ALS NORTHWEST

Financials

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended January 31, 2026, highest compensation first.

Address and contacts

Address (IRS master file)

825 NE MULTNOMAH ST STE 940, PORTLAND, OR 97232-2597

Principal officer (990 for 2025)

CASSY ADAMS, 825 NE Multnomah St Ste 940, Portland, OR 97232

Signed the 990

CASSY ADAMS, Executive Dir.

Phone

(503) 238-5559

Website

WWW.ALSNORTHWEST.ORG

Return prepared by

KERN & THOMPSON LLC

Mission

LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.

Program accomplishments

• OUTREACH AND ADVOCACYALS NORTHWEST PROVIDES ONGOING FINANCIAL SUPPORT TO SUPPORT FEDERAL AND STATE PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED SIGNIFICANT PROJECTS TO UNDERSTAND THE CAUSE OF ALS, THE DISEASE MECHANISM, GENETICS, BIOMARKERS FOR ALS, ENVIRONMENTAL FACTORS, AND TRANSLATIONAL RESEARCH TO MOVE THERAPY IDEAS FROM THE LAB BENCH TO THERAPY. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2026, INCLUDE ADVOCACY OF PEOPLE WITH ALS TO CONNECT WITH LEGISLATORS IN WASHINGTON DC TO ADVOCATE FOR CONTINUED FUNDING FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, THE ACT FOR ALS ACT AND FEDERAL SUPPORT FOR ALS RESEARCH. AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE WALK ALS, SKI ALS, RIDE ALS, MAY ALS AWARENESS MONTH, ALS RESEARCH SYMPOSIUM, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW THE ORGANIZATIONS SERVICES CAN HELP.NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE REGION AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM ALS NORTHWEST. RESEARCH IS A CRITICAL PART OF THE ORGANIZATIONS MISSION.AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES ALS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN THE NORTHWEST.
  Expenses $847,879 · grants $247,937
• INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 429 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2026.THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 75 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2026.THE ORGANIZATIONS FINANCIAL ASSISTANCE PROGRAM IS DESIGNED TO PROVIDE HELP WITH THE HIGH COSTS OF CARE FOR FAMILIES LIVING WITH ALS. OVER $128,990 IN GRANTS WERE MADE TO 190 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES.
  Expenses $565,259 · grants $120,542
• EDUCATION AND SUPPORT PROGRAMSSTRATEGICALLY BASED IN AND NEAR PATIENTS HOME COMMUNITIES, CARE SERVICES COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. DURING THE YEAR ENDED JANUARY 31, 2026, CARE SERVICE COORDINATORS MADE 300 HOME VISITS. IN THESE VISITS, COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID, AND LONG-TERM ARE QUESTIONS. COORDINATORS FACILITATED 182 ALS SUPPORT GROUPS IN PERSON AND ONLINE. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS.
  Expenses $371,499
• CAREGIVER SUPPORT PROGRAMSTHE CAREGIVER SUPPORT PROGRAM PROVIDES NEEDED EMOTIONAL SUPPORT AND PRACTICAL GUIDANCE AND INFORMATION SUPPORT FOR FAMILY AND OTHER CAREGIVERS OF PEOPLE LIVING WITH ALS. WITH SUPPORT GROUPS AND ONE-ON-ONE CAREGIVER CONSULTATIONS THE ORGANIZATION SUPPORTED 590 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2026.THE FAMILY SUPPORT PROGRAM OFFERS INFORMATION AND LIVE SUPPORT EVENTS FOR FAMILIES LIVING WITH ALS WHO HAVE CHILDREN OR GRANDCHILDREN. OUR FAMILY FUN WEEK PROVIDED EDUCATION AND RECREATION TO MULTIPLE FAMILIES ACROSS OREGON AND SOUTHWEST WASHINGTON. WE PARTNERED WITH THE PROVIDENCE ALS CENTER TO SPONSOR CAREGIVER 101 TRAININGS WHERE FAMILY CAREGIVERS LEARNED PRACTICAL SKILLS FOR CARING FOR THEIR LOVED ONE WITH ALS.THE BEREAVEMENT PROGRAM PROVIDED SUPPORT FOR 500 FAMILIES WHO HAD LOST A LOVED ONE WITH ALS IN THE LAST YEAR WITH MAIL, TELEPHONE, AND EDUCATIONAL OUTREACH COMMUNICATIONS TO ASSIST FAMILY MEMBERS MOVING THROUGH THE GRIEVING PROCESS.
  Expenses $324,336
• ALS CLINICS AND CERTIFIED CENTER SUPPORTTO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS SPECIALTY MULTIDISCIPLINARY CLINICS. THESE ONE-STOP SHOPS ARE EVIDENCE-BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS AT THE PROVIDENCE ALS CENTER, THE VA PORTLAND HEALTH SYSTEM ALS CENTER, THE OHSU ALS CENTER, KAISER SUNNYSIDE MEDICAL CENTER IN CLACKAMAS, AND ST. CHARLES MEDICAL CENTER IN BEND.THE ORGANIZATION HAS ASSISTED WITH STAFFING, SUPPLIES, AND PROFESSIONAL EDUCATION FOR CLINIC PROVIDERS. DURING THE YEAR ENDED JANUARY 31, 2026, THE ORGANIZATION SUPPORTED OVER 652 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS. IN ADDITION, THE ORGANIZATION PROVIDED FUNDING FOR SPECIAL PROJECTS THAT FUNDED COUNSELING SERVICES AND PROVIDED ONGOING COLLABORATION WITH THE PROVIDENCE ALS CENTER AND THE CAREGIVING 101 PROGRAM. ADDITIONAL FUNDS WERE SHARED TO THE ALS CENTER AT OHSU TO SUPPORT NURSING STAFFING.
  Expenses $253,669

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in January, so each return is due on the 15th day of the 5th month after that.

IRS record

EIN

68-0516066

Tax-exempt status

501(c)(3): Charitable, religious, educational or scientific organization

Foundation status

Publicly supported organization (170(b)(1)(A)(vi))

Donations deductible (Pub 78)

Public charity, 50% deduction limit

Exempt since

2024

Accounting year ends

January

Files

Form 990 or 990-EZ

Category (NTEE)

Health care (E86)

Assets (IRS master file)

$4,393,568

Income (IRS master file)

$2,941,308

Filing history

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 68-0516066).

Questions about ALS NORTHWEST

What is the EIN of ALS NORTHWEST?

The employer identification number (EIN) of ALS NORTHWEST is 68-0516066.

Is ALS NORTHWEST tax-exempt?

Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2024.

Are donations to ALS NORTHWEST tax-deductible?

Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).

Which annual return does ALS NORTHWEST file?

Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.

When is the next return of ALS NORTHWEST due?

The return for tax year 2026 (the year ending January 31, 2027) is due June 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.

When did ALS NORTHWEST last file with the IRS?

The latest return in the IRS public files is the 990 for the year ended January 2026.

Who is the principal officer of ALS NORTHWEST?

The 990 for the year ended January 31, 2026 names CASSY ADAMS.

Who are the officers and directors of ALS NORTHWEST?

The 990 for the year ended January 31, 2026 lists 23 people; 2 received compensation from the organization, the highest $139,308 (CASSY ADAMS, Executive Dir.).

How much revenue does ALS NORTHWEST have?

On its 990 for the year ended January 31, 2026 it reported revenue of $2,781,584, expenses of $3,012,212 and total assets of $4,393,568 at year end.

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