2026-05-22T08:33:21-05:00 2025-12-31 113575844 Getzel Schiff & Pesce LLP 100 Crossways Park West Suite 403 Woodbury NY 11797 990 2025-01-01 871389001 PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd PKDF 5168022094 695 Merrick Avenue 445 Westbury NY 11590 Richard Kellner President 5168022094 2026-05-20 1 Michael Getzel CPA P01072561 5166928500 2026-05-20 X 2025 2025-03-06 01:10:19Z Richard Kellner 695 Merrick Ave 445 Westbury NY 11590 1966259 0 X www.pkdfree.org X 2022 NY PKD Free Babies Alliance, Ltd. (PKD-Free Alliance) is a 501(c)(3) nonprofit organization dedicated to ending Polycystic Kidney Disease (PKD) by using proven approaches to prevent it from being passed down to future generations. 3 0 0 0 0 0 428121 664811 0 0 16999 -7152 0 0 445120 657659 174404 257860 0 0 0 0 8250 0 14500 208476 330568 391130 588428 53990 69231 1184785 1286936 0 32920 1184785 1254016 X PKD Free Babies Alliance, Ltd. (PKD-Free Alliance) is a 501(c)(3) nonprofit organization dedicated to ending Polycystic Kidney Disease (PKD) by using proven approaches to prevent it from being passed down to future generations. 0 0 563892 257860 PKD Free-Alliance Alliance provides qualified PKD-impacted families with resources, grants, and discounts from top fertility centers nationwide for Preimplantation Genetic Testing (PGT-M) and In Vitro Fertilization (IVF) treatments. Collectively, this allows PKD-impacted individuals to help actualize a PKD-free future.Since the launch of the PKD-Free Babies program in July of 2023, the Alliance has received over 200 grant applications and provided support to 100+ families on their PKD-free journey, with more than 20 PKD-Free Babies welcomed to the world as of February 2026. The PKD-Free Babies Grant Program ranges from $3,000 - $9,000 on a case-by-case basis to cover uninsured costs of preimplantation genetic testing for monogenic disorders (PGT-M) and costs associated with in vitro fertilization (IVF). Approved grant applicants are also eligible for discounts from allied Genetic Testing Laboratories and Fertility Clinics, if they choose to work with those facilities.In addition to helping actualize a PKD-free child for affected families, the Alliance is contributing to long-term reductions in health care costs for patients and their health insurance providers. Each child born free of the disease avoids the need for life-long medical treatment, such as years of dialysis, kidney transplant(s) maintenance, and ongoing specialty care. These outcomes translate into millions of dollars saved by government and/or commercial insurance over time, with annual savings increasing as more families are supported and additional PKD-free children are born, stopping disease transmission to future generations. Each PKD-free birth also reduces burden on the National Waiting list, where over 94,000 individuals are awaiting a life-saving kidney transplant.Over 30 medical centers, fertility clinics, genetic companies, and advocacy organizations have aligned themselves with the Alliance's mission and continue to propel family planning education forward for families impacted by PKD.Key medical centers supporting the Alliance's mission include Columbia University Medical Center, Rogosin Institute, University of Utah Health, and University of Miami Katz Family Division of Nephrology and Hypertension. 563892 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 6 0 1 0 0 0 0 0 0 0 0 0 0 0 X 3 0 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 NY X Richard Kellner 5168022094 695 Merrick Ave 445 Westbury NY 11590 X Richard Kellner Founder 15.00 X X 0 0 0 Marlene Wald Director 1.00 X 0 0 0 Larry Wald Director 1.00 X 0 0 0 0 0 0 0 0 0 0 0 664811 277150 664811 37698 37698 200000 1063750 200000 1108600 0 -44850 -44850 -44850 657659 -7152 0 0 149020 149020 102408 102408 6432 6432 11033 5517 5516 149468 149468 3597 3597 378 378 1847 924 923 Outside Help 149745 149745 Fundraising Platform Fe 14500 14500 588428 563892 10036 14500 84140 116294 269195 1170642 831450 0 1184785 1286936 32920 0 32920 X 1184785 1254016 1184785 1254016 1184785 1286936 69231 0 X 1 X 0 0 0 X 976031 807103 428121 664811 2876066 976031 807103 428121 664811 2876066 1662819 1213247 3419 14515 16999 37698 72631 136 136 2948833 0.41140 0.38000 X Schedule A, Part II, Line 10, Explanation of Other Income: Other Income - 2022 Amount: $ 136. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 0 0 Our Organization awards grants to individuals affected by PKD in hopes of achieving PKD-free pregnancies. Canada 3 6432 Grant to cover the medical costs of preimplantation genetic testing and in vitro fertilization by directly paying forthese medical costs. Direct Payment of Medical Bills 0 0 0 0 0 0 Part I, Line 2: Our Organization awards grants to individuals affected by PKD in hopes of achieving PKD-free pregnancies. To achieve this our Organization directly covers the medical costs of preimplantation genetic testing (PGT-M) and in vitro fertilization (IVF). 1 University of Utah 201 Presidents Circle Salt Lake City UT 84112 876000525 501(c)(3) 100000 0 A grant was awarded to University of Utah Health to establish a PKD Specialty Clinic. The opening of this clinic in Fall 2025 marks the first time the health system has had a dedicated provider specializing in PKD care, building on years of experience treating patients with the disease. The grant was also awarded for relevant awareness and outreach efforts at the University related to preimplantation genetic testing and in vitro fertilization and how these procedures prevent PKD from being passed on to the next generation, and how Alliance grant funding helps patients with associated costs. Santa Barbara Nutrients Inc 1117 State Street Suite 36 Santa Barbara CA 93101 49020 0 Funding of clinical trials to evaluate the effectiveness of their product in slowing the progression of PKD. Our Organization awards grants to individuals affected by PKD in hopes of achieving PKD-free pregnancies. 29 101587 Direct Payment of Medical Bills Grant to cover the medical costs of preimplantation genetic testing and in vitro fertilization by directly paying for these medical costs. Part I, Line 2: Our organization awards grants to trusted organizations with operations closely aligned with our stated objectives. We prioritize recipients with proven track records and shared values, ensuring all grants support our mission effectively and responsibly. Our Organization awards grants to individuals affected by PKD in hopes of achieving PKD-free pregnancies. To acheive this our Organization directly covers the medical costs of preimplantation genetic testing (PGT-M) and in vitro fertilization (IVF). X 1 277150 Third Party Appraisal 0 0 0 Form 990, Part VI, Section A, line 2 Larry Wald and Marlene Wald are spouses. Richard Kellner is the brother-in-law of Larry Wald and Marlene Wald. Form 990, Part VI, Section B, line 11b The 990 was carefully reviewed by by two of our three directors. Form 990, Part VI, Section B, line 12c A minimum of annually the Organization obtains annual certifications from the board members regarding the conflict of interest policy. Board members have a duty to disclose potential conflicts. The board determines if a conflict exists after disclosure. The board without the conflicted party involved investigates alternatives and determines the best course of action for the Organization. Form 990, Part VI, Section C, line 18 Organization documents available upon written request. Form 990, Part VI, Section C, line 19 No other documents available to the public. They may be available upon written request.