Nonprofit · EIN 26-3160079
FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
Also known as FAST & ALSO DBA CUREANGELMAN-ORG
Tax-exempt · AUSTIN, TX 78731
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $5,388,260 | $10,391,969 | -$5,003,709 | $44,915,881 | $4,707,817 | $40,208,064 |
| December 31, 2023 | 990 | $6,525,815 | $23,229,158 | -$16,703,343 | $58,430,242 | $18,609,384 | $39,820,858 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $3,723,744
- Program service revenue
- $0
- Investment income
- $1,677,094
- Net gain from sales of assets
- $202,160
- Net income from fundraising events
- -$52,118
- Other revenue
- -$12,578
Expenses
- Grants and similar amounts paid
- $3,698,573
- Compensation of officers, directors and key employees
- $763,697
- Other salaries and wages
- $2,030,293
- Salaries, compensation and benefits (total)
- $2,926,752
- Professional fundraising fees
- $0
- Legal fees
- $798,599
- Travel
- $126,080
- Program services (functional)
- $9,231,557
- Management and general (functional)
- $761,807
- Fundraising (functional)
- $398,605
Balance sheet and other
- Total assets, start of year
- $58,430,242
- Total assets, end of year
- $44,915,881
- Total liabilities, end of year
- $4,707,817
- Net assets, end of year
- $40,208,064
- Net assets without donor restrictions
- $40,192,607
- Net assets with donor restrictions
- $15,457
- Gross receipts
- $9,721,341
- Employees
- 11
- Volunteers
- 291
- Year formed
- 2008
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | From related orgs |
|---|---|---|---|---|
| ALLYSON BERENT | CHIEF SCIENCE OFFICER Trustee or director, Officer | 2 | $0 | $509,945 |
| RYAN K FISCHER | CHIEF OPERATING OFICER Officer | 40 | $286,130 | $0 |
| ALANA NEWHOUSE | PRESIDENT/CEO Officer | 40 | $245,000 | $0 |
| KENA PEARSON | CHIEF FINANCIAL OFFICER Officer | 40 | $232,568 | $0 |
| MICHELE GOLOMBUSKI | CHIEF DEVELOPMENT OFFICER Officer | 40 | $210,068 | $0 |
| RYAN JACOB | CHAIRPERSON Trustee or director, Officer | 18 | $0 | $0 |
| MICHAEL HANRAHAN | VICE CHAIRPERSON AND TR Trustee or director, Officer | 10 | $0 | $0 |
| GUY SHAPIRAL | TRESURER Trustee or director, Officer | 15 | $0 | $0 |
| AMELIA BEATTY | SECRETARY Trustee or director | 15 | $0 | $0 |
| KARLY WARNER | DIRECTOR Trustee or director | 5 | $0 | $0 |
| JOHN SCHLUETER | DIRECTOR Trustee or director | 15 | $0 | $0 |
| KELLY DAVID | DIRECTOR Trustee or director, Officer | 10 | $0 | $0 |
| BEN O'CONNOR | DIRECTOR Trustee or director | 5 | $0 | $0 |
| ROY AZOUT | DIRECTOR Trustee or director | 5 | $0 | $0 |
| LAUREN HOFFER | DIRECTOR Trustee or director | 5 | $0 | $0 |
1 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| NORA XU | DIRECTOR Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 16 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| RYAN K FISCHER | CHIEF OPERATING OFICER Officer | 40 | $198,051 |
| KENA RICHERT | CHIEF FINANCIAL OFFICER Officer | 40 | $191,948 |
| ALANA NEWHOUSE | PRESIDENT/CEO Officer | 40 | $177,800 |
| MAIDDY DUNIGAN | FORMER OFFICER AND COO Former | 0 | $36,755 |
| RYAN JACOB | CHAIRPERSON Trustee or director, Officer | 18 | $0 |
| KELLY DAVID | CO-VICE CHAIRPERSON Trustee or director, Officer | 20 | $0 |
| MICHAEL HANRAHAN | CO-VICE CHAIRPERSON AND TR Trustee or director, Officer | 10 | $0 |
| KRISTY DIXON | TRESURER Trustee or director, Officer | 15 | $0 |
| AMELIA BEATTY | SECRETARY Trustee or director | 15 | $0 |
| ROY AZOUT | DIRECTOR Trustee or director | 5 | $0 |
| JOHN SCHLUETER | DIRECTOR Trustee or director | 30 | $0 |
| NORA XU | DIRECTOR Trustee or director | 5 | $0 |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER Trustee or director | 40 | $0 |
| LAUREN HOFFER | DIRECTOR Trustee or director | 5 | $0 |
| MEGAN CROSS | CHIEF INFORMATION OFFICER Trustee or director | 5 | $0 |
| BEN O'CONNOR | DIRECTOR Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 5900 BALCONES DRIVE 8754, AUSTIN, TX 78731-4257
- In care of
- % MAIDDY DUNIGAN
- Principal officer (990 for 2024)
- RYAN JACOB, 5900 BALCONES DRIVE 8754, AUSTIN, TX 78731
- Signed the 990
- RYAN JACOB, CHAIRPERSON
- Phone
- (866) 783-0078
- Website
- WWW.CUREANGELMAN.ORG
- Return prepared by
- HEGRE MCMAHON & SCHIMMEL LLC
Mission
ANGELMAN SYNDROME (AS) IS A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS AND SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE OF GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE AND AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY AND INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING IS IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUAL'S ABILITY TO LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS IS AN ORGANIZATION OF FAMILIES AND PROFESSIONALS DEDICATED TO FINDING A CURE FOR AS AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, AND COMMUNITY SUPPORT. FAST IS COMMITTED TO ASSISTING INDIVIDUALS LIVING WITH AS TO REALIZE THEIR FULL POTENTIAL AND QUALITY OF LIFE.
Program accomplishments
- FAST'S PRIMARY GOAL IS TO ADVANCE RESEARCH LEADING TO A CURE FOR AS IN THE FORM OF PROVIDING GRANTS TO UNIVERSITIES TO PERFORM RESEARCH AND TESTING.Expenses $3,698,573 · grants $3,698,573
- AS IS A RARE DISORDER. THE COMMUNITY OF PARENTS AND CAREGIVERS OF INDIVIDUALS WITH AS RELY HEAVILY ON SOCIAL NETWORKING TO BECOME INFORMED AND SEEK ADVICE AND GUIDANCE ON THE CHALLENGES WHICH THE DISORDER PRESENTS. IT IS ONE OF FAST'S OBJECTIVES TO EDUCATE, SUPPORT, AND STRENGTHEN THIS COMMUNITY.Expenses $5,532,984
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Check at the IRS |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 26-3160079
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2008
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H12)
- Assets (IRS master file)
- $88,224,535
- Income (IRS master file)
- $39,002,172
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $5,388,260 | $10,391,969 | $44,915,881 | XML |
| 990 | December 2023 | $6,525,815 | $23,229,158 | $58,430,242 | XML |
| 990 | December 2022 | $52,477,819 | $8,933,021 | $63,075,354 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-3160079).
Questions about FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
- What is the EIN of FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS?
- The employer identification number (EIN) of FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS is 26-3160079.
- Is FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2008.
- Are donations to FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS?
- The 990 for the year ended December 31, 2024 names RYAN JACOB.
- Who are the officers and directors of FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS?
- The 990 for the year ended December 31, 2024 lists 16 people; 4 received compensation from the organization.
- How much revenue does FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $5,388,260, expenses of $10,391,969 and total assets of $44,915,881 at year end.
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