2024-05-22T12:50:08-07:00 2024-01-31 931157146 Kern & Thompson LLC 1800 SW First Avenue Suite 410 Portland OR 97201 990 2023-02-01 680516066 ALS Northwest ALSN 5032385559 825 NE Multnomah St Suite 940 Portland OR 97232 LANCE CHRISTIAN Executive Direc 2024-05-02 true LANCE CHRISTIAN 999009999 true Eric A Zehntbauer CPA P01294391 5032223338 X 2 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z X LANCE CHRISTIAN 825 NE Multnomah St Suite 940 Portland OR 97232 2528168 false X WWW.ALSOREGON.ORG X 2002 OR LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 21 21 21 450 0 3816969 2222425 0 63602 97493 -151363 62883 3729208 2382801 83000 133000 0 1346693 1570151 0 308619 1690347 1222399 3120040 2925550 609168 -542749 4982342 4539265 930566 828787 4051776 3710478 X LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. false false 846667 OUTREACH AND ADVOCACYALS NORTHWEST ACTIVELY MET WITH MEMBERS OF CONGRESS TO URGE SUPPORT FOR FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED BASIC SCIENCE RESEARCH TO UNDERSTAND THE DISEASE AND TO FINE NEW THEREAPIES. ALS NORHTWEST PROVIDED OVER $100,000 TO LOCAL ALS CLINICS AT THE PROVIDENCE ALS CENTER AND OHSU TO SUPPORT LOCAL RESEARCH ACTIVITIES. THE ORGANIZATION ALSO SUPPORTED FUNDING OF THE ACCELERATING MEDICINES PROGRAM AT THE NATIONAL INSTITUTES OF HEALTH FOCUSED ON FINDING NEW TREATMENTS FOR ALS. AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE THE WALK ALS, SKI ALS, RIDE FOR ALS, MAY ALS AWARENESS MONTH, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW CHAPTER SERVICES CAN HELP. NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM ALS NORTHWEST. RESEARCH IS A CRITICAL PART OF THE CHAPTER MISSION. AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES ALS AWARENESS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN OUR CHAPTER TERRITORY AS POSSIBLE. 435300 INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT, SUPPORT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 289 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2024. THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 155 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2024. THE CHAPTER GRANT PROGRAM IS DESIGNED TO PROVIDE FINANCIAL ASSISTANCE FOR FAMILIES LIVING WITH ALS. OVER $143,000 IN GRANTS WERE MADE TO 396 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES. A NEW HELPING HANDS VOLUNTEER PROGRAM MATCHED 26 PEOPLE WITH ALS WITH COMMUNITY VOLUNTEERS TO PERFORM CHORES AND TASKS IN THE HOME. 127 VOLUNTEER VISITS WERE MADEFOR A PORTION OF THE YEAR THE ORGANIZATIONS MISSION WAS ALSO CARRIED ON THROUGH SERVICES PROVIDED BY THE NATIONAL ALS ASSOCIATION. THROUGH JUNE A REVENUE SHARING AGREEMENT WITH NATIONAL WHEREBY APPROXIMATELY 13.6% OF REVENUES NET OF CREDIT FOR SUPPORTING ALS RESEARCH AND PUBLIC POLICY ACTIVITIES WERE PAID TO THE NATIONAL ALS ORGANIZATION. 353135 EDUCATION AND SUPPORT PROGRAMSSTRATEGICALLY BASED IN AND NEAR PATIENTS HOME COMMUNITIES, CARE SERVICES COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. DURING THE YEAR ENDED JANUARY 31, 2024, CARE SERVICE COORDINATORS MADE 206 HOME VISITS. IN THESE VISITS, COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID, AND LONG-TERM CARE QUESTIONS. COORDINATORS FACILITATED 188 ALS SUPPORT GROUPS IN PERSON AND ONLINE. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH, AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. 556299 33000 2191401 true true false false false false false false false false true false false true true false false false false false false false false false true false false true false true false false false false false false false false false false false false false true false false false true 11 0 true 21 true false false false false false false false 0 false false false false false false false X 21 21 false false true false false false false true true false false true true true true true true true true false OR X LANCE CHRISTIAN 5032385559 825 NE MULTNOMAH ST SUITE 940 PORTLAND OR 97232 LANCE CHRISTIAN Executive Dir. 40.00 0.00 X 151069 0 21682 AMY FRAZEY President 2.00 0.00 X X 0 0 0 JASON DRUCKER Vice President 2.00 0.00 X X 0 0 0 KATHERINE HART Treasurer 2.00 0.00 X X 0 0 0 KEVIN WRIGHT Secretary 2.00 0.00 X X 0 0 0 TOM HOLT Director 2.00 0.00 X 0 0 0 KEN FINK Director 2.00 0.00 X 0 0 0 KIM GOSLIN Director 2.00 0.00 X 0 0 0 ARTURO GONZALEZ Director 2.00 0.00 X 0 0 0 JOE GROSS DIRECTOR 2.00 0.00 X 0 0 0 DIANA HENDRICKSON Director 2.00 0.00 X 0 0 0 JAMES LOBDELL Director 2.00 0.00 X 0 0 0 DOUG MCCLURE Director 2.00 0.00 X 0 0 0 IAN MCHONE DIRECTOR 2.00 0.00 X 0 0 0 ALAN TEO Director 2.00 0.00 X 0 0 0 MARK TURNBULL Director 2.00 0.00 X 0 0 0 JERRY CATLIN Director 2.00 0.00 X 0 0 0 KATIE CURTIS Director 2.00 0.00 X 0 0 0 MARK DUIN Director 2.00 0.00 X 0 0 0 NICK OLNEY Director 2.00 0.00 X 0 0 0 WHITNEY PARNELL Director 2.00 0.00 X 0 0 0 LOU LIBBY Director 2.00 0.00 X 0 0 0 151069 21682 1 false true false AAT LLOYD DISTRICT LLC-LCT 3420 CARMEL MOUNTAIN ROAD STE 100 SAN DIEGO CA 92121 RENT 116197 1 354146 1868279 2222425 0 97493 97493 0 0 0 0 354146 145367 -145367 -145367 0 0 LEGAL SETTLEMENT 900099 208250 208250 208250 2382801 160376 133000 133000 0 0 0 201549 171755 13731 16063 0 1065924 909660 71226 85038 57941 48779 4584 4578 124033 104420 9813 9800 120704 105498 6996 8210 0 0 0 0 0 0 283967 19959 221307 42701 63250 59907 3343 132231 104691 11930 15610 0 0 123658 105109 12366 6183 91714 63958 27756 0 41044 9266 31778 0 102758 102758 7314 7314 6900 5848 690 362 CHAPTER GRANTS 143065 143065 SUPPLIES AND RESOURCE MATERIAL 87733 30233 21311 36189 Printing and Publications 56951 34411 2761 19779 BANK FEES 23614 23614 58200 39084 14544 4572 2925550 2191401 425530 308619 X 1116181 133241 253639 349911 40000 20000 0 0 0 0 0 24820 27717 38521 34691 11144 3830 2918804 3386812 0 0 0 617754 617754 4982342 4539265 258197 153552 45209 48075 627160 627160 930566 828787 X 3986776 3431852 65000 278626 4051776 3710478 4982342 4539265 -542749 201451 X false false false X 2355269 2539255 4365692 3816969 2222425 15299610 0 0 2355269 2539255 4365692 3816969 2222425 15299610 1590248 13709362 3638 1733 25507 59625 97493 187996 0 0 15487606 0.88520 0.84150 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 38521 34691 3830 3830 RIGHT OF USE ASSET 617754 617754 RIGHT OF USE LIABILITY 627160 627160 false GALA 354146 354146 47719 68022 29626 354146 354146 47719 68022 29626 145367 -145367 true OHSU 3181 SW SAM JACKSON PARK ROAD PORTLAND OR 97239 931176109 0 15000 ALS CLINIC SUPPORT PROVIDENCE ST VINCENT 9205 SW BARNES RD PORTLAND OR 97225 930575982 0 18000 ALS CLINIC SUPPORT THE ALS ASSOCIATION 1300 WILSON BLVD STE 600 ARLINGTON VA 22209 133271855 0 100000 RESEARCH 3 0 Grantmaker's Description of How Grants are Used GRANT EXPENSES ARE TRACKED USING GAAP PROCEDURE AND COMPLY WITH ALL REPORTING REQUIRED BY GRANTORS ON OUTCOMES AND RESTRICTIONS. X false false false false false false false false false LANCE CHRISTIAN Executive Dir. 151069 10719 10963 172751 Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT, SUPPORT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 289 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2024. THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 155 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2024. THE CHAPTER GRANT PROGRAM IS DESIGNED TO PROVIDE FINANCIAL ASSISTANCE FOR FAMILIES LIVING WITH ALS. OVER $143,000 IN GRANTS WERE MADE TO 396 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES. A NEW HELPING HANDS VOLUNTEER PROGRAM MATCHED 26 PEOPLE WITH ALS WITH COMMUNITY VOLUNTEERS TO PERFORM CHORES AND TASKS IN THE HOME. 127 VOLUNTEER VISITS WERE MADEFOR A PORTION OF THE YEAR THE ORGANIZATIONS MISSION WAS ALSO CARRIED ON THROUGH SERVICES PROVIDED BY THE NATIONAL ALS ASSOCIATION. THROUGH JUNE A REVENUE SHARING AGREEMENT WITH NATIONAL WHEREBY APPROXIMATELY 13.6% OF REVENUES NET OF CREDIT FOR SUPPORTING ALS RESEARCH AND PUBLIC POLICY ACTIVITIES WERE PAID TO THE NATIONAL ALS ORGANIZATION. OTHER PROGRAM SERVICES 5: OUTREACH AND ADVOCACYALS NORTHWEST ACTIVELY MET WITH MEMBERS OF CONGRESS TO URGE SUPPORT FOR FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED BASIC SCIENCE RESEARCH TO UNDERSTAND THE DISEASE AND TO FINE NEW THEREAPIES. ALS NORHTWEST PROVIDED OVER $100,000 TO LOCAL ALS CLINICS AT THE PROVIDENCE ALS CENTER AND OHSU TO SUPPORT LOCAL RESEARCH ACTIVITIES. THE ORGANIZATION ALSO SUPPORTED FUNDING OF THE ACCELERATING MEDICINES PROGRAM AT THE NATIONAL INSTITUTES OF HEALTH FOCUSED ON FINDING NEW TREATMENTS FOR ALS. AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE THE WALK ALS, SKI ALS, RIDE FOR ALS, MAY ALS AWARENESS MONTH, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW CHAPTER SERVICES CAN HELP. NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM ALS NORTHWEST. RESEARCH IS A CRITICAL PART OF THE CHAPTER MISSION. AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES ALS AWARENESS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN OUR CHAPTER TERRITORY AS POSSIBLE. Form 990, Part VI, Section A, Line 4 IN 2023 THE ORGANIZATION FILED NEW ARTICLES OF INCORPORATION CHANGING THE NONPROFITS NAME FROM THE ALS ASSOCIATION CHAPTER OF OREGON AND SW WASHINGTON (DBA THE ALS ASSOCIATION OREGON AND SW WASHINGTON CHAPTER) TO ALS NORTHWEST. AS PART OF THIS CHANGE THE ORGANIZATION UPDATED THEIR BYLAWS ACKNOWLEDGING THE CORPORATION NAME CHANGE. AS PART OF THE UPDATE SMALL CHANGES WERE MADE TO UPDATE THE BYLAWS TO CURRENT ORS STANDARDS AS WELL AS UPDATE BOARD COMMITTEES, BOARD OFFICER TITLES AND BOARD TERMS. Form 990, Part VI, Section B, Line 11b DRAFT 990 IS SUBMITTED ELECTRONICALLY TO BOARD MEMBERS FOR APPROVAL PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c ANNUAL SIGNED FORM SPECIFYING CONFLICTS OF INTEREST IS REQUIRED OF ALL DIRECTORS. BOARD MEMBERS HAVING CONFLICT OF INTEREST WILL RECUSE THEMSELVES FROM RELATED MATTERS. NO CONFLICTS HAVE BEEN NOTED. Form 990, Part VI, Section B, Line 15a THE BOARD OF DIRECTORS PERIODICALLY REVIEWS, APPROVES AND SUBSTANTIATES THE COMPENSATION FOR THE EXECUTIVE DIRECTOR. THE PROCESS IS BASED ON KNOWLEDGE OF COMPARABLE POSITIONS IN SIMILAR ORGANIZATIONS. Form 990, Part VI, Section B, Line 15b THE BOARD OF DIRECTORS PERIODICALLY REVIEWS, APPROVES, AND SUBSTANTIATES COMPENSATION FOR OTHER OFFICERS AND KEY EMPLOYEES. THE PROCESS IS BASED ON KNOWLEDGE OF COMPARABLE POSITIONS IN SIMILAR ORGANIZATIONS. Form 990, Part VI, Section C, Line 19 GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REASONABLE REQUEST. THE FEDERAL FORM 990 IS ALSO AVAILABLE ON THE GUIDESTAR WEBSITE. ALS ASSOCIATION NATIONAL OFFICE 1275 K STREET NW WASHINGTON DC 20005 133271855 ALS RESEARCH AND TREATMENT DC 501(C)3 7 N/A false false true false false false false false false false false false false false false false false false false false