2026-02-11T16:26:47-06:00 2025-06-30 581763570 JONES AND KOLB 3475 PIEDMONT ROAD NE SUITE 1500 ATLANTA GA 30305 990 2024-07-01 825476655 CMT Research Foundation Inc CMTR 4048067180 4062 Peachtree Road A209 Atlanta GA 30319 Erich Fasnacht COO 4048067180 2026-02-10 1 0 ANN M THOMPSON P00719770 4042627920 2024 2025-03-06 01:10:19Z Erich Fasnacht 4062 Peachtree Road A209 Atlanta GA 30319 8678472 0 X cmtrf.org X 2018 IL To fund research which delivers treatments and cures to end Charcot-Marie-Tooth (CMT). 12 9 11 50 0 0 4403498 8471921 117193 83947 103382 106654 0 0 4624073 8662522 1774490 2056600 0 0 1147866 1389028 84481 113540 883449 1067381 1028377 4074218 4587545 549855 4074977 4673303 8705044 355279 312043 4318024 8393001 With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT). 0 0 3224540 2056600 83947 Support the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders. 3224540 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 21 0 1 11 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 12 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 GA X X The Organization 4048067180 4062 Peachtree Road Suite A209 Atlanta GA 30319 Laura MacNeill Chief Executive Officer 40.00 X X 73613 0 303 Erich Fasnacht Chief Operations Officer 40.00 X 240000 0 9886 Anna Price VP of Philanthropy 40.00 X 163132 0 28667 Cleary Simpson Vice-Chair / CEO thru 10/16/24 2.00 X X 183333 0 0 Riann Egusquiza Director of Research 40.00 X 151896 0 8593 Susan Ruediger Co-Founder & Chief Mission Officer 20.00 X X 38226 0 23531 Peter DeSilva Chair 2.00 X X 0 0 0 Susan Canavari Secretary 1.00 X X 0 0 0 Adam Kauffman Treasurer 1.00 X X 0 0 0 Maximiliano Barrientos Member 1.00 X 0 0 0 William Motley Member 2.00 X 0 0 0 Thomas Sander Member 1.00 X 0 0 0 Arthur Suckow Member 1.00 X 0 0 0 Santo Caivano Member 1.00 X 0 0 0 Ann Fairchild Member 1.00 X 0 0 0 850200 0 70980 4 0 1 0 Schaner & Lubitz PLLC 4550 Montgomery Ave Ste 1100N Bethesda MD 20814 Legal Services 275044 1 70800 8401121 8471921 Convention Revenue 900099 83947 83947 83947 106654 106654 15950 70800 15950 0 8662522 83947 0 106654 1733412 1733412 16970 16970 306218 306218 992212 479619 163197 349396 287161 174500 81750 30911 11312 6626 3447 1239 11807 6916 3598 1293 86536 45253 17299 23984 166747 166710 37 91573 9157 82416 113540 113540 97382 27388 33778 36216 225439 2574 27633 195232 67921 4756 25968 37197 186121 112074 16430 57617 144326 122643 1683 20000 9845 9845 Miscellaneous 31732 2433 12475 16824 Association Fees 7291 7291 4587545 3224540 479556 883449 37686 131374 3407330 3048897 1140728 5398775 87559 125998 4673303 8705044 340049 300893 15230 11150 355279 312043 X 1262355 5064 3055669 8387937 4318024 8393001 4673303 8705044 4074977 0 X 0 1 X 1 0 X 216898 4349158 3401534 4403498 8471921 20843009 216898 4349158 3401534 4403498 8471921 20843009 10253639 10589370 106 3127 76362 103382 106654 289631 21132640 0.50110 0.69870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 8662522 0 8662522 0 8662522 4587545 0 4587545 0 4587545 1 0 0 0 0 0 0 0 0 0 Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, Belgium Collaborative research agreement 246349 Wire Transfer 0 Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, Belgium Collaborative research agreement 42625 Wire Transfer 0 Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, Belgium Collaborative research agreement 17244 Wire Transfer 0 0 0 0 0 0 0 Part I, Line 1: The Foundation executes collaborative research agreements with organizations that have expertise in the field of research, development, and commercialization of therapeutic and diagnostic agents for human diseases and conditions. The Foundation ensures the grants and other assistance are used in accordance with the terms of the collaborative research agreements and produce results which help the Organization further its mission. X X 0 Allegiance Group 219 Roswell Street Alpharetta GA 30009 Digital Advertising 0 0 41075 0 Lotos Nile PO Box 90245 Nashville TN 37209 Marketing Services 0 0 16265 0 House of Search 65 Enterprise Aliso Viejo CA 92656 Marketing Services 0 0 25200 0 Schultz & Williams 11617 John F Kennedy Blvd 1700 Philadelphia PA 19103 Campaign Feasibility Study 0 0 31000 0 113540 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY Ohio What a Night 86750 70800 15950 15950 86750 70800 15950 15950 15950 0 1 Chicago Association for Research and Education in Science 5000 South 5th Avenue Hines TN 37235 20440 0 Collaborative research agreement Nationwide Children's Hospital 700 Childrens Drive Columbus OH 43205 392096 0 Collaborative research agreement University of Illinois at Chicago 1737 West Polk Street 304 AOB Chicago IL 60612 207892 0 Collaborative research agreement Vanderbilt University 2201 West End Avenue Nashville TN 37235 260803 0 Collaborative research agreement Alloy Therapeutics Inc 275 Second Avenue Ste 200 Waltham MA 02451 500000 0 Collaborative research agreement University of Miami 1320 S Dixie Highway Ste 650 Coral Gables FL 33146 142681 0 Collaborative research agreement ASHA Therapeutics LLC 3802 Spectrum Blvd Ste 146 Tampa FL 33612 209500 0 Collaborative research agreement Emerging Researchers Awards 16 16970 Part I, Line 2: The Foundation executes collaborative research agreements with organizations that have expertise in the field of research, development, and commercialization of therapeutic and diagnostic agents for human diseases and conditions. The Foundation ensures the grants and other assistance are used in accordance with the terms of the collaborative research agreements and produce results which help the Organization further its mission. Part III The Foundation provides grants to support early-career researchers currently conducting research on human diseases and conditions. The Foundation ensures the grants are used in accordance with the terms of the grant agreements. X X 0 0 0 0 0 0 0 0 0 Erich Fasnacht Chief Operations Officer 240000 0 0 0 0 0 9648 0 238 0 249886 0 0 0 Anna Price VP of Philanthropy 163132 0 0 0 0 0 7048 0 21619 0 191799 0 0 0 Cleary Simpson Vice-Chair / CEO thru 10/16/24 183333 0 0 0 0 0 0 0 0 0 183333 0 0 0 Riann Egusquiza Director of Research 151896 0 0 0 0 0 0 0 8593 0 160489 0 0 0 X 2 1297680 Avg Trading Value 0 1 0 Form 990, Part VI, Section B, line 11b The draft of the tax return is provided to the Organization's Board of Directors prior to filing. The comments received are addressed by management and the tax return preparer. Once the comments have been addressed, the tax return is signed by an officer of the Organization and filed. Form 990, Part VI, Section B, line 12c Annually, the Foundation requires officers, directors and key employees to affirm that no conflicts of interest exist. Potential conflicts are addressed on a case by case basis, consistent with the Foundation's written conflict of interest policy. Form 990, Part VI, Section B, line 15 The Foundation's independent Board of Directors determines the CEO's compensation. The CEO and COO determine the salaries of all other staff. Form 990, Part VI, Section C, line 19 The Organization makes its financial statements available on its website and its governing documents and conflict of interest policy available to the public upon request.