Nonprofit · EIN 81-1260031
WIEDEMANN-STEINER SYNDROME FOUNDATION
Tax-exempt · SACRAMENTO, CA 95819
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $280,420 | $102,671 | $177,749 | $1,199,609 | $41 | $1,199,568 |
| December 31, 2024 | 990 | $274,353 | $112,857 | $161,496 | $1,023,103 | $1,284 | $1,021,819 |
| December 31, 2023 | 990 | $235,716 | $22,177 | $213,539 | $860,323 | $0 | $860,323 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $253,990
- Program service revenue
- $0
- Investment income
- $30,939
- Net income from fundraising events
- -$4,799
- Other revenue
- -$4,509
Expenses
- Grants and similar amounts paid
- $30,000
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $8,855
- Program services (functional)
- $77,721
- Management and general (functional)
- $23,385
- Fundraising (functional)
- $1,565
Balance sheet and other
- Total assets, start of year
- $1,023,103
- Total assets, end of year
- $1,199,609
- Total liabilities, end of year
- $41
- Net assets, end of year
- $1,199,568
- Publicly traded securities
- $50,175
- Net assets without donor restrictions
- $1,199,568
- Gross receipts
- $285,219
- Employees
- 0
- Volunteers
- 30
- Year formed
- 2016
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LIBBY WOOLFORD | PRESIDENT Trustee or director, Officer | 10 | $0 |
| THOR MISKO | CHIEF OPERATING OFFICER Trustee or director, Officer | 4 | $0 |
| DREW SCHAEFER | TREASURER Trustee or director, Officer | 4 | $0 |
| KIM LAGRAVINESE | SECRETARY Trustee or director, Officer | 6 | $0 |
| TOBIAS DAVIS | BOARD MEMBER Trustee or director | 4 | $0 |
| SARAH SPEAR | BOARD MEMBER Trustee or director | 1 | $0 |
| ANNABEL CORBETT | BOARD MEMBER Trustee or director | 3.5 | $0 |
| ALEXANDRA GILLETT | BOARD MEMBER Trustee or director | 3 | $0 |
990 for the year ended December 31, 2024: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LIBBY WOOLFORD | PRESIDENT Trustee or director, Officer | 12 | $0 |
| THOR MISKO | SECRETARY Trustee or director, Officer | 4 | $0 |
| DREW SCHAEFER | TREASURER Trustee or director, Officer | 5 | $0 |
| DIEGO MAHECHA | BOARD MEMBER Trustee or director | 0 | $0 |
| KIM LAGRAVINESE | BOARD MEMBER Trustee or director | 3 | $0 |
| CHRISTINA O'KEEFFE | BOARD MEMBER Trustee or director | 9 | $0 |
| KRYSTAL THURMAN | BOARD MEMBER Trustee or director | 6 | $0 |
| ANNABEL CORBETT | BOARD MEMBER Trustee or director | 3.5 | $0 |
| ALEXANDRA GILLETT | BOARD MEMBER Trustee or director | 3 | $0 |
990 for the year ended December 31, 2023: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LIBBY WOOLFORD | PRESIDENT Trustee or director, Officer | 9 | $0 |
| THOR MISKO | SECRETARY Trustee or director, Officer | 5.1 | $0 |
| DREW SCHAEFER | TREASURER Trustee or director, Officer | 5 | $0 |
| DIEGO MAHECHA | BOARD MEMBER Trustee or director | 2 | $0 |
| KIM LAGRAVINESE | BOARD MEMBER Trustee or director | 5 | $0 |
| CHRISTINA O'KEEFFE | BOARD MEMBER Trustee or director | 9 | $0 |
| KRYSTAL THURMAN | BOARD MEMBER Trustee or director | 5 | $0 |
| ANNABEL CORBETT | BOARD MEMBER Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 1314 44TH ST, SACRAMENTO, CA 95819-4147
- Mailing address (990-N for 2017)
- 1601 42nd Street, Sacramento CA 95819
- Principal officer (990 for 2025)
- LIBBY WOOLFORD, 1314 44TH STREET, SACRAMENTO, CA 95819
- Principal officer (990-N for 2017)
- Libby Woolford, 1601 42nd Street, Sacramento CA 95819
- Signed the 990
- LIBBY WOOLFORD, PRESIDENT
- Phone
- (916) 502-2120
- Website
- www.wssfoundation.org
- Return prepared by
- GILBERT CPAS
California records
California keeps its own records of charities and corporations. Search them by EIN 81-1260031 or by the name WIEDEMANN-STEINER SYNDROME FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
THE WIEDEMANN-STEINER SYNDROME FOUNDATION PROVIDES EDUCATION, FOSTERS COMMUNITY, AND STIMULATES RESEARCH TO IMPROVE THE LIVES OF EVERYONE IMPACTED BY WSS.
Program accomplishments
- EXPANDED OUTREACH THROUGH ITS FAMILY VOLUNTEERS TO SERVE AS REGIONAL AMBASSADORS AND HOSTED SEVERAL IN-PERSON AND VIRTUAL ACTIVITIES TO RAISE AWARENESS OF WSS INCLUDING THE MONTHLY EXPERT VIRTUAL DISCUSSIONS TO EDUCATE THE WSS COMMUNITY, ANNUAL WSS QUADRATHALON, AND INTERNATIONAL WSS AWARENESS DAY.Expenses $77,721 · grants $30,000 · revenue $290
- RAISED AWARENESS AND SUPPORT TO INITIATE MEDICAL RESEARCH ON THE WSS GENE BY APPROVING FUNDING FOR A NEW NATURAL HISTORY STUDY TO BUILD ON THE WORK DONE THROUGH TWO PRIOR GRANTS IN PROGRESSING OUR KNOWLEDGE OF THE GENE.
- LEVERAGED THE SCIENTIFIC ADVISORY BOARD IN RUNNING A PROCESS TO SOLICIT CELL LINE STUDY PROPOSAL,S AND AFTER EVALUATING, ULTIMATELY APPROVING FUNDING FOR THREE PROPOSALS TO PROCEED IN 2026.
- STARTED THE TRANSITION TO A NEW WEBSITE PLATFORM TO SUPPORT PROVIDING MORE RESOURCES, AS WELL AS ALLOW BETTER NETWORKING FOR THOSE AFFECTED BY WSS.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 81-1260031
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2016
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G11)
- Assets (IRS master file)
- $1,199,609
- Income (IRS master file)
- $285,219
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $280,420 | $102,671 | $1,199,609 | XML |
| 990 | December 2024 | $274,353 | $112,857 | $1,023,103 | XML |
| 990 | December 2023 | $235,716 | $22,177 | $860,323 | XML |
| 990 | December 2022 | $227,816 | $125,225 | $647,196 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-N for 2017 Officer: Libby Woolford | December 31, 2017 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-1260031).
Questions about WIEDEMANN-STEINER SYNDROME FOUNDATION
- What is the EIN of WIEDEMANN-STEINER SYNDROME FOUNDATION?
- The employer identification number (EIN) of WIEDEMANN-STEINER SYNDROME FOUNDATION is 81-1260031.
- Is WIEDEMANN-STEINER SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2016.
- Are donations to WIEDEMANN-STEINER SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does WIEDEMANN-STEINER SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of WIEDEMANN-STEINER SYNDROME FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did WIEDEMANN-STEINER SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of WIEDEMANN-STEINER SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 names LIBBY WOOLFORD.
- Who are the officers and directors of WIEDEMANN-STEINER SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 8 people; 0 received compensation from the organization.
- How much revenue does WIEDEMANN-STEINER SYNDROME FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $280,420, expenses of $102,671 and total assets of $1,199,609 at year end.
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All nonprofits in SACRAMENTO · California · Voluntary health associations and medical disciplines