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Nonprofit · EIN 59-3092842

ANGELMAN SYNDROME FOUNDATION INC

Tax-exempt · AURORA, IL 60504

Financials

$3.6M$3.6M2022$3.9M$3.9M2023$3.9M$3.7M2024
Revenue Expenses · by fiscal year end
Financials of ANGELMAN SYNDROME FOUNDATION INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
September 30, 2025990$3,906,892$3,721,265$185,627$2,637,296$535,399$2,101,897
September 30, 2024990$3,863,609$3,934,210-$70,601$2,653,640$737,370$1,916,270
September 30, 2023990$3,638,325$3,635,328$2,997$2,274,369$287,498$1,986,871
Financial details: 990 for the year ended September 30, 2025

Revenue

Contributions, gifts and grants
$2,318,250
Program service revenue
$1,440,198
Investment income
$130,984
Other revenue
$17,460

Expenses

Grants and similar amounts paid
$1,298,418
Other salaries and wages
$544,569
Salaries, compensation and benefits (total)
$601,397
Professional fundraising fees
$0
Occupancy
$5,904
Travel
$36,711
Depreciation
$3,634
Program services (functional)
$2,828,044
Management and general (functional)
$304,815
Fundraising (functional)
$588,406

Balance sheet and other

Total assets, start of year
$2,653,640
Total assets, end of year
$2,637,296
Total liabilities, end of year
$535,399
Net assets, end of year
$2,101,897
Land, buildings and equipment
$38,426
Publicly traded securities
$1,465,718
Net assets without donor restrictions
$1,303,965
Net assets with donor restrictions
$797,932
Gross receipts
$3,906,892
Employees
8
Volunteers
685
Year formed
1992
State of legal domicile
FL

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended September 30, 2025, highest compensation first.

NameTitleHours / weekCompensation
AMANDA MOORECEO
Officer
40$118,419
REBECCA BURDINESAC CHAIR
Trustee or director
1$0
APRIL CANTERDIRECTOR
Trustee or director
1$0
JERALD FRITZDIRECTOR
Trustee or director
1$0
TAYLOR GEATHERSDIRECTOR
Trustee or director
1$0
ESLIN GUICEDIRECTOR
Trustee or director
1$0
DAN HARVEYDIRECTOR
Trustee or director
2$0
RICHARD KRAKERDIRECTOR
Trustee or director
2$0
MINDY MCBRIBEDIRECTOR
Trustee or director
1$0
CHRISTIAN PACHEDIRECTOR
Trustee or director
2$0
LIA PERRYMANDIRECTOR
Trustee or director
1$0
STEVE PILUSODIRECTOR
Trustee or director
1$0
WILLIAM RAKOCZYDIRECTOR
Trustee or director
–$0
COURTNEY SWAFFORDDIRECTOR
Trustee or director
1$0
MARCUS THOMPSONDIRECTOR
Trustee or director
1$0
4 more people on this return
NameTitleHours / weekCompensation
CHARLES WINSLOW IIISECRETARY
Officer
1$0
LESLEY MCCULLOUGH MCCALISTERPRESIDENT
Officer
2$0
ANDREW OBERWAGERTREASURER
Officer
2$0
JOHN SUGDENVICE CHAIR
Officer
2$0
990 for the year ended September 30, 2024: 20 people
NameTitleHours / weekCompensation
REBECCA BURDINESAC CHAIR
Trustee or director
–$0
APRIL CANTERDIRECTOR
Trustee or director
–$0
TAYLOR GEATHERSDIRECTOR
Trustee or director
–$0
DAN HARVEYDIRECTOR
Trustee or director
–$0
RICHARD KRAKERDIRECTOR
Trustee or director
–$0
MINDY MCBRIBEDIRECTOR
Trustee or director
–$0
SHANNON MOYERDIRECTOR
Trustee or director
–$0
CHRISTIAN PACHEDIRECTOR
Trustee or director
–$0
LIA PERRYMANDIRECTOR
Trustee or director
–$0
STEVE PILUSODIRECTOR
Trustee or director
–$0
WILLIAM RAKOCZYDIRECTOR
Trustee or director
–$0
DAVID ROUTHDIRECTOR
Trustee or director
–$0
COURTNEY SWAFFORDDIRECTOR
Trustee or director
–$0
MARCUS THOMPSONDIRECTOR
Trustee or director
–$0
CHARLES WINSLOW IIISECRETARY
Officer
–$0
AMANDA MOORECEO
Officer
–$0
LESLEY MCCULLOUGH MCCALISTERPRESIDENT
Officer
–$0
ANDREW OBERWAGERTREASURER
Officer
–$0
KYLE ROONEYPAST PRESIDE
Officer
–$0
JOHN SUGDENVICE CHAIR
Officer
–$0
990 for the year ended September 30, 2023: 20 people
NameTitleHours / weekCompensation
AMANDA MOORECEO
Officer
40$123,212
MARIANNE BENETDIRECTOR
Trustee or director
1$0
ANNA BLANDINGDIRECTOR
Trustee or director
1$0
REBECCA BURDINESAC CHAIR
Trustee or director
1$0
MICHAEL CECERETREASURER
Trustee or director, Officer
1.5$0
PETER ENGLANDSECRETARY
Trustee or director, Officer
1.5$0
TAYLOR GEATHERSDIRECTOR
Trustee or director
1$0
DAN HARVEYDIRECTOR
Trustee or director
1$0
CHARLES WINSLO IIIDIRECTOR
Trustee or director
1$0
MINDY MCBRIBEDIRECTOR
Trustee or director
1$0
SHANNON MOYERDIRECTOR
Trustee or director
1$0
LESLEY MCCULLOUGH MCCALISTERVICE CHAIR
Trustee or director
1$0
ANDREW OBERWAGERDIRECTOR
Trustee or director
1$0
LIA PERRYMANDIRECTOR
Trustee or director
1$0
STEVE PILUSODIRECTOR
Trustee or director
1$0
WILLIAM RAKOCZYDIRECTOR
Trustee or director
1$0
KYLE ROONEYPRESIDENT
Trustee or director, Officer
2$0
DAVID ROUTHDIRECTOR
Trustee or director
1$0
JOHN SUGDENDIRECTOR
Trustee or director
1$0
ERIC WRIGHTDIRECTOR
Trustee or director
1$0

Address and contacts

Address (IRS master file)
3015 E NEW YORK ST STE A2 PMB, AURORA, IL 60504-5165
Principal officer (990 for 2024)
AMANDA MOORE, 11771 SAND CREEK BLVD, FISHERS, IN 46037
Signed the 990
AMANDA MOORE, CEO
Phone
(630) 978-4245
Return prepared by
HOLLAND AND COMPANY CPAS PA

Mission

THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.

990 for the year ended September 30, 2025

Program accomplishments

  • THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS AS-SPECIFIC RESEARCH TO FIND VIABLE THERAPEUTICS AND A CURE FOR AS.
    Expenses $1,298,418 · grants $1,298,418 · revenue $1,440,198
  • CONFERENCE, CLINICS, AND GRANT PROGRAM
    Expenses $1,529,626

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025September 30, 2026February 16, 2027Not due yet
2024September 30, 2025February 17, 2026990 on file
2023September 30, 2024February 18, 2025990 on file

IRS record

EIN
59-3092842
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Group exemption
Exempt since
2001
Accounting year ends
September
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H90)
Group exemption
3757
Assets (IRS master file)
$2,637,296
Income (IRS master file)
$3,906,892

Filing history

FormYear endedRevenueExpensesAssetsReturn
990September 2025$3,906,892$3,721,265$2,637,296XML
990September 2024$3,863,609$3,934,210$2,653,640XML
990September 2023$3,638,325$3,635,328$2,274,369XML
990September 2022$3,676,179$3,640,818$2,249,648IRS
990September 2021–––IRS
990September 2020–––IRS
990September 2019–––IRS
990September 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 59-3092842).

Questions about ANGELMAN SYNDROME FOUNDATION INC

What is the EIN of ANGELMAN SYNDROME FOUNDATION INC?
The employer identification number (EIN) of ANGELMAN SYNDROME FOUNDATION INC is 59-3092842.
Is ANGELMAN SYNDROME FOUNDATION INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2001.
Are donations to ANGELMAN SYNDROME FOUNDATION INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Group exemption).
Which annual return does ANGELMAN SYNDROME FOUNDATION INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of ANGELMAN SYNDROME FOUNDATION INC due?
The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did ANGELMAN SYNDROME FOUNDATION INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended September 2025.
Who is the principal officer of ANGELMAN SYNDROME FOUNDATION INC?
The 990 for the year ended September 30, 2025 names AMANDA MOORE.
Who are the officers and directors of ANGELMAN SYNDROME FOUNDATION INC?
The 990 for the year ended September 30, 2025 lists 19 people; 1 received compensation from the organization, the highest $118,419 (AMANDA MOORE, CEO).
How much revenue does ANGELMAN SYNDROME FOUNDATION INC have?
On its 990 for the year ended September 30, 2025 it reported revenue of $3,906,892, expenses of $3,721,265 and total assets of $2,637,296 at year end.

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