2025-09-05T10:21:27-05:00 2024-12-31 680037990 GILBERT CPAS 2880 GATEWAY OAKS DR STE 100 SACRAMENTO CA 95833 990 2024-01-01 811260031 THE WIEDEMANN-STEINER SYNDROME FOUNDATION WIED 9165022120 1314 44TH STREET SACRAMENTO CA 95819 LIBBY WOOLFORD PRESIDENT 9165022120 2025-08-28 1 1 AMANDA H WILLIAMS P01281212 9166466464 2025-08-28 2024 2025-03-06 01:10:19Z LIBBY WOOLFORD 1314 44TH STREET SACRAMENTO CA 95819 281062 0 X WWW.WSSFOUNDATION.ORG X 2016 CA EDUCATE THOSE AFFECTED BY WIEDEMANN-STEINER SYNDROME, A RARE GENETIC CONDITION, AND TO SUPPORT AND ADVOCATE FOR ONGOING SCIENTIFIC RESEARCH. 9 9 0 30 0 0 228689 245662 0 0 11817 34636 -4790 -5945 235716 274353 6000 2176 0 0 0 0 0 0 3903 16177 110681 22177 112857 213539 161496 860323 1023103 0 1284 860323 1021819 X THE WIEDEMANN-STEINER SYNDROME FOUNDATION PROVIDES EDUCATION, FOSTERS COMMUNITY, AND STIMULATES RESEARCH TO IMPROVE THE LIVES OF EVERYONE IMPACTED BY WSS. 0 0 77246 2176 764 EXPANDED OUTREACH THROUGH ITS FAMILY VOLUNTEERS TO SERVE AS REGIONAL AMBASSADORS AND HOSTED SEVERAL IN-PERSON AND VIRTUAL ACTIVITIES TO RAISE AWARENESS OF WSS INCLUDING THE MONTHLY EXPERT VIRTUAL DISCUSSIONS TO EDUCATE THE WSS COMMUNITY, ANNUAL WSS QUADRATHALON, AND INTERNATIONAL WSS AWARENESS DAY. ADDITIONALLY, FOUNDATION ORGANIZES AND SPONSORS A BI-ANNUAL CONFERENCE WITH EDUCATIONAL RESOURCES FOR OBSTACLES WSS FAMILIES FACE, AS WELL AS RESEARCH UPDATES. UTILIZED PLATFORMS TO LEARN MORE ABOUT THOSE AFFECTED BY WSS THROUGH "BURDEN OF ILLNESS" SURVEYS IN ORDER TO CONTINUE TO EVOLVE THE GOALS OF THE FOUNDATION TO MEET THE NEEDS OF THE WSS COMMUNITY. HIRED A CHIEF SCIENTIFIC OFFICER, WHO, IN CONCERT WITH THE SCIENTIFIC ADVISORY BOARD, DEVELOPED AND ARE IMPLEMENTING A RESEARCH STRATEGY TOBEST UTILIZE RESOURCES TO MEET LONG TERM GOALS. COMPLETED A WSS MOUSE MODEL PROJECT TO SET THE STAGE FOR FUTURE THERAPY DEVELOPMENT EFFORTS, HAD NEUROCOGNITIVE TESTING PERFORMED ON INDIVIDUALS WITH WSS TO DEVELOP A NEUROCOGNITIVE PROFILE, AND STARTED BIOMARKER RESEARCH. 77246 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 0 0 0 CA AL AK CO CT FL GA IL KS ME MD MA MN MS NH NJ NY NC ND OH OK PA RI SC TN VA WA AR HI KY MI NM OR WV NV WI X LIBBY WOOLFORD 9165022120 1314 44TH STREET SACRAMENTO CA 95819 X LIBBY WOOLFORD PRESIDENT 12.00 X X 0 0 0 THOR MISKO SECRETARY 4.00 X X 0 0 0 DREW SCHAEFER TREASURER 5.00 X X 0 0 0 DIEGO MAHECHA BOARD MEMBER 0.00 X 0 0 0 KIM LAGRAVINESE BOARD MEMBER 3.00 X 0 0 0 CHRISTINA O'KEEFFE BOARD MEMBER 9.00 X 0 0 0 KRYSTAL THURMAN BOARD MEMBER 6.00 X 0 0 0 ANNABEL CORBETT BOARD MEMBER 3.50 X 0 0 0 ALEXANDRA GILLETT BOARD MEMBER 3.00 X 0 0 0 0 0 0 0 0 0 0 0 89135 156527 245662 34636 34636 0 89135 6709 -6709 -6709 MISCELLANEOUS REVENUE 900099 764 764 764 274353 764 0 27927 X 2176 2176 8264 8264 23301 12560 9338 1403 479 479 429 223 206 4511 1527 2984 60250 57750 2500 4557 4557 OTHER EXPENSES 6396 2166 4230 TAXES AND LICENSES 2494 844 1650 112857 77246 31708 3903 160300 11712 1007 183354 2121 1000 1590 0 45750 48143 649555 778894 860323 1023103 1284 0 1284 X 860323 1021819 860323 1021819 860323 1023103 161496 0 X X 1 X 0 1 0 X 140396 187098 225335 228689 245662 1027180 140396 187098 225335 228689 245662 1027180 20589 20000 55000 80100 65644 241333 0 20589 20000 55000 80100 65644 241333 785847 589 78 758 11817 34636 47878 589 78 758 11817 34636 47878 812 769 1723 747 764 4815 141797 187945 227816 241253 281062 1079873 0.72770 0.77170 0.04430 0.01410 X SCHEDULE A, PART III, LINE 12, EXPLANATION OF OTHER INCOME: MISCELLANEOUS - 2020 AMOUNT: $ 812. 2021 AMOUNT: $ 769. 2022 AMOUNT: $ 1,723. 2023 AMOUNT: $ 747. 2024 AMOUNT: $ 764. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 CERTIFICATES OF DEPOSIT 778894 F 778894 X PART X, LINE 2: THE FOUNDATION HAS APPLIED THE ACCOUNTING PRINCIPLES RELATED TO THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THERE IS NO MATERIAL IMPACT ON THE FINANCIAL STATEMENTS. WSS KIDS TRIATHLON 33460 33460 5653 JENNI ANN CHILI COOKOFF 16574 16574 1056 3 37381 37381 87415 87415 6709 6709 -6709 FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE COMMITTEES WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER WILL SUBMIT THE DRAFT 990 VIA EMAIL FOR REVIEW BY ALL 8 MEMBERS OF THE BOARD OF DIRECTORS AND HAVE AT LEAST A WEEK TO PROVIDE ANY INPUT. THE BOARD PRESIDENT WILL CONDUCT A THOROUGH REVIEW PRIOR TO SIGNATURE. A BOARD MEETING WILL BE CONDUCTED FOR "IN-PERSON" DISCUSSION VIA VIDEO CONFERENCE TO DISCUSS THE DRAFT 990 BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C EACH MEMBER ON THE BOARD OF DIRECTORS SIGNS A DECLARATION FORM ANNUALLY CONSISTENT WITH THE ADOPTED CONFLICT OF INTEREST POLICY. DURING BOARD MEETINGS, MEMBERS IDENTIFY WHETHER THERE ARE ANY CONFLICTS OF INTERESTS RELATED TO ANY BUSINESS BEING CONSIDERED AND WILL BE HANDLED CONSISTENT WITH THE ADOPTED POLICY. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST VIA EMAIL OR AT OFFICE LOCATION. FORM 990, PART IX, LINE 11G OTHER : PROGRAM SERVICE EXPENSES 12,560. MANAGEMENT AND GENERAL EXPENSES 9,338. FUNDRAISING EXPENSES 1,403. TOTAL EXPENSES 23,301. FORM 990, PART XI, LINE 2C THE PROCESSES FOR OVERSIGHT OF THE REVIWED FINANCIAL STATEMENTS AND THE SELECTION OF INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR.