduce the number of babies born from ~7500/year to all PKD Free Births. We have ignited this effort with an initial goal of subsidizing 100 PKD-free children. -Our current program offers $3,000 per patient to cover the cost ofpreimplantation genetic testing (PGT) not covered by insurance.-We are in the process of finalizing arrangements with two national fertilitycenters to provide families enrolled in our program with significant discounts, whichcombined with an increased grant from pkDO will reduce the out-of-pocket cost for oneround of IVF/PGT from ~$30k to ~$15k.-This new program will significantly increase the number of PKD-impactedfamilies we can assist in having a PKD-Free Future.PKD Free Babies - 2023 Results-4 - Medical Center Partners2- National IVF Center Partners12 - Social Media Partners38 Families Seeking our assistance~20 PKD-Free Babies "In Process"4 PKD-Free Babies Born in 20232)Live Kidney Donation Initiative - Our efforts have helped incubate a neworganization solely focused on this initiative that is staffed by highly trainedindividuals that have over a decade of experience assisting with live donortransplants and the desire to build a scalable organization to provide this serviceacross multiple transplant centers.In 2023 pkDO partnered with this new organization and one of our medical centerpartners on an 8-person pilot program which was conducted with considerable success.Plans are being made for an expanded 25-person pilot to start early in 2024.This initiative now has a life of its own and we are one of several backers for thesuccess and growth of this important initiative. 204686 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 4 0 0 0 0 0 0 0 0 0 0 0 0 X 3 0 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 NY X Richard Kellner 5168022094 695 Merrick Ave 445 Westbury NY 11590 X Richard Kellner Founder 15.00 0.00 X X 0 0 0 Marlene Wald Director 1.00 0.00 X 0 0 0 Larry Wald Director 1.00 0.00 X 0 0 0 0 0 0 0 0 0 0 0 807103 549775 807103 14515 14515 750323 741042 9281 9281 9281 830899 23796 0 0 35918 35918 2160 2160 9749 9749 7875 7875 101602 101602 4144 4144 Outreach and Education 67166 67166 228614 204686 16053 7875 73653 177386 453419 402196 0 549775 527072 1129357 0 0 X 527072 1129357 527072 1129357 527072 1129357 602285 0 X 0 1 X 1 0 X 976031 807103 1783134 976031 807103 1783134 0 0 0 1783134 3419 23796 27215 3419 23796 27215 136 136 979586 830899 1810485 0.98490 0.99650 0.01500 0.00350 X Schedule A, Part III, Line 12, Explanation of Other Income: Other Income - 2022 Amount: $ 136. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 Partnership Interest 549775 F 549775 830899 0 830899 0 830899 228614 0 228614 0 228614 1 Renewal of Life Inc 4721 New Utrecht Ave Brooklyn NY 11219 900772896 10000 0 To help patients and their families navigate the complex process of kidney transplant, from finding a donor to arranging the transplant and beyond. 1 1 Part I, Line 2: Our organization awards a small number of grants over $10,000 annually, to trusted organizations with operations closely aligned with our stated objectives. We prioritize recipients with proven track records and shared values, ensuring all grants support our mission effectively and responsibly. X 1 549775 Third Party Appraisal 0 0 0 Form 990, Part VI, Section A, line 2 Larry Wald and Marlene Wald are spouses. Form 990, Part VI, Section B, line 11b The 990 was carefully reviewed by by two of our three directors. Form 990, Part VI, Section B, line 12c A minimum of annually the Organization obtains annual certifications from the board members regarding the conflict of interest policy. Board members have a duty to disclose potential conflicts. The board determines if a conflict exists after disclosure. The board without the conflicted party involved investigates alternatives and determines the best course of action for the Organization. Form 990, Part VI, Section C, line 18 Organizaton documents available upon wriiten request. Form 990, Part VI, Section C, line 19 No other documents available to the public. They may be available upon written request.