Nonprofit · EIN 56-1784846
RESTLESS LEGS SYNDROME FOUNDATION INC
Tax-exempt · AUSTIN, TX 78746
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $1,232,770 | $1,228,928 | $3,842 | $1,001,183 | $211,504 | $789,679 |
| September 30, 2024 | 990 | $1,112,279 | $1,167,615 | -$55,336 | $1,086,987 | $313,268 | $773,719 |
| September 30, 2023 | 990 | $938,927 | $873,955 | $64,972 | $923,433 | $116,411 | $807,022 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $1,201,567
- Membership dues
- $133,193
- Program service revenue
- $5,000
- Investment income
- $23,123
- Net gain from sales of assets
- $1,037
- Other revenue
- $3,080
Expenses
- Grants and similar amounts paid
- $209,482
- Compensation of officers, directors and key employees
- $145,030
- Other salaries and wages
- $139,892
- Salaries, compensation and benefits (total)
- $330,202
- Professional fundraising fees
- $59,448
- Accounting fees
- $68,187
- Occupancy
- $53,501
- Travel
- $4,665
- Depreciation
- $13,095
- Program services (functional)
- $1,013,291
- Management and general (functional)
- $112,438
- Fundraising (functional)
- $103,199
Balance sheet and other
- Total assets, start of year
- $1,086,987
- Total assets, end of year
- $1,001,183
- Total liabilities, end of year
- $211,504
- Net assets, end of year
- $789,679
- Land, buildings and equipment
- $31,900
- Publicly traded securities
- $531,360
- Net assets without donor restrictions
- $549,035
- Net assets with donor restrictions
- $240,644
- Gross unrelated business income
- $5,000
- Gross receipts
- $1,708,869
- Employees
- 6
- Volunteers
- 98
- Year formed
- 1993
- State of legal domicile
- TX
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KARLA DZIENKOWSKI | EXECUTIVE DI Officer | 40 | $134,808 | $13,481 |
| JEFFREY DURMER | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| DAVID LOSKUTOFF | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| GREG OBERLAND | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| MARCIA BALL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KUNAL AGARWAL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JIM FLANIKEN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| AVINASH AGGARWAL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| BILL WENDT | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LEWIS PHELPS | DIRECTOR(10/ Trustee or director | 2 | $0 | $0 |
| LAURA SCOTT HOFFMAN | DIRECTOR(10- Trustee or director | 2 | $0 | $0 |
| PAUL VICARY | DIRECTOR(10- Trustee or director | 2 | $0 | $0 |
| DONNIE KEE | DIRECTOR(10/ Trustee or director | 2 | $0 | $0 |
990 for the year ended September 30, 2024: 16 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KARLA DZIENKOWSKI | EXECUTIVE DI Officer | 40 | $119,808 | $11,981 |
| SHALINI PARUTHI | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| DAVID LOSKUTOFF | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| GREG OBERLAND | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| LEWIS PHELPS | CHAIR EMERIT Trustee or director, Officer | 2 | $0 | $0 |
| MARCIA BALL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JACQUELYN BAINBRIDGE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JEFFREY DURMER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LAURA SCOTT HOFFMAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL ROCHESTER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL VICARY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KUNAL AGARWAL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JIM FLANIKEN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| AVINASH AGGARWAL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| BILL WENDT | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DONNIE KEE | DIRECTOR Trustee or director | 2 | $0 | $0 |
990 for the year ended September 30, 2023: 11 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KARLA DZIENKOWSKI | EXECUTIVE DI Officer | 40 | $90,000 | $9,000 |
| SHALINI PARUTHI | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| DAVID LOSKUTOFF | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| GREG OBERLAND | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| LEWIS PHELPS | CHAIR EMERIT Trustee or director, Officer | 2 | $0 | $0 |
| MARCIA BALL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JACQUELYN BAINBRIDGE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JEFFREY DURMER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LAURA SCOTT HOFFMAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL ROCHESTER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL VICARY | DIRECTOR Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 3006 BEE CAVES RD STE D206, AUSTIN, TX 78746-5579
- In care of
- % WILFRED NAVARRO
- Principal officer (990 for 2024)
- KARLA DZIENKOWSKI, 3006 BEE CAVES RD D-206, AUSTIN, TX 78746
- Signed the 990
- KARLA DZIENKOWSKI, EXECUTIVE DIRECTOR
- Phone
- (512) 366-9109
- Website
- WWW.RLS.ORG
- Return prepared by
- REYNOLDS & FRANKE PC
Mission
THE CORPORATION IS ORGANIZED TO INCREASE SCIENTIFIC AND PUBLIC UNDERSTANDING OF RESTLESS LEGS SYNDROME OR RLS, TO ENCOURAGE AND PROVIDE FUNDING FOR RESEARCH LEADING TO TREATMENTS AND CURE FOR THE DISEASE, TO PROVIDE SUPPORT TO THOSE SUFFERING FROM THE DISEASE, TO BE THE LEADING CENTER FOR INFORMATION ON ALL ASPECTS OF THE DISEASE, AND TO CARRY ON SUCH OTHER ACTIVITIES RELATED TO THE DISEASE, ITS TREATMENTS AND CURE, AS MAY BE DESIGNATED BY THE BOARD FROM TIME TO TIME.
Program accomplishments
- EDUCATIONAL. PROVIDING TRUSTED, UNBIASED INFORMATION ABOUT RESTLESS LEG SYNDROME TO INDIVIDUALS AND HEALTHCARE PROVIDERS THROUGH PUBLICATIONS, WEBINARS, A WEBSITE, SOCIAL MEDIA SITES, AND DIRECT COMMUNICATIONS. PUBLICATIONS INCLUDE: A GENERAL INFORMATIONAL BROCHURE ON RLS AND RLS AND PLMD IN CHILDREN AND ADOLESCENTS; RLS GUIDE FOR TEENS, RLS GUIDE FOR CHILDREN, TWENTY-FOUR DIFFERENT HANDOUTS ON RLS SPECIFIC TOPICS DIRECTED TOWARDS PATIENTS; A QUARTERLY NEWS MAGAZINE; MONTHLY ONLINE E-NEWSLETTER; TWO SPECIALTY BROCHURES DIRECTED TO HEALTHCARE PROVIDERS; AND A MEDICAL BULLETIN ISSUED AS DEVELOPMENTS MERIT. DURING THIS FISCAL YEAR, NINE WEBINARS ON RLS-RELATED TOPICS WERE OFFERED TO THE PUBLIC. OVER 1200 REGISTRANTS VIEWED THESE WEBINARS. THE 12-PART EDUCATIONAL PHYSICIAN WEBINAR SERIES WAS OPEN TO PHYSICIANS, NURSE PRACTITIONERS AND PHYSICIAN ASSISTANTS TO ENHANCE CLINICAL KNOWLEDGE REGARDING DIAGNOSIS, TREATMENT AND MANAGEMENT OF RLS PATIENTS. THIS WEBINAR SERIES IS AVAILABLE ON DEMAND. THE ORGANIZATION'S WEBSITE WWW.RLS.ORG ATTRACTS OVER 640,000 ONLINE VISITORS THAT GENERATE OVER 27,900,00 PAGE VIEWS EACH YEAR. THE RLS FACEBOOK PAGE HAS 14,595 SUPPORTERS AND PARTICIPANTS. THE RLSF BLOG HAS RECEIVED OVER 1,878,417 PAGE VIEWS AND THE RLS FOUNDATION YOUTUBE CHANNEL HAS RECEIVED OVER 271.5K VIEWS. THE FOUNDATION EXECUTES A PUBLIC POLICY INITIATIVE PROGRAM WHOSE GOALS ARE TO RAISE AWARENESS AND PROVIDE EDUCATION AROUND THREE SPECIFIC AREAS: WHAT IS RLS AND HOW MANY ARE AFFECTED; THE NEED FOR INCREASED MEDICAL RESEARCH FUNDING; AND THE NEED FOR ACCESS TO APPROPRIATE TREATMENT FOR INDIVIDUALS WITH RLS.Expenses $493,760 · revenue $5,000
- MEMBERSHIP. THE RLS FOUNDATION SERVES AS A SUPPORT STRUCTURE FOR OVER 640,000 INDIVIDUALS WHO, ON AN ANNUAL BASIS, SEEK INFORMATION ON RLS, EITHER AS ONE WHO HAS RLS OR AS ONE WHO HAS A FRIEND OR LOVED ONE WHO SUFFERS FROM THE DISEASE. 5,400 MEMBERS HAVE JOINED THE RLS FOUNDATION AND TAKE ADVANTAGE OF THE CLEARINGHOUSE OF SERVICES THAT PROVIDE INFORMATION ON LATEST DEVELOPMENTS IN TREATMENT, COUNSELING AND CONVERSATION WITH OTHERS WHO SHARE THE AFFLICTION. OVER 160 MEDICAL PROFESSIONALS SPECIALIZING IN THE TREATMENT OF RLS ARE MEMBERS OF THE HEALTHCARE PROVIDER DIRECTORY. MEMBER BENEFITS INCLUDE ACCESS TO A PROPRIETARY COLLECTION OF EDUCATIONAL MATERIALS INCLUDING AN RLS MEDICAL BULLETIN FOR HEALTHCARE PROVIDERS, A QUARTERLY NEWS MAGAZINE, A MONTHLY E-NEWSLETTER, A MEDICAL-ALERT CARD AND ACCESS TO THE MEMBERS-ONLY SECTION OF THE RLS WEBSITE. THE FOUNDATION PROVIDES SCHOLARSHIP MEMBERSHIPS FOR THOSE NEEDING ASSISTANCE AND NEVER TURNS ANYONE AWAY SEEKING INFORMATION AND SUPPORT. THE MEMBER WEBSITE PROVIDES VISITORS WITH INFORMATION ABOUT RLS, TREATMENT GUIDELINES, RESEARCH ADVANCEMENTS, ADVOCACY OUTREACH, DISCUSSION PANELS AND LINKS TO RLS FOUNDATION SOCIAL MEDIA SITES.Expenses $235,898
- RESEARCH. THE RLSF SUPPORTS AND FUNDS RLS RELATED RESEARCH PROJECTS. DURING THE CURRENT FISCAL YEAR, FIVE RESEARCH GRANTS WERE AWARDED: ONE GRANT WAS AWARDED FOR THE MULTI-CENTER LONGITUDINAL PILOT OBSERVATIONAL STUDY OF THE EFFICACY AND TOLERABILITY OF LONG-TERM TREATMENT OF RLS USING OPIOIDS (OPIOID REGISTRY), DEFECTIVE TRANSFERRIN RECEPTOR REGULATION IN THE BLOOD- BRAIN BARRIER ENDOTHELIAL CELLS UNDERLIES BRAIN IRON INSUFFICIENCY IN RLS, PROTEOMIC APPROACH TO UNDERSTANDING THE MECHANISM OF ACTION FOR EXERCISE AS A NON-PHARMACOLOGICAL MANAGEMENT METHOD IN RLS : A PILOT STUDY, CEREBROSPINAL FLUID MELANOCORTIN AND ENDORPHIN IN RESTLESS LEGS SYNDROME- RELATED AUGMENTATION, AND INVOLVEMENT OF CALCITONIN GENE-RELATED PEPTIDE (CGRP) IN RESTLESS LEGS SYNDROME (RLS): CEREBROSPINAL FLUID PROTEOMICS ANALYSIS.Expenses $227,229 · grants $209,482
- SUPPORT GROUPS: THE RLS FOUNDATION SUPPORTS SIXTY-ONE SUPPORT GROUP LEADERS, VIRTUAL SUPPORT GROUP LEADERS AND CONTACT VOLUNTEERS IN TWENTY-ONE STATES AND CANADA. EACH LEADER HOLDS AT LEAST ONE IN-PERSON MEETING PER YEAR IN THEIR LOCAL COMMUNITY. AT THESE MEETINGS, RLS FOUNDATION EDUCATIONAL MATERIALS ARE DISTRIBUTED TO ATTENDEES. SUPPORT GROUP LEADERS MAY WORK WITH A MEDICAL SPEAKER TO PRESENT ON RLS TOPICS OF INTEREST. LOCAL SUPPORT GROUP LEADERS SUGGEST OTHER MEETING PRESENTERS AND FACILITATE CONVERSATIONS THAT PROVIDE OVERALL SUPPORT TO THE GROUP. VIRTUAL SUPPORT GROUPS (VSG), PROGRAM IS AN RLSF PROGRAM THAT PROVIDES FOUR REGULARLY SCHEDULED MONTHLY VIRTUAL GROUP MEETINGS TO CONNECT AND SUPPORT INDIVIDUALS WITH RLS USING VIDEO CONFERENCING ACCESSIBLE TO ALL IN THE RLS COMMUNITY. RLSF EDUCATIONAL MATERIALS FOR DOWNLOAD ARE GIVEN TO VSG ATTENDEES. THE NUMBER OF INDIVIDUALS REACHED THROUGH VIRTUAL SUPPORT GROUPS 400+, WITH OVER 300 UNIQUE VISITORS ATTENDING MULTIPLE MEETINGS THROUGHOUT THE YEAR.Expenses $56,404
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 16, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 17, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 18, 2025 | 990 on file |
IRS record
- EIN
- 56-1784846
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1993
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H99Z)
- Assets (IRS master file)
- $1,001,183
- Income (IRS master file)
- $1,708,869
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $1,232,770 | $1,228,928 | $1,001,183 | XML |
| 990-T | September 2025 | – | – | – | IRS |
| 990 | September 2024 | $1,112,279 | $1,167,615 | $1,086,987 | IRS |
| 990-T | September 2024 | – | – | – | IRS |
| 990 | September 2023 | $938,927 | $873,955 | $923,433 | XML |
| 990 | September 2022 | $944,438 | $777,191 | $795,669 | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990 | September 2019 | – | – | – | IRS |
| 990 | September 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 56-1784846).
Questions about RESTLESS LEGS SYNDROME FOUNDATION INC
- What is the EIN of RESTLESS LEGS SYNDROME FOUNDATION INC?
- The employer identification number (EIN) of RESTLESS LEGS SYNDROME FOUNDATION INC is 56-1784846.
- Is RESTLESS LEGS SYNDROME FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1993.
- Are donations to RESTLESS LEGS SYNDROME FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does RESTLESS LEGS SYNDROME FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of RESTLESS LEGS SYNDROME FOUNDATION INC due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did RESTLESS LEGS SYNDROME FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of RESTLESS LEGS SYNDROME FOUNDATION INC?
- The 990 for the year ended September 30, 2025 names KARLA DZIENKOWSKI.
- Who are the officers and directors of RESTLESS LEGS SYNDROME FOUNDATION INC?
- The 990 for the year ended September 30, 2025 lists 13 people; 1 received compensation from the organization, the highest $134,808 (KARLA DZIENKOWSKI, EXECUTIVE DI).
- How much revenue does RESTLESS LEGS SYNDROME FOUNDATION INC have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $1,232,770, expenses of $1,228,928 and total assets of $1,001,183 at year end.
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