2024-02-14T09:33:53-06:00 2022-12-31 043191789 MP PC ONE MONARCH PLACE SPRINGFIELD MA 01144 990EZ 2022-01-01 854064822 THE JANSEN DE VRIES SYNDROME FOUNDATION INC JANS PO BOX 14 NATICK MA 01760 KARA KILROY PRESIDENT/DIRECTOR 2024-01-17 1 KARA KILROY 999009999 0 PATRICK LEARY P00638212 4137391800 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z X JANSEN-DEVRIES.ORG X X 25569 X 24737 832 832 25569 800 88 2850 3738 21831 19542 0 41373 19542 19044 19542 41373 0 0 19542 41373 X THE FOUNDATION IS FOCUSED ON PROVIDING EDUCATION AND RESOURCES TO BOTH FAMILIES AND MEDICAL PROFESSIONALS. ITS GOAL IS TO RAISE AWARENESS ABOUT THIS RARE GENETIC CONDITION AND UNITE FAMILIES, RESEARCHERS, AND MEDICAL PROFESSIONALS THROUGH THE FACILITATION OF A PATIENT REGISTRY PROGRAM. THROUGH FUNDRAISING AND GRANT EFFORTS, THE FOUNDATION WORKS TO PROVIDE RESEARCHERS THE RESOURCES NECESSARY TO GAIN A BETTER UNDERSTANDING OF THE PPM1D MUTATION AND DEVELOP POTENTIAL TREATMENTS AND THERAPIES TO ULTIMATELY IMPROVE THE LIVES OF THOSE LIVING WITH THIS RARE GENETIC CONDITION. 5000 3738 3738 KARA KILROY PRESIDENT/DIRECTOR 8.00 0 0 0 RACHEL HORNE SECRETARY/VICE PRESIDENT 8.00 0 0 0 MARINDA DU TOIT TREASURER 8.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 MA MARINDA DU TOIT 9224 CONEY ISLAND DRIVE BAKERSFIELD CA 93311 6613310877 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 22428 24737 47165 834 834 23262 24737 47999 0 0 0 47999 23262 24737 47999 1.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990-EZ, PART I, LINE 7 - SALES OF INVENTORY INCOME: GROSS RECEIPTS: 832. RETURNS AND ALLOWANCES: 0. LESS COST OF GOODS SOLD: 0. GROSS PROFIT: 832. FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: JANSEN DE VRIES SYNDROME FOUNDATION UPLIFT GRANT. GRANTEE NAME: VARIOUS. PROPERTY DESCRIPTION: CASH. AMOUNT GIVEN: 800. FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: OFFICE EXPENSES. AMOUNT: 238. DESCRIPTION: BUSINESS TAXES & FEES. AMOUNT: 35. DESCRIPTION: WEBSITE COSTS. AMOUNT: 221. DESCRIPTION: GIFTS. AMOUNT: 89. DESCRIPTION: SOFTWARE SUBSCRIPTIONS. AMOUNT: 490. DESCRIPTION: INSURANCE. AMOUNT: 9. DESCRIPTION: TRAVEL. AMOUNT: 442. DESCRIPTION: ACCOMMODATIONS. AMOUNT: 1,326. TOTAL TO FORM 990-EZ, LINE 16: 2,850. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.