2025-10-30T14:33:28-04:00 2024-12-31 Allan Smith and Company CPAs PC Two Cabot Place Suite 8 Stoughton MA 02072 990 2024-01-01 832498576 HAE International % Anthony J Castaldo HAEI 8667985598 10560 Main Street STE PS40 Fairfax VA 22030 ANTHONY J CASTALDO President 8667985598 2025-10-03 true true ALLAN SMITH CPA P00825089 7742065553 2025-10-30 2024 2025-03-06 01:10:19Z 6614500 false X HAEI.org X 2018 VA A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies. 8 8 0 20 0 0 5833440 6358144 5175 2360 165806 253996 0 6004421 6614500 0 0 0 0 0 4681824 4728926 4681824 4728926 1322597 1885574 5191402 7104376 23000 50400 5168402 7053976 A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies. false false 4472162 252936 6358144 Development of a global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies for individuals. 4472162 true true false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false true false false false false false false false false false false true 2 0 true 0 false true DA false false false false false false false false false false false false X 8 8 false false false false false false false true true false false true true true true false true false false false VA X X The Organization 8667985598 10560 Main Street STE PS40 Fairfax VA 22030 X Sarah Smith Foltz Director 1.00 0.00 X 0 0 0 Jorn Schultz-Boysen Director 1.00 0.00 X 0 0 0 Rachel Annals Director 1.00 0.00 X 0 0 0 Beverley Yamamoto Director 1.00 0.00 X 0 0 0 Natasha Jovanovska Popovska Director 1.00 0.00 X 0 0 0 Anthony J Castaldo President 3.00 0.00 X X 0 0 0 Michal Rutkowski Vice President 2.00 0.00 X X 0 0 0 Fiona Nancy Wardman Treasurer 2.00 0.00 X X 0 0 0 0 0 0 0 false false false 6358144 6358144 Gain in foreign exchang 900099 2360 2360 2360 253996 253996 0 6614500 2360 0 253996 8036 6429 1607 19755 15804 3951 12682 11541 1141 1837163 1589146 248017 167836 167836 1391 1391 Global member advocacy cons 1443881 1443881 Member outreach communicati 334831 334831 Member network development 644543 644543 258808 256760 2048 4728926 4472162 256764 0 5191402 7104376 5191402 7104376 23000 50400 23000 50400 X 5168402 7053976 5168402 7053976 5191402 7104376 1885574 0 X false false false X 1384323 2667782 3888538 5833440 6358144 20132227 1384323 2667782 3888538 5833440 6358144 20132227 12624165 7508062 2047 22659 165806 253996 444508 20576735 0.36490 0.48240 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe including Iceland and Greenland 1 Program services Advocacy Education 1118041 East Asia and the Pacific Program services Advocacy Education 894432 Central America and the Caribbean Program services Advocacy Education 447216 South Asia Program services Advocacy Education 447216 Middle East and North Africa Program services Advocacy Education 447216 South America Program services Advocacy Education 670825 Sub-Saharan Africa Program services Advocacy Education 447216 1 1 4472162 4472162 Fiona Wardman Director HAEI Sienter 225381 Identify HAE patients local health coordinat false Michael Rutkowski Director HAEI AEE Services 128403 Identify HAE patients local health coordinat false Anthony J Castaldo Director HAEI RDAG LLC 120000 Manage research activities false Rachel Annals Director HAEI Vezar 101763 Coordinator ADCARE and global advocacy false Officer directors etc family relationship Part VI line 2 Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances. Form 990 governing body review Part VI line 11 The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return. Conflict of interest policy compliance Part VI line 12c The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities. CEO executive director top management comp Part VI line 15a The President and Chair of the Board of Directors provides guidance and directive at no expense to the Organization. Governing documents etc available to public Part VI line 19 The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.