2025-11-14T11:21:54-06:00 2024-12-31 043191789 MP PC ONE MONARCH PLACE SPRINGFIELD MA 01144 990EZ 2024-01-01 854064822 THE JANSEN DE VRIES SYNDROME FOUNDATION INC JANS 4133643310 PO BOX 14 NATICK MA 01760 KARA KILROY PRESIDENT/DIRECTOR 4133643310 2025-11-10 1 1 PATRICK LEARY P00638212 4137391800 2024 2025-03-06 01:10:19Z X JANSEN-DEVRIES.ORG X X 38593 X 37621 972 38593 55400 2074 240 16528 74242 -35649 85041 0 49392 43667 49392 85041 49392 0 0 85041 49392 X THE FOUNDATION IS FOCUSED ON PROVIDING EDUCATION AND RESOURCES TO BOTH FAMILIES AND MEDICAL PROFESSIONALS. ITS GOAL IS TO RAISE AWARENESS ABOUT THIS RARE GENETIC CONDITION AND UNITE FAMILIES, RESEARCHERS, AND MEDICAL PROFESSIONALS THROUGH THE FACILITATION OF A PATIENT REGISTRY PROGRAM. THROUGH FUNDRAISING AND GRANT EFFORTS, THE FOUNDATION WORKS TO PROVIDE RESEARCHERS THE RESOURCES NECESSARY TO GAIN A BETTER UNDERSTANDING OF THE PPM1D MUTATION AND DEVELOP POTENTIAL TREATMENTS AND THERAPIES TO ULTIMATELY IMPROVE THE LIVES OF THOSE LIVING WITH THIS RARE GENETIC CONDITION. 55400 X 74242 74242 KARA KILROY PRESIDENT/DIRECTOR 8.00 0 0 0 RACHEL HORNE SECRETARY/VICE PRESIDENT 8.00 0 0 0 MARINDA DU TOIT TREASURER 8.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 MA MARINDA DU TOIT 9224 CONEY ISLAND DRIVE BAKERSFIELD CA 93311 6613310877 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 22428 24737 108548 37621 193334 834 834 23262 24737 108548 37621 194168 0 0 0 194168 23262 24737 108548 37621 194168 1.00000 1.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990-EZ, PART I, LINE 8 - OTHER REVENUE DESCRIPTION: CREDIT CARD REFUND. AMOUNT: 972. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: RESEARCH. GRANTEE NAME: STICHTING RADBOUND FONDS. GRANTEE ADDRESS: POSTBUS 9102 NIJMEGAN, NETHERLANDS 6500 HC. DATE OF GIFT: 08/26/24. AMOUNT GIVEN: 50,000. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: KEIRA CALLIOPE WHITMORE. GRANTEE ADDRESS: 6111 W. BERENICE AVE CHICAGO, IL 60634. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: TOMAS ZHUNIO. GRANTEE ADDRESS: 8 2ND AVE. OSSINING, NY 10562. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: FINN PERRY. GRANTEE ADDRESS: 144 SHRAPNEL ROAD CANNON HILL, QUEENSLAND, AUSTRALIA. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 200. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: MASON MOORE. GRANTEE ADDRESS: 3413 DURELLO CIRCLE RANCHO CORDOVA, CA 95670. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: ARIES LARIMER. GRANTEE ADDRESS: 22 BALLMAN ROAD ETNA, OH 43068. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: MARIA SKRASHCHUK. GRANTEE ADDRESS: TOLBUHINA STREET, 7-1-164 MOSCOW, RUSSIA. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: RAF HAENEN. GRANTEE ADDRESS: ACHTERSCHOUFFERT 3 EYGELSHOVEN, LIMBURG, NETHERLANDS. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: ELOISE WATKINS. GRANTEE ADDRESS: 2286 EAST PASTURE DRIVE ST. GEORGE, UT 84790. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: UZZIAH YNIGUEZ. GRANTEE ADDRESS: 886 W. HAWES AVE FRESNO, CA 93706. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: FREYA CAMPBELL. GRANTEE ADDRESS: 50 WELLINGTON STREET6411 PIERLESS AVE HERTFORD, HERTFORDSHIRE, UNITED KINGDOM. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 200. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: JOSHUA CORONADO. GRANTEE ADDRESS: 6411 PIERLESS AVE SUGAR HILL, GA 30518. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: GEORGE HYNES. GRANTEE ADDRESS: 8 CHASE DRIVE ELLESMERE PORT, UNITED KINGDOM. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 200. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: BLAKE HAWTHORNE. GRANTEE ADDRESS: 4028 W LEISA SPRINGFIELD, MO 65802. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: SAMUELE MARTURANO. GRANTEE ADDRESS: VIA ALESSANDRO LUZIO 24 ROMA, ITALY. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: DIONISIOS DONOS. GRANTEE ADDRESS: 6 KOUTSAFTA STREET ATHENS, GREECE. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 55,400. FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: OFFICE EXPENSE. AMOUNT: 1,466. DESCRIPTION: WEBSITE COSTS. AMOUNT: 158. DESCRIPTION: GIFTS. AMOUNT: 27. DESCRIPTION: SOFTWARE SUBSCRIPTIONS. AMOUNT: 1,146. DESCRIPTION: INSURANCE. AMOUNT: 1,968. DESCRIPTION: TRAVEL. AMOUNT: 9,592. DESCRIPTION: SERVICE FEE. AMOUNT: 185. DESCRIPTION: GLOBAL GENES SUBSCRIPTION. AMOUNT: 1,950. DESCRIPTION: OFFICE OF MASSACHUSETTS. AMOUNT: 36. TOTAL TO FORM 990-EZ, LINE 16: 16,528. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.