Nonprofit · EIN 82-5476655
CMT RESEARCH FOUNDATION INC
Tax-exempt · BROOKHAVEN, GA 30319
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $8,662,522 | $4,587,545 | $4,074,977 | $8,705,044 | $312,043 | $8,393,001 |
| June 30, 2024 | 990 | $4,624,073 | $4,074,218 | $549,855 | $4,673,303 | $355,279 | $4,318,024 |
| June 30, 2023 | 990 | $3,526,505 | $3,602,656 | -$76,151 | $4,029,470 | $261,301 | $3,768,169 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $8,471,921
- Program service revenue
- $83,947
- Investment income
- $106,654
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $2,056,600
- Compensation of officers, directors and key employees
- $992,212
- Other salaries and wages
- $287,161
- Salaries, compensation and benefits (total)
- $1,389,028
- Professional fundraising fees
- $113,540
- Legal fees
- $166,747
- Accounting fees
- $91,573
- Travel
- $186,121
- Program services (functional)
- $3,224,540
- Management and general (functional)
- $479,556
- Fundraising (functional)
- $883,449
Balance sheet and other
- Total assets, start of year
- $4,673,303
- Total assets, end of year
- $8,705,044
- Total liabilities, end of year
- $312,043
- Net assets, end of year
- $8,393,001
- Net assets without donor restrictions
- $5,064
- Net assets with donor restrictions
- $8,387,937
- Gross receipts
- $8,678,472
- Employees
- 11
- Volunteers
- 50
- Year formed
- 2018
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Erich Fasnacht | Chief Operations Officer Officer | 40 | $240,000 | $9,886 |
| Anna Price | VP of Philanthropy Officer | 40 | $163,132 | $28,667 |
| Cleary Simpson | Vice-Chair / CEO thru 10/16/24 Trustee or director, Officer | 2 | $183,333 | $0 |
| Riann Egusquiza | Director of Research Highest-paid employee | 40 | $151,896 | $8,593 |
| Laura MacNeill | Chief Executive Officer Trustee or director, Officer | 40 | $73,613 | $303 |
| Susan Ruediger | Co-Founder & Chief Mission Officer Trustee or director, Officer | 20 | $38,226 | $23,531 |
| Peter DeSilva | Chair Trustee or director, Officer | 2 | $0 | $0 |
| Susan Canavari | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| Adam Kauffman | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Maximiliano Barrientos | Member Trustee or director | 1 | $0 | $0 |
| William Motley | Member Trustee or director | 2 | $0 | $0 |
| Thomas Sander | Member Trustee or director | 1 | $0 | $0 |
| Arthur Suckow | Member Trustee or director | 1 | $0 | $0 |
| Santo Caivano | Member Trustee or director | 1 | $0 | $0 |
| Ann Fairchild | Member Trustee or director | 1 | $0 | $0 |
990 for the year ended June 30, 2024: 12 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Erich Fasnacht | Chief Operations Officer Officer | 40 | $230,000 | $9,771 |
| Cleary Simpson | CEO Trustee or director, Officer | 40 | $215,000 | $0 |
| Anna Price | VP of Philanthropy Officer | 40 | $114,812 | $15,651 |
| Susan Ruediger | Founder & Chief Mission Officer Trustee or director, Officer | 40 | $29,737 | $30,285 |
| Peter DeSilva | Chair Trustee or director, Officer | 2 | $0 | $0 |
| Susan Canavari | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| Adam Kauffman | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Maximiliano Barrientos | Member Trustee or director | 2 | $0 | $0 |
| William Motley | Member Trustee or director | 2 | $0 | $0 |
| Thomas Sander | Member Trustee or director | 1 | $0 | $0 |
| Arthur Suckow | Member Trustee or director | 1 | $0 | $0 |
| Santo Caivano | Member Trustee or director | 1 | $0 | $0 |
990 for the year ended June 30, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Erich Fasnacht | Chief Operations Officer Officer | 40 | $230,000 | $9,975 |
| Keith Fargo | Chief Scientific Officer Officer | 40 | $200,458 | $10,345 |
| Susan Ruediger | Founder & Chief Mission Officer Trustee or director, Officer | 40 | $168,941 | $33,936 |
| Cleary Simpson | CEO Trustee or director, Officer | 40 | $191,665 | $0 |
| Patrick Livney | Founder & Chairman Trustee or director, Officer | 2 | $0 | $0 |
| Susan Canavari | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| Adam Kauffman | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Paul August | Member Trustee or director | 2 | $0 | $0 |
| Maximiliano Barrientos | Member Trustee or director | 1 | $0 | $0 |
| Peter DeSilva | Member Trustee or director | 2 | $0 | $0 |
| Joseph Mulvey | Member Trustee or director | 1 | $0 | $0 |
| William Motley | Member Trustee or director | 2 | $0 | $0 |
| Thomas Sander | Member Trustee or director | 1 | $0 | $0 |
| Arthur Suckow | Member Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 4062 PEACHTREE RD NE STE A209, BROOKHAVEN, GA 30319-3021
- In care of
- % SUSAN RUEDIGER
- Principal officer (990 for 2024)
- Erich Fasnacht, 4062 Peachtree Road A209, Atlanta, GA 30319
- Signed the 990
- Erich Fasnacht, COO
- Phone
- (404) 806-7180
- Website
- cmtrf.org
- Return prepared by
- JONES AND KOLB
Mission
With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).
Program accomplishments
- Support the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders.Expenses $3,224,540 · grants $2,056,600 · revenue $83,947
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 82-5476655
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H50)
- Assets (IRS master file)
- $8,705,044
- Income (IRS master file)
- $8,678,472
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $8,662,522 | $4,587,545 | $8,705,044 | XML |
| 990-T | June 2025 | – | – | – | IRS |
| 990 | June 2024 | $4,624,073 | $4,074,218 | $4,673,303 | XML |
| 990-T | June 2024 | – | – | – | IRS |
| 990 | June 2023 | $3,526,505 | $3,602,656 | $4,029,470 | XML |
| 990-T | June 2023 | – | – | – | IRS |
| 990 | June 2022 | $4,352,285 | $2,599,551 | $3,915,699 | IRS |
| 990-T | June 2022 | – | – | – | IRS |
| 990 | June 2021 | $467,004 | $854,568 | $2,372,395 | IRS |
| 990-T | June 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-T | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-5476655).
Questions about CMT RESEARCH FOUNDATION INC
- What is the EIN of CMT RESEARCH FOUNDATION INC?
- The employer identification number (EIN) of CMT RESEARCH FOUNDATION INC is 82-5476655.
- Is CMT RESEARCH FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to CMT RESEARCH FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CMT RESEARCH FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CMT RESEARCH FOUNDATION INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CMT RESEARCH FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of CMT RESEARCH FOUNDATION INC?
- The 990 for the year ended June 30, 2025 names Erich Fasnacht.
- Who are the officers and directors of CMT RESEARCH FOUNDATION INC?
- The 990 for the year ended June 30, 2025 lists 15 people; 6 received compensation from the organization, the highest $240,000 (Erich Fasnacht, Chief Operations Officer).
- How much revenue does CMT RESEARCH FOUNDATION INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $8,662,522, expenses of $4,587,545 and total assets of $8,705,044 at year end.
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