2026-01-07T11:50:34-05:00 2025-09-30 300104478 HOLLAND AND COMPANY CPAS PA 1079 N TAMIAMI TRAIL 106 NOKOMIS FL 34275 990 2024-10-01 593092842 ANGELMAN SYNDROME FOUNDATION INC ANGE 6309784245 3015 E NEW YORK ST STE A2 PMB 285 AURORA IL 605045165 AMANDA MOORE CEO 6309784245 2025-12-30 true true DEAN R HOLLAND P00506273 6308419675 2026-01-07 X 2024 2025-03-06 01:10:19Z AMANDA MOORE 11771 SAND CREEK BLVD FISHERS IN 46037 3906892 false X WWW.ANGELMAN.ORG X 1992 FL THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. 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THE FOUNDATION SUPPORTS AND FUNDS AS-SPECIFIC RESEARCH TO FIND VIABLE THERAPEUTICS AND A CURE FOR AS. 1529626 CONFERENCE, CLINICS, AND GRANT PROGRAM 1529626 2828044 true true false false false false false false false true true false false false false false true false false false true true false false false false false true false false false false false false false false false false true false false false false false false false false true 15 0 8 true false false false false false true true false false false false false false false false X 18 18 false false false false false false false true true false false true true true true true true true true false AK AL AR AZ CA CO CT DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WI WV WY X X X ANGELMAN SYNDROME FOUNDATION 8004326435 3015 E NEW YORK STREET SUITE A2 285 AURORA IL 60504 AMANDA MOORE CEO 40.00 X 118419 0 0 REBECCA BURDINE SAC CHAIR 1.00 X 0 0 0 APRIL CANTER DIRECTOR 1.00 X 0 0 0 JERALD FRITZ DIRECTOR 1.00 X 0 0 0 TAYLOR GEATHERS DIRECTOR 1.00 X 0 0 0 ESLIN GUICE DIRECTOR 1.00 X 0 0 0 DAN HARVEY DIRECTOR 2.00 X 0 0 0 RICHARD KRAKER DIRECTOR 2.00 X 0 0 0 MINDY MCBRIBE DIRECTOR 1.00 X 0 0 0 CHRISTIAN PACHE DIRECTOR 2.00 X 0 0 0 LIA PERRYMAN DIRECTOR 1.00 X 0 0 0 STEVE PILUSO DIRECTOR 1.00 X 0 0 0 WILLIAM RAKOCZY DIRECTOR X 0 0 0 COURTNEY SWAFFORD DIRECTOR 1.00 X 0 0 0 MARCUS THOMPSON DIRECTOR 1.00 X 0 0 0 CHARLES WINSLOW III SECRETARY 1.00 X 0 0 0 LESLEY MCCULLOUGH MCCALISTER PRESIDENT 2.00 X 0 0 0 ANDREW OBERWAGER TREASURER 2.00 X 0 0 0 JOHN SUGDEN VICE CHAIR 2.00 X 0 0 0 118419 2 false false false 2318250 231296 2318250 WALK-A-THON 1413888 1413888 BIENNIAL CONFERENCE 26310 26310 1440198 130984 130984 MISCELLANEOUS INCOME (LOSS) 17460 17460 17460 3906892 1440198 148444 1173418 1173418 125000 125000 544569 231033 139705 173831 56828 21219 18024 17585 205059 35307 91711 78041 156951 68317 1650 86984 57285 13547 6525 37213 5904 2230 1797 1877 36711 12163 5461 19087 53044 53044 3634 2165 537 932 26517 6593 5544 14380 CLINICS AND DATABASE 532190 532190 PROGRAM EXPENSES 476898 476898 FEES 83183 9648 73535 FEES 46959 46959 137115 27961 24213 84941 3721265 2828044 304815 588406 1122681 912921 35518 19639 6813 129594 47455 70998 617628 579202 49497 38426 1391676 1465718 2653640 2637296 173448 88302 563922 437097 10000 737370 535399 X 1074253 1303965 842017 797932 1916270 2101897 2653640 2637296 185627 X false false X 1464328 2630439 2516563 2066864 2318250 10996444 96121 1180405 1032439 1461090 1440198 5210253 106606 156350 3794 5123 17460 289333 1667055 3967194 3552796 3533077 3775908 16496030 16496030 109281 -138291 85529 330532 130984 518035 109281 -138291 85529 330532 130984 518035 1776336 3828903 3638325 3863609 3906892 17014065 0.96960 0.97440 0.03000 0.03000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 638211 10983 4859 644335 520450 122330 4569 638211 499209 25467 4226 520450 500000 242 1033 499209 1.00000 true false 617628 579202 38426 38426 3906892 3906892 3906892 3721265 3721265 3721265 SCHEDULE D, PAGE 2, PART V, LINE 4 RESEARCH FELLOWSHIP false RESEARCH 125000 EFT false false false false false false true UNIVERSITY OF NORTH CAROLINA CHAPEL HILL 104 AIRPORT DR STE 2200 CD 1350 CHAPEL HILL NC 27599 200018 RESEARCH NEW YORK UNIVERSITY DEPT OF MOLECULAR PATHOBIOLOGY 345 E 24TH STREET NEW YORK NY 10010 125000 RESEARCH CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY MO 64118 11875 RESEARCH FAST PO BOX 40307 AUSTIN TX 78704 80726 RESEARCH REGENTS UNIVERSITY OF CALIFORNIA 1200 DUTTON HALL DAVIS CA 95616 388725 RESEARCH UNIVERSITY OF MASSACHUSETTS AMHERST 100 VENTURE WAY SUITE 201 HADLEY MA 01035 100000 RESEARCH VANDERBUILT UNIVERSITY MEDICAL CTR 3319 WEST END AVE STE 970 NASHVILLE TN 37203 167074 RESEARCH UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGTON AVE FARMINGTON CT 06030 100000 RESEARCH X 1 231296 false true false FORM 990, PAGE 1, PART I, LINE 6 VOLUNTEERS HELP COORDINATE AND RUN WALK-A-THON SITES. FORM 990, PAGE 2, PART III, LINE 4D CONFERENCE, CLINICS, AND GRANT PROGRAM FORM 990, PAGE 6, PART VI, LINE 11B THE ENTIRE FOUNDATION BOARD OF DIRECTORS AND CHIEF EXECUTIVE OFFICER REVIEW FORM 990 PRIOR TO ITS RELEASE. FORM 990, PAGE 6, PART VI, LINE 12C ALL BOARD MEMBERS ARE REQUIRED TO SIGN CONFLICT OF INTEREST STATEMENTS ON AN ANNUAL BASIS DISCLOSING ANY POTENTIAL CONFLICTS. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE MEETS ANNUALLY WITH THE CHIEF EXECUTIVE OFFICER TO REVIEW THE PERFORMANCE AND GOALS OF THE CHIEF EXECUTIVE OFFICER. THE COMMITTEE THEN MEETS PRIVATELY TO DISCUSS PERFORMANCE, GOALS AND SETTING OF THE CHIEF EXECUTIVE OFFICER'S SALARY AND BENEFITS. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE COMMITTEE MEETS ANNUALLY WITH THE CHIEF EXECUTIVE OFFICER TO REVIEW THE PERFORMANCE AND GOALS OF OFFICERS AND KEY EMPLOYEES IN RELATION TO THEIR JOB DESCRIPTION. THE COMMITTEE THEN MEETS PRIVATELY TO DISCUSS PERFORMANCE,GOALS AND SALARY AND SUBMITS IN WRITING TO THE CHIEF EXECUTIVE OFFICER THEIR RECOMMENDATIONS. FORM 990, PAGE 6, PART VI, LINE 17 ILLINOIS, INDIANA, KANSAS, KENTUCKY, LOUISIANA, MASSACHUSETTS, MARYLAND, MAINE, MICHIGAN, MINNESOTA, MISSOURI, MISSISSIPPI, MONTANA, NORTH CAROLINA, NORTH DAKOTA, NEBRASKA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEVADA, NEW YORK, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, SOUTH DAKOTA, TENNESSEE, TEXAS, UTAH, VIRGINIA, VERMONT, WASHINGTON, WISCONSIN, WEST VIRGINIA, WYOMING FORM 990, PAGE 6, PART VI, LINE 19 DOCUMENTS ARE AVAILABLE TO THE PUBLIC ON THE ORGANIZATION'S WEBSITE OR BY DIRECT REQUEST. PROVIDED IN ELECTRONIC OR PRINTED DOCUMENTS.