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Nonprofit · EIN 83-2498576

HAE INTERNATIONAL

Tax-exempt · FAIRFAX, VA 22030

Financials

$6M$4.7M2023$6.6M$4.7M2024
Revenue Expenses · by fiscal year end
Financials of HAE INTERNATIONAL by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$6,614,500$4,728,926$1,885,574$7,104,376$50,400$7,053,976
December 31, 2023990$6,004,421$4,681,824$1,322,597$5,191,402$23,000$5,168,402
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$6,358,144
Program service revenue
$2,360
Investment income
$253,996
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Legal fees
$8,036
Travel
$1,837,163
Program services (functional)
$4,472,162
Management and general (functional)
$256,764

Balance sheet and other

Total assets, start of year
$5,191,402
Total assets, end of year
$7,104,376
Total liabilities, end of year
$50,400
Net assets, end of year
$7,053,976
Net assets without donor restrictions
$7,053,976
Gross receipts
$6,614,500
Employees
0
Volunteers
20
Year formed
2018
State of legal domicile
VA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
Sarah Smith FoltzDirector
Trustee or director
1$0
Jorn Schultz-BoysenDirector
Trustee or director
1$0
Rachel AnnalsDirector
Trustee or director
1$0
Beverley YamamotoDirector
Trustee or director
1$0
Natasha Jovanovska PopovskaDirector
Trustee or director
1$0
Anthony J CastaldoPresident
Trustee or director, Officer
3$0
Michal RutkowskiVice President
Trustee or director, Officer
2$0
Fiona Nancy WardmanTreasurer
Trustee or director, Officer
2$0
990 for the year ended December 31, 2023: 8 people
NameTitleHours / weekCompensation
Rachel AnnalsDirector
Trustee or director
1$0
Jorn Schultz-BoysenDirector
Trustee or director
1$0
Natasha Jovanovska PopovskaDirector
Trustee or director
1$0
Beverley YamamotoDirector
Trustee or director
1$0
Sarah Smith FoltzDirector
Trustee or director
1$0
Anthony J CastaldoPresident
Trustee or director, Officer
3$0
Michal RutkowskiVice President
Trustee or director, Officer
2$0
Finoa Nancy WardmanTreasurer
Trustee or director, Officer
2$0

Address and contacts

Address (IRS master file)
10560 MAIN ST STE PS40, FAIRFAX, VA 22030-7114
In care of
% ANTHONY J CASTALDO
Signed the 990
ANTHONY J CASTALDO, President
Phone
(866) 798-5598
Website
HAEI.org
Return prepared by
Allan Smith and Company CPAs PC

Mission

A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies.

990 for the year ended December 31, 2024

Program accomplishments

  • Development of a global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies for individuals.
    Expenses $4,472,162 · grants $252,936 · revenue $6,358,144

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
83-2498576
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2019
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H80)
Assets (IRS master file)
$7,104,376
Income (IRS master file)
$6,614,500

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$6,614,500$4,728,926$7,104,376XML
990December 2023$6,004,421$4,681,824$5,191,402XML
990December 2022$3,911,197$3,240,358$3,877,605IRS
990December 2021–––IRS
990December 2020–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-2498576).

Questions about HAE INTERNATIONAL

What is the EIN of HAE INTERNATIONAL?
The employer identification number (EIN) of HAE INTERNATIONAL is 83-2498576.
Is HAE INTERNATIONAL tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
Are donations to HAE INTERNATIONAL tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does HAE INTERNATIONAL file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of HAE INTERNATIONAL due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did HAE INTERNATIONAL last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who are the officers and directors of HAE INTERNATIONAL?
The 990 for the year ended December 31, 2024 lists 8 people; 0 received compensation from the organization.
How much revenue does HAE INTERNATIONAL have?
On its 990 for the year ended December 31, 2024 it reported revenue of $6,614,500, expenses of $4,728,926 and total assets of $7,104,376 at year end.

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