2025-03-29T12:20:36-05:00 2024-06-30 581763570 JONES AND KOLB 3475 PIEDMONT ROAD NE SUITE 1500 ATLANTA GA 30305 990 2023-07-01 825476655 CMT Research Foundation Inc CMTR 4048067180 4062 Peachtree Road A209 Atlanta GA 30319 Erich Fasnacht COO 4048067180 2025-03-20 1 0 ANN M THOMPSON P00719770 4042627920 2023 2025-03-06 01:10:19Z Erich Fasnacht 4062 Peachtree Road A209 Atlanta GA 30319 4626850 0 X cmtrf.org X 2018 IL To fund research which delivers treatments and cures to end Charcot-Marie-Tooth (CMT). 10 8 9 50 0 0 3401534 4403498 48609 117193 76362 103382 0 0 3526505 4624073 1835388 1774490 0 0 946566 1147866 134491 84481 834407 686211 1067381 3602656 4074218 -76151 549855 4029470 4673303 261301 355279 3768169 4318024 With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT). 0 0 2915936 1774490 117193 Support the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders. 2915936 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 13 0 1 9 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 10 8 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 GA X X The Organization 4048067180 4062 Peachtree Road Suite A209 Atlanta GA 30319 Peter DeSilva Chair 2.00 X X 0 0 0 Susan Ruediger Founder & Chief Mission Officer 40.00 X X 29737 0 30285 Susan Canavari Secretary 1.00 X X 0 0 0 Adam Kauffman Treasurer 1.00 X X 0 0 0 Cleary Simpson CEO 40.00 X X 215000 0 0 Maximiliano Barrientos Member 2.00 X 0 0 0 William Motley Member 2.00 X 0 0 0 Thomas Sander Member 1.00 X 0 0 0 Arthur Suckow Member 1.00 X 0 0 0 Santo Caivano Member 1.00 X 0 0 0 Erich Fasnacht Chief Operations Officer 40.00 X 230000 0 9771 Anna Price VP of Philanthropy 40.00 X 114812 0 15651 589549 0 55707 3 0 1 0 0 81743 4321755 432348 4403498 Convention Revenue 900099 117193 117193 117193 103382 103382 2777 81743 2777 0 4624073 117193 0 103382 1531947 1531947 242543 242543 671901 213710 29641 428550 343502 260867 61537 21098 44485 20539 218 23728 16165 9795 3331 3039 71813 36275 1973 33565 282920 259345 22575 1000 43939 4394 39545 84481 84481 166266 36786 74261 55219 76613 303 7089 69221 103794 4096 18260 81438 159904 127191 8523 24190 142475 111282 28766 2427 1052 1052 Miscellaneous 90418 56863 27104 6451 4074218 2915936 323875 834407 466788 37686 2130573 3407330 1413262 1140728 18847 87559 4029470 4673303 174134 340049 87167 15230 261301 355279 X 570361 1262355 3197808 3055669 3768169 4318024 4029470 4673303 549855 0 X 0 1 X 1 0 X 1686278 216898 4349158 3401534 4403498 14057366 1686278 216898 4349158 3401534 4403498 14057366 4106949 9950417 1330 106 3127 76362 103382 184307 14241673 0.69870 0.65670 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 4624073 0 4624073 0 4624073 4074218 0 4074218 0 4074218 1 0 0 0 0 0 0 0 0 0 Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, Belgium Collaborative research agreement 176550 Wire Transfer 0 Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, Belgium Collaborative research agreement 45375 Wire Transfer 0 Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, Belgium Collaborative research agreement 20618 Wire Transfer 0 0 0 0 0 0 0 Part I, Line 1: The Foundation executes collaborative research agreements with organizations that have expertise in the field of research, development and commercialization of therapeutic and diagnostic agents for human diseases and conditions. The Foundation ensures the grants and other assistance are used in accordance with the terms of the collaborative research agreements and produce results which help the Organization further its mission. X X 0 Allegiance Group 219 Roswell Street Alpharetta GA 30009 Digital Advertising 0 0 69307 0 Lotos Nile PO Box 90245 Nashville TN 37209 Marketing Services 0 0 15174 0 84481 Golf Tournament 84520 81743 2777 2777 84520 81743 2777 2777 2777 0 1 Chicago Association for Research and Education in Science 5000 South 5th Avenue Hines TN 37235 20000 0 Collaborative research agreement Nationwide Children's Hospital 700 Childrens Drive Columbus OH 43205 190382 0 Collaborative research agreement University of Illinois at Chicago 1737 West Polk Street 304 AOB Chicago IL 60612 143124 0 Collaborative research agreement Vanderbilt University 2201 West End Avenue Nashville TN 37235 277631 0 Collaborative research agreement Georgia Tech Research Corporation 926 Dalney Street NW Atlanta GA 303320415 38130 0 Collaborative research agreement University of Miami 1320 S Dixie Highway Ste 650 Coral Gables FL 33146 142681 0 Collaborative research agreement Armatus Bio Inc 1275 Kinnear Road Columbus OH 43212 570999 0 Collaborative research agreement ReviR Therapeutics Inc 150 North Hill Drive Brisbane CA 94005 146000 0 Collaborative research agreement Part I, Line 2: The Foundation executes collaborative research agreements with organizations that have expertise in the field of research, development and commercialization of therapeutic and diagnostic agents for human diseases and conditions. The Foundation ensures the grants and other assistance are used in accordance with the terms of the collaborative research agreements and produce results which help the Organization further its mission. X X 0 0 0 0 0 0 0 0 0 Erich Fasnacht Chief Operations Officer 200000 0 30000 0 0 0 8380 0 1391 0 239771 0 0 0 Cleary Simpson CEO 200000 0 15000 0 0 0 0 0 0 0 215000 0 0 0 X 432348 Avg Trading Value 0 0 0 Form 990, Part VI, Section B, line 11b The draft of the tax return is provided to the Organization's Board of Directors prior to filing. The comments received are addressed by management and the tax return preparer. Once the comments have been addressed, the tax return is signed by an officer of the Organization and filed. Form 990, Part VI, Section B, line 12c Annually, the Foundation requires officers, directors and key employees to affirm that no conflicts of interest exist. Potential conflicts are addressed on a case by case basis, consistent with the Foundation's written conflict of interest policy. Form 990, Part VI, Section B, line 15 The Foundation's independent Board of Directors determines the CEO's compensation. The CEO and COO determine the salaries of all other staff. Form 990, Part VI, Section C, line 19 The Organization makes its financial statements available on its website and its governing documents and conflict of interest policy available to the public upon request.