2025-05-28T08:30:24-05:00 2023-12-31 161131146 BONADIO & CO LLP 432 NORTH FRANKLIN STREET SYRACUSE NY 13204 990 2023-01-01 562547779 NORTH EAST ALS CONSORTIUM INC NORT 6178584277 200 PORTLAND STREET 5TH FLOOR BOSTON MA 02114 CARLY ALLEN EXECUTIVE DIRECTOR 6178584277 2025-04-28 1 1 MICHELLE MUNDY P01982856 3154227109 2023 2025-03-06 01:10:19Z X CARLY ALLEN 200 PORTLAND STREET 5TH FLOOR BOSTON MA 02114 1347482 0 X WWW.NEALS.ORG X 2005 NY OUR MISSION IS TO TRANSLATE SCIENTIFIC ADVANCES INTO NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE. TO ACHIEVE OUR GOAL, NEALS FUNCTIONS AS AN ACADEMIC RESEARCH CONSORTIUM AND A RESOURCE TOOL FOR THE ALS COMMUNITY. NEALS IS COMMITTED TO THE PRINCIPLES OF OPEN SCIENTIFIC COMMUNICATION, PEER REVIEW, FULL AND OPEN DISCLOSURE OF POTENTIAL CONFLICTS OF INTEREST, AND DEMOCRATIC GOVERNANCE OF ITS ORGANIZATION AND ACTIVITIES. 11 11 0 0 0 0 6786 7982 1102034 1339500 0 0 0 0 1108820 1347482 0 0 0 0 0 0 0 0 15787 893513 1069037 893513 1069037 215307 278445 1105876 1517173 58570 191422 1047306 1325751 THE MISSION OF NORTH EAST ALS CONSORTIUM (NEALS) IS TO TRANSLATE SCIENTIFIC ADVANCES INTO CLINCICAL RESEARCH AND NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE. 0 0 825377 1339500 THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO DISCUSS POTENTIAL TREATMENTS, TO REVIEW CURRENT RESEARCH ACTIVITIES, AND TO SHARE SCIENTIFIC UPDATES. THE NEALS SCIENCE ADVISORY BOARD IS RESPONSIBLE FOR ADVISING THE NEALS EXECUTIVE COMMITTEE AND NEALS MEMBERS ABOUT THE SCIENTIFIC BASIS OF NEALS RESEARCH ACTIVITIES. IN ADDITION, NEALS HAS BUILT AN EXTENSIVE ALS SAMPLE REPOSITORY AND MAINTAINED SEVERAL TRIAL DATABASES. IN THE SPIRIT OF COLLABORATION, WE MAKE RESOURCES SUCH AS THESE WIDELY AVAILABLE TO INVESTIGATORS CONDUCTING RESEARCH IN ALS. 825377 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 NY MA X BEVERLY SMITS 6176690384 200 PORTLAND ST 5TH FLOOR BOSTON MA 02114 X ROBERT H BROWNMD DPHIL SAB, CHAIR 1.00 X 0 0 0 GALE KITTLE CLINICAL EVALUATOR MEMBER 1.00 X 0 0 0 JEFFREY ROTHSTEINMDPHD SAB, CHAIR 1.00 X 0 0 0 TIMOTHY MILLER MD PHD SAB, CHAIR 1.00 X 0 0 0 JINSY ANDREWS MD MSC CO-CHAIR 5.00 X X 0 0 0 RICHARD BEDLACK MD PHD INVESTIGATOR MEMBER 1.00 X 0 0 0 NICOLE TURCOTTE COORDINATOR MEMBER 1.00 X 0 0 0 MATTHEW HARMS INVESTIGATOR MEMBER 1.00 X 0 0 0 SABRINA PAGANONI INVESTIGATOR MEMBER 1.00 X 0 0 0 ZACHARY SIMMONS INVESTIGATOR MEMBER 1.00 X 0 0 0 JAMES BERRY CO-CHAIR 5.00 X X 0 0 0 TARA LINCOLN DIRECTOR OF OPERATION 40.00 X 0 0 0 0 0 0 0 0 0 0 0 7982 7982 GRANT INCOME 541700 444418 444418 SPONSORSHIP 541700 310001 310001 ANNUAL CONFERENCE - FE 541700 260980 260980 INFRASTRUCTURE SUPPORT 541700 202500 202500 MEMBERSHIP DUES 541700 121601 121601 1339500 1347482 1339500 0 0 315728 205223 94718 15787 5500 5500 56337 56337 26354 26354 11197 11197 16643 16643 708 708 ANNUAL MEETING 575682 575682 MEMBERSHIP REIMBURSEMEN 24699 24699 SCIENCE MEETING AND EXE 12122 7273 4849 PROVISION FOR CREDIT LO 12000 12000 12067 500 11567 1069037 825377 227873 15787 874160 1397373 226466 109800 5250 10000 1105876 1517173 58570 47340 144082 58570 191422 X 1047306 1325751 1047306 1325751 1105876 1517173 278445 0 X X 0 1 X 1 0 X 572963 370989 525426 325420 731283 2526081 572963 370989 525426 325420 731283 2526081 2526081 2526081 652505 1.00000 1.00000 X 0 1347482 0 1347482 0 1347482 1069037 0 1069037 0 1069037 FORM 990, PART VI, SECTION A, LINE 8B THERE ARE NO OTHER COMMITTEES. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION PROVIDES A COPY OF THE 990 TO ALL BOARD MEMBERS FOR REVIEW. FORM 990, PART VI, SECTION C, LINE 18 ALL DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. PART XII, LINE 2C PROCESS HAS NOT CHANGED FROM THE PREVIOUS YEAR. PART X, PART VII, PART IX THIS 990 HAS BEEN AMENDED. THIS IS DUE TO THE NUMBERS FOR THE AUDIT NOT BEING FINALIZED AT THE DUE DATE OF THE RETURN. THE BALANCE SHEET SAW CHANGES IN THE LIABILITIES AND NET ASSETS. THE STATEMENT OF REVENUE HAD SEVERAL CHANGES IN THE PROGRAM REVENUES. THE FUNCTIONAL EXPENSES SAW MINOR CHANGES IN A COUPLE LINE ITEMS.