Nonprofit · EIN 20-0588190
CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION
Tax-exempt · BOSTON, MA 02109
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $13,860,918 | $12,717,765 | $1,143,153 | $10,437,018 | $2,259,398 | $8,177,620 |
| December 31, 2024 | 990 | $12,747,191 | $11,106,124 | $1,641,067 | $8,399,697 | $1,499,181 | $6,900,516 |
| December 31, 2023 | 990 | $11,669,707 | $10,637,071 | $1,032,636 | $7,667,635 | $2,492,356 | $5,175,279 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $445,298
- Program service revenue
- $13,276,798
- Investment income
- $138,822
- Net gain from sales of assets
- $18,901
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $397,354
- Other salaries and wages
- $5,003,938
- Salaries, compensation and benefits (total)
- $6,561,961
- Professional fundraising fees
- $0
- Legal fees
- $14,413
- Accounting fees
- $39,085
- Occupancy
- $430,923
- Travel
- $167,820
- Depreciation
- $8,397
- Program services (functional)
- $10,809,441
- Management and general (functional)
- $1,472,125
- Fundraising (functional)
- $436,199
Balance sheet and other
- Total assets, start of year
- $8,399,697
- Total assets, end of year
- $10,437,018
- Total liabilities, end of year
- $2,259,398
- Net assets, end of year
- $8,177,620
- Publicly traded securities
- $2,603,105
- Net assets without donor restrictions
- $7,786,120
- Net assets with donor restrictions
- $391,500
- Gross receipts
- $14,922,528
- Employees
- 67
- Volunteers
- 50
- Year formed
- 2004
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CAROLINE CASEY | CFO & COO Officer | 40 | $267,554 | $37,530 |
| ANNICK DEBRUIN | CHIEF RESEARCH AND INSIGHTS OFFICER Highest-paid employee | 40 | $243,316 | $26,134 |
| JASMINE MASULLO | SR. DIRECTOR, RESEARCH SERVICES Highest-paid employee | 40 | $153,194 | $24,550 |
| KIM EDWARDS | SR. DIRECTOR, HEALTH COMM. SERVICES Highest-paid employee | 40 | $144,140 | $29,538 |
| BEHTASH BAHADOR | DIRECTOR, HEALTH LITERACY Highest-paid employee | 40 | $132,434 | $29,248 |
| JULIA FARIDES MITCHELL | DIRECTOR, HEALTH COMM. SERVICES Highest-paid employee | 40 | $130,850 | $22,025 |
| KENNETH GETZ | BOARD CHAIR Trustee or director, Officer | 8 | $91,502 | $0 |
| JORGE GUERRA | BOARD MEMBER (UNTIL 11/25) Trustee or director | 0.1 | $0 | $0 |
| JESSICA BLAUSTEIN | BOARD MEMBER Trustee or director | 0.1 | $0 | $0 |
| LEANNE MADRE | BOARD MEMBER Trustee or director | 0.1 | $0 | $0 |
| PETER DIBIASO | BOARD MEMBER (AS OF 11/25) Trustee or director | 0.1 | $0 | $0 |
990 for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CAROLINE CASEY | CFO & COO Officer | 40 | $249,474 | $33,834 |
| ANNICK DEBRUIN | CHIEF RESEARCH AND INSIGHTS OFFICER Highest-paid employee | 40 | $226,892 | $24,198 |
| KIM EDWARDS | SR. DIRECTOR, HEALTH COMM. SERVICES Highest-paid employee | 40 | $144,502 | $27,322 |
| BEHTASH BAHADOR | DIRECTOR, HEALTH LITERACY Highest-paid employee | 40 | $126,107 | $26,704 |
| TRICIA BRAMLEY | DIRECTOR, MARKETING, COMM., & EDUCATION Highest-paid employee | 40 | $126,306 | $13,208 |
| JULIA FARIDES MITCHELL | DIRECTOR, HEALTH COMM. SERVICES Highest-paid employee | 40 | $128,855 | $5,561 |
| KENNETH GETZ | BOARD CHAIR Trustee or director, Officer | 8 | $87,983 | $0 |
| JORGE GUERRA | BOARD MEMBER Trustee or director | 0.1 | $0 | $0 |
| JESSICA BLAUSTEIN | BOARD MEMBER Trustee or director | 0.1 | $0 | $0 |
| LEANNE MADRE | BOARD MEMBER Trustee or director | 0.1 | $0 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CAROLINE CASEY | CFO Officer | 40 | $228,849 | $30,028 |
| ANNICK DEBRUIN | SR. DIRECTOR, RESEARCH SERVICES Highest-paid employee | 40 | $201,411 | $21,586 |
| KIM EDWARDS | SR. DIRECTOR, HEALTH COMMUNICATION SERVICES Highest-paid employee | 40 | $142,833 | $19,458 |
| JASMINE BENGER | DIRECTOR, RESEARCH SERVICES Highest-paid employee | 40 | $141,591 | $12,764 |
| JILL MCNAIR | SR. DIRECTOR, HEALTH COMMUNICATION SERVICES Highest-paid employee | 40 | $148,703 | $4,261 |
| BEHTASH BAHADOR | DIRECTOR, HEALTH LITERACY Highest-paid employee | 40 | $119,720 | $24,541 |
| KENNETH GETZ | BOARD CHAIR Trustee or director, Officer | 8 | $84,740 | $0 |
| JORGE GUERRA | BOARD MEMBER Trustee or director | 0.1 | $0 | $0 |
| JESSICA BLAUSTEIN | BOARD MEMBER Trustee or director | 0.1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1 LIBERTY SQ STE 1100, BOSTON, MA 02109-4947
- In care of
- % RONI THALER
- Principal officer (990 for 2025)
- CAROLINE CASEY, 1 LIBERTY SQUARE 1100, BOSTON, MA 02109
- Signed the 990
- CAROLINE CASEY, CFO & COO
- Phone
- (617) 725-2750
- Website
- WWW.CISCRP.ORG
- Return prepared by
- AAFCPAS INC
Mission
OUR CORE MISSION IS TO PROVIDE ACCESSIBLE, RELEVANT, USEFUL, HIGH-QUALITY EDUCATIONAL RESOURCES, PROGRAMS, AND SERVICES THAT INCREASE AWARENESS AND UNDERSTANDING OF THE CLINICAL RESEARCH PROCESS; RECOGNIZE AND APPRECIATE THE UNPRECEDENTED GIFT OF PARTICIPATION IN CLINICAL TRIALS; ENHANCE AND ENRICH THE PARTICIPATION EXPERIENCE FOR PATIENTS AND THEIR FAMILIES; AND PROMOTE ENGAGEMENT AND PARTNERSHIP BETWEEN CLINICAL RESEARCH PROFESSIONALS, PATIENTS, AND THE PUBLIC.
Program accomplishments
- HEALTH COMMUNICATION SERVICES - PROVIDE STUDY VOLUNTEERS WITH THE RESULTS OF THEIR CLINICAL TRIAL BY CREATING AND DELIVERING PLAIN LANGUAGE SUMMARIES, PLAIN LANGUAGE TRANSLATIONS OF INFORMED CONSENT DOCUMENTS, LEGAL DOCUMENTS, WEBSITES, PLAIN LANGUAGE SUMMARIES OF PUBLICATIONS & PROTOCOL SYNOPSES. HEALTH LITERACY EDUCATION AND WORKSHOPS.Expenses $6,693,485 · revenue $8,945,979
- RESEARCH SERVICES - ENGAGING PATIENTS AND THEIR SUPPORT NETWORK TO OBTAIN MEANINGFUL INSIGHTS FOR SPONSORS - INCLUDING BUT NOT LIMITED TO PHARMACEUTICAL, BIOTECHNOLOGY AND MEDICAL DEVICE COMPANIES, CONTRACT RESEARCH ORGANIZATIONS, ACADEMIC AND FOR-PROFIT INSTITUTIONS, FOUNDATIONS AND NONPROFIT ORGANIZATIONS. PROVIDE PATIENT & CARE PARTNER ADVISORY BOARDS, CLINICAL TRIAL JOURNEY WORKSHOPS, AND CUSTOM RESEARCH PROJECTS.Expenses $2,433,503 · revenue $3,905,376
- CONTENT LICENSING - LICENSING OR PURCHASE OF CISCRP EDUCATIONAL CONTENT, VIDEOS AND BROCHURES.Expenses $1,052,551 · revenue $425,443
- MARKETING - PROVIDE EDUCATIONAL MATERIALS TO HELP THE PUBLIC LEARN ABOUT CLINICAL RESEARCH AND WHAT IT MEANS TO BE A CLINICAL RESEARCH VOLUNTEER. MINORITY OUTREACH MEDIA CAMPAIGN TO HIGHLIGHT THE IMPORTANCE OF DIVERSITY AMONG CLINICAL STUDY PARTICIPANTS.Expenses $629,902
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 20-0588190
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2004
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H99)
- Assets (IRS master file)
- $10,437,018
- Income (IRS master file)
- $14,922,528
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $13,860,918 | $12,717,765 | $10,437,018 | IRS |
| 990 | December 2024 | $12,747,191 | $11,106,124 | $8,399,697 | XML |
| 990 | December 2023 | $11,669,707 | $10,637,071 | $7,667,635 | XML |
| 990 | December 2022 | $8,654,803 | $8,577,457 | $6,262,145 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-0588190).
Questions about CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION
- What is the EIN of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION?
- The employer identification number (EIN) of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION is 20-0588190.
- Is CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2004.
- Are donations to CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION?
- The 990 for the year ended December 31, 2025 names CAROLINE CASEY.
- Who are the officers and directors of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION?
- The 990 for the year ended December 31, 2025 lists 11 people; 7 received compensation from the organization, the highest $267,554 (CAROLINE CASEY, CFO & COO).
- How much revenue does CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $13,860,918, expenses of $12,717,765 and total assets of $10,437,018 at year end.
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