Nonprofit · EIN 85-4064822
JANSEN DE VRIES SYNDROME FOUNDATION
Tax-exempt · NATICK, MA 01760
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $131,193 | $116,807 | $14,386 | $63,793 | $15 | $63,778 |
| December 31, 2024 | 990-EZ | $38,593 | $74,242 | -$35,649 | $49,392 | $0 | $49,392 |
| December 31, 2023 | 990-EZ | $104,495 | $60,827 | $43,668 | $85,041 | $0 | $85,041 |
| December 31, 2022 | 990-EZ | $25,569 | $3,738 | $21,831 | $41,373 | $0 | $41,373 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $129,343
- Other revenue
- $1,850
Expenses
- Grants and similar amounts paid
- $10,000
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $5,251
- Printing, publications and postage
- $1,179
- Other expenses
- $100,377
- Program services (functional)
- $116,807
Balance sheet and other
- Total assets, start of year
- $49,392
- Total assets, end of year
- $63,793
- Total liabilities, end of year
- $15
- Net assets, end of year
- $63,778
- Cash, savings and investments
- $63,793
- Gross receipts
- $131,193
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KARA KILROY | PRESIDENT/DI | 16 | $0 |
| RACHEL HORNE | VP/SECRETARY | 16 | $0 |
| MARINDA DU TOIT | TREASURER | 8 | $0 |
| SARAH CROUCH | DONATION MGM | 8 | $0 |
990-EZ for the year ended December 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KARA KILROY | PRESIDENT/DIRECTOR | 8 | $0 |
| RACHEL HORNE | SECRETARY/VICE PRESIDENT | 8 | $0 |
| MARINDA DU TOIT | TREASURER | 8 | $0 |
990-EZ for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KARA KILROY | PRESIDENT/DIRECTOR | 8 | $0 |
| RACHEL HORNE | SECRETARY/VICE PRESIDENT | 8 | $0 |
| MARINDA DU TOIT | TREASURER | 8 | $0 |
990-EZ for the year ended December 31, 2022: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KARA KILROY | PRESIDENT/DIRECTOR | 8 | $0 |
| RACHEL HORNE | SECRETARY/VICE PRESIDENT | 8 | $0 |
| MARINDA DU TOIT | TREASURER | 8 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 14, NATICK, MA 01760-0001
- In care of
- % KARA KILROY
- Signed the 990-EZ
- KARA KILROY, PRESIDENT/DIRECTOR
- Phone
- (413) 364-3310
- Website
- JANSEN-DEVRIES.ORG
- Return prepared by
- LERNER & COMPANY
Mission
THE JANSEN DE VRIES SYNDROME FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY JDVS THROUGH BUILDING COMMUNITY, SPREADING AWARENESS AND SUPPORTING RESEARCH.
Program accomplishments
- THROUGH FUNDRAISING AND GRANT EFFORTS, THE FOUNDATION WORKS TO PROVIDE RESEARCHERS THE RESOURCES NECESSARY TO GAIN A BETTER UNDERSTANDING OF THE PPM1D MUTATION AND DEVELOP POTENTIAL TREATMENTS AND THERAPIES TO ULTIMATELY IMPROVE THE LIVES OF THOSE LIVING WITH THIS RARE GENETIC CONDITION.Expenses $116,807 · grants $10,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 85-4064822
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G01)
- Assets (IRS master file)
- $63,793
- Income (IRS master file)
- $131,193
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $131,193 | $116,807 | $63,793 | IRS |
| 990-EZ | December 2024 | $38,593 | $74,242 | $49,392 | XML |
| 990-EZ | December 2023 | $104,495 | $60,827 | $85,041 | XML |
| 990-EZ | December 2022 | $25,569 | $3,738 | $41,373 | XML |
| 990-EZ | December 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 85-4064822).
Questions about JANSEN DE VRIES SYNDROME FOUNDATION
- What is the EIN of JANSEN DE VRIES SYNDROME FOUNDATION?
- The employer identification number (EIN) of JANSEN DE VRIES SYNDROME FOUNDATION is 85-4064822.
- Is JANSEN DE VRIES SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to JANSEN DE VRIES SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does JANSEN DE VRIES SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of JANSEN DE VRIES SYNDROME FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did JANSEN DE VRIES SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of JANSEN DE VRIES SYNDROME FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does JANSEN DE VRIES SYNDROME FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $131,193, expenses of $116,807 and total assets of $63,793 at year end.
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All nonprofits in NATICK · Massachusetts · Voluntary health associations and medical disciplines