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Nonprofit · EIN 56-2547779

NORTHEAST ALS CONSORTIUM INC

Tax-exempt · BOSTON, MA 02114

Financials

$1.3M$1.1M2023$2.1M$555K2024
Revenue Expenses · by fiscal year end
Financials of NORTHEAST ALS CONSORTIUM INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$2,066,070$554,594$1,511,476$3,081,868$251,554$2,830,314
December 31, 2023990 (amended)$1,347,482$1,069,037$278,445$1,517,173$191,422$1,325,751
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$1,107,241
Program service revenue
$954,412
Investment income
$4,417
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Accounting fees
$5,500
Occupancy
$11,348
Travel
$17,298
Program services (functional)
$298,146
Management and general (functional)
$243,844
Fundraising (functional)
$12,604

Balance sheet and other

Total assets, start of year
$1,517,173
Total assets, end of year
$3,081,868
Total liabilities, end of year
$251,554
Net assets, end of year
$2,830,314
Publicly traded securities
$497,908
Net assets without donor restrictions
$1,832,406
Net assets with donor restrictions
$997,908
Gross receipts
$2,066,070
Employees
0
Volunteers
11
Year formed
2005
State of legal domicile
NY

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
ROBERT H BROWNMD DPHILSAB, CHAIR
Trustee or director
1$0
GALE KITTLECLINICAL EVALUATOR MEMBER
Trustee or director
1$0
JEFFREY ROTHSTEINMDPHDSAB, CHAIR
Trustee or director
1$0
TIMOTHY MILLER MD PHDSAB, CHAIR
Trustee or director
1$0
JINSY ANDREWS MD MSCCO-CHAIR
Trustee or director, Officer
5$0
CHRISTINA FOURNIERINVESTIGATOR MEMBER
Trustee or director
1$0
NICOLE TURCOTTECOORDINATOR MEMBER
Trustee or director
1$0
MATTHEW HARMSINVESTIGATOR MEMBER
Trustee or director
1$0
SABRINA PAGANONIINVESTIGATOR MEMBER
Trustee or director
1$0
ZACHARY SIMMONSINVESTIGATOR MEMBER
Trustee or director
1$0
JAMES BERRYCO-CHAIR
Trustee or director, Officer
5$0
CARLY ALLENDIRECTOR OF OPERATION
Officer
40$0
990 for the year ended December 31, 2023: 12 people
NameTitleHours / weekCompensation
ROBERT H BROWNMD DPHILSAB, CHAIR
Trustee or director
1$0
GALE KITTLECLINICAL EVALUATOR MEMBER
Trustee or director
1$0
JEFFREY ROTHSTEINMDPHDSAB, CHAIR
Trustee or director
1$0
TIMOTHY MILLER MD PHDSAB, CHAIR
Trustee or director
1$0
JINSY ANDREWS MD MSCCO-CHAIR
Trustee or director, Officer
5$0
RICHARD BEDLACK MD PHDINVESTIGATOR MEMBER
Trustee or director
1$0
NICOLE TURCOTTECOORDINATOR MEMBER
Trustee or director
1$0
MATTHEW HARMSINVESTIGATOR MEMBER
Trustee or director
1$0
SABRINA PAGANONIINVESTIGATOR MEMBER
Trustee or director
1$0
ZACHARY SIMMONSINVESTIGATOR MEMBER
Trustee or director
1$0
JAMES BERRYCO-CHAIR
Trustee or director, Officer
5$0
TARA LINCOLNDIRECTOR OF OPERATION
Officer
40$0

Address and contacts

Address (IRS master file)
200 PORTLAND STREET 5TH FLOOR, BOSTON, MA 02114-1722
In care of
% SUNY UPSTATE MEDICAL UNIVERSITY
Principal officer (990 for 2024)
CARLY ALLEN, 200 PORTLAND STREET 5TH FLOOR, BOSTON, MA 02114
Signed the 990
BEVERLY SMITS, ASSOCIATE PROGRAM DIRECTOR
Phone
(617) 858-4277
Return prepared by
BONADIO & CO LLP

Mission

THE MISSION OF NORTH EAST ALS CONSORTIUM (NEALS) IS TO TRANSLATE SCIENTIFIC ADVANCES INTO CLINCICAL RESEARCH AND NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE.

990 for the year ended December 31, 2024

Program accomplishments

  • THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO DISCUSS POTENTIAL TREATMENTS, TO REVIEW CURRENT RESEARCH ACTIVITIES, AND TO SHARE SCIENTIFIC UPDATES. THE NEALS SCIENCE ADVISORY BOARD IS RESPONSIBLE FOR ADVISING THE NEALS EXECUTIVE COMMITTEE AND NEALS MEMBERS ABOUT THE SCIENTIFIC BASIS OF NEALS RESEARCH ACTIVITIES. IN ADDITION, NEALS HAS BUILT AN EXTENSIVE ALS SAMPLE REPOSITORY AND MAINTAINED SEVERAL TRIAL DATABASES. IN THE SPIRIT OF COLLABORATION, WE MAKE RESOURCES SUCH AS THESE WIDELY AVAILABLE TO INVESTIGATORS CONDUCTING RESEARCH IN ALS.
    Expenses $298,146 · revenue $954,412

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
56-2547779
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2008
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H80)
Assets (IRS master file)
$3,081,868
Income (IRS master file)
$2,066,070

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$2,066,070$554,594$3,081,868XML
990December 2023$1,347,482$1,069,037$1,517,173XML
990December 2022$1,108,820$893,513$1,089,210IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS
990December 2017–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 56-2547779).

Questions about NORTHEAST ALS CONSORTIUM INC

What is the EIN of NORTHEAST ALS CONSORTIUM INC?
The employer identification number (EIN) of NORTHEAST ALS CONSORTIUM INC is 56-2547779.
Is NORTHEAST ALS CONSORTIUM INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2008.
Are donations to NORTHEAST ALS CONSORTIUM INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does NORTHEAST ALS CONSORTIUM INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of NORTHEAST ALS CONSORTIUM INC due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did NORTHEAST ALS CONSORTIUM INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of NORTHEAST ALS CONSORTIUM INC?
The 990 for the year ended December 31, 2024 names CARLY ALLEN.
Who are the officers and directors of NORTHEAST ALS CONSORTIUM INC?
The 990 for the year ended December 31, 2024 lists 12 people; 0 received compensation from the organization.
How much revenue does NORTHEAST ALS CONSORTIUM INC have?
On its 990 for the year ended December 31, 2024 it reported revenue of $2,066,070, expenses of $554,594 and total assets of $3,081,868 at year end.

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