2024-06-10T16:13:04-05:00 2023-12-31 680037990 GILBERT CPAS 2880 GATEWAY OAKS DR STE 100 SACRAMENTO CA 95833 990 2023-01-01 811260031 THE WIEDEMANN-STEINER SYNDROME FOUNDATION WIED 9165022120 1314 44TH STREET SACRAMENTO CA 95819 LIBBY WOOLFORD PRESIDENT 9165022120 2024-06-10 1 LIBBY WOOLFORD 999009999 0 AMANDA H WILLIAMS P01281212 9166466464 2024-06-10 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z LIBBY WOOLFORD 1314 44TH STREET SACRAMENTO CA 95819 241253 0 X WWW.WSSFOUNDATION.ORG X 2016 CA EDUCATE THOSE AFFECTED BY WIEDEMANN-STEINER SYNDROME, A RARE GENETIC CONDITION, AND TO SUPPORT AND ADVOCATE FOR ONGOING SCIENTIFIC RESEARCH. 8 8 0 30 0 0 225335 228689 0 0 758 11817 1723 -4790 227816 235716 52000 6000 0 0 0 0 0 0 1330 73225 16177 125225 22177 102591 213539 647196 860323 412 0 646784 860323 X THE WIEDEMANN-STEINER SYNDROME FOUNDATION PROVIDES EDUCATION, FOSTERS COMMUNITY, AND STIMULATES RESEARCH TO IMPROVE THE LIVES OF EVERYONE IMPACTED BY WSS. 0 0 747 EXPANDED OUTREACH THROUGH ITS FAMILY VOLUNTEERS TO SERVE AS REGIONAL AMBASSADORS AND HOSTED SEVERAL VIRTUAL ACTIVITIES TO RAISE AWARENESS OF WSS INCLUDING THE MONTHLY EXPERT VIRTUAL DISCUSSIONS TO EDUCATE THE WSS COMMUNITY, ANNUAL WSS TRIATHLON (VIRTUALLY), AND INTERNATIONAL WSS AWARENESS DAY. ADDITIONALLY, FOUNDATION ORGANIZES AND SPONSORS A BI-ANNUAL CONFERENCE WITH EDUCATIONAL RESOURCES FOR OBSTACLES WSS FAMILIES FACE, AS WELL AS RESEARCH UPDATES. 6000 6000 RAISED AWARENESS AND SUPPORT TO INITIATE MEDICAL RESEARCH ON THE WSS GENE BY LEVERAGING THE EXISTING SCIENTIFIC ADVISORY BOARD AND NOMINATED A RARE GENETIC SCIENTIST TO INITIATE THE FOUNDATION'S FIRST STUDY OF WSS. BEGAN TO ORGANIZE THE INFRASTRUCTURE IN ORDER TO COMMISSION A NATURAL HISTORY STUDY TO SUPPORT THE COMPLETED RESEARCH FROM ACCOMPLISHMENT 3 ON PAGE 2, AS WELL AS A STUDY ON WSS CELL LINES AND MOLECULAR GENETICS RESEARCH. 6000 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 8 8 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 0 0 0 CA AL AK CO CT FL GA IL KS ME MD MA MN MS NH NJ NY NC ND OH OK PA RI SC TN UT VA WA AR DC HI KY MI NM OR WV NV WI X LIBBY WOOLFORD 9165022120 1314 44TH STREET SACRAMENTO CA 95819 X LIBBY WOOLFORD PRESIDENT 9.00 X X 0 0 0 THOR MISKO SECRETARY 5.10 X X 0 0 0 DREW SCHAEFER TREASURER 5.00 X X 0 0 0 DIEGO MAHECHA BOARD MEMBER 2.00 X 0 0 0 KIM LAGRAVINESE BOARD MEMBER 5.00 X 0 0 0 CHRISTINA O'KEEFFE BOARD MEMBER 9.00 X 0 0 0 KRYSTAL THURMAN BOARD MEMBER 5.00 X 0 0 0 ANNABEL CORBETT BOARD MEMBER 1.00 X 0 0 0 0 0 0 0 0 0 0 0 104676 124013 228689 11817 11817 0 104676 5537 -5537 -5537 MISCELLANEOUS REVENUE 900099 747 747 747 235716 747 0 6280 X 6000 6000 7890 7890 3900 3900 122 122 287 17 270 364 364 1295 1295 LICENSES AND FEES 2241 1181 1060 OTHER 78 78 22177 6000 14847 1330 254769 160300 339597 1007 2121 7706 1590 1590 43534 45750 649555 647196 860323 412 412 0 X 646784 860323 646784 860323 647196 860323 213539 0 X X 1 X 0 1 0 X 191749 140396 187098 225335 228689 973267 191749 140396 187098 225335 228689 973267 30506 20589 20000 55000 80100 206195 0 30506 20589 20000 55000 80100 206195 767072 762 589 78 758 11817 14004 762 589 78 758 11817 14004 2620 812 769 1723 747 6671 195131 141797 187945 227816 241253 993942 0.77170 0.80060 0.01410 0.00260 X SCHEDULE A, PART III, LINE 12, EXPLANATION OF OTHER INCOME: MISCELLANEOUS - 2019 AMOUNT: $ 2,620. 2020 AMOUNT: $ 812. 2021 AMOUNT: $ 769. 2022 AMOUNT: $ 1,723. 2023 AMOUNT: $ 747. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 CERTIFICATES OF DEPOSIT 649555 F 649555 X PART X, LINE 2: THE FOUNDATION HAS APPLIED THE ACCOUNTING PRINCIPLES RELATED TO THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THERE IS NO MATERIAL IMPACT ON THE FINANCIAL STATEMENTS. GIVING TUESDAY 37550 37550 WSS KIDS TRIATHLON 35805 35805 500 5037 1 31321 31321 104676 104676 500 5037 5537 -5537 1 KENNEDY KRIEGER INSTITUTE 1741 ASHLAND AVE 7TH FLOOR BALTIMORE MD 21205 521734695 501(C)(3) 6000 0 RESEARCH GRANT 1 PART I, LINE 2: THERE IS A COMMITMENT AGREEMENT BETWEEN THE FOUNDATION AND THE GRANTEE OUTLINING THE SCOPE OF THE PROJECT, WHICH WAS SELECTED AS A PRECURSOR TO LARGER RESEARCH EFFORTS. GRANT PAYMENTS ARE CONTINGENT ON COMPLETION OF AGREED UPON DELIVERABLES. FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE COMMITTEES WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER WILL SUBMIT THE DRAFT 990 VIA EMAIL FOR REVIEW BY ALL 8 MEMBERS OF THE BOARD OF DIRECTORS AND HAVE AT LEAST A WEEK TO PROVIDE ANY INPUT. THE BOARD PRESIDENT WILL CONDUCT A THOROUGH REVIEW PRIOR TO SIGNATURE. A BOARD MEETING WILL BE CONDUCTED FOR "IN-PERSON" DISCUSSION VIA VIDEO CONFERENCE TO DISCUISS THE DRAFT 990 BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C EACH MEMBER ON THE BOARD OF DIRECTORS SIGNS A DECLARATION FORM ANNUALLY CONSISTENT WITH THE ADOPTED CONFLICT OF INTEREST POLICY. DURING BOARD MEETINGS, MEMBERS IDENTIFY WHETHER THERE ARE ANY CONFLICTS OF INTERESTS RELATED TO ANY BUSINESS BEING CONSIDERED AND WILL BE HANDLED CONSISTENT WITH THE ADOPTED POLICY. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST VIA EMAIL OR AT OFFICE LOCATION. FORM 990, PART IX, LINE 11G OTHER CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 3,900. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 3,900. FORM 990, PART XI, LINE 2C THE PROCESSES FOR OVERSIGHT OF THE REVIWED FINANCIAL STATEMENTS AND THE SELECTION OF INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR.