Nonprofit · EIN 54-1753869
CONNECTIVE TISSUE ONCOLOGY SOCIETY
Tax-exempt · ALEXANDRIA, VA 22320
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $2,352,142 | $2,195,866 | $156,276 | $1,853,369 | $1,500 | $1,851,869 |
| December 31, 2024 | 990 | $1,823,765 | $2,048,655 | -$224,890 | $1,717,562 | $21,718 | $1,695,844 |
| December 31, 2023 | 990 | $1,933,129 | $1,714,189 | $218,940 | $1,931,646 | $10,912 | $1,920,734 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $1,585,797
- Membership dues
- $159,161
- Program service revenue
- $682,122
- Investment income
- $63,061
- Other revenue
- $21,162
Expenses
- Grants and similar amounts paid
- $2,000
- Compensation of officers, directors and key employees
- $286,320
- Other salaries and wages
- $130,000
- Salaries, compensation and benefits (total)
- $416,320
- Professional fundraising fees
- $0
- Accounting fees
- $7,133
- Travel
- $40,643
- Program services (functional)
- $1,974,041
- Management and general (functional)
- $221,825
Balance sheet and other
- Total assets, start of year
- $1,717,562
- Total assets, end of year
- $1,853,369
- Total liabilities, end of year
- $1,500
- Net assets, end of year
- $1,851,869
- Net assets without donor restrictions
- $1,851,869
- Gross receipts
- $2,352,142
- Employees
- 0
- Volunteers
- 16
- Year formed
- 1995
- State of legal domicile
- VA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BARBARA RAPP | EXECUTIVE DIRECTOR Officer | 30 | $286,320 |
| DAMON REED MD | IMMEDIATE PAST PRESIDENT Trustee or director, Officer | 1 | $0 |
| SILVIA STACCHIOTI MD | PRESIDENT Trustee or director, Officer | 2 | $0 |
| ROBIN JONES MD | VICE PRESIDENT Trustee or director, Officer | 2 | $0 |
| MAUREEN O'SULLIVAN MD | SECRETARY Trustee or director, Officer | 2 | $0 |
| ABHA GUPTA MD | TREASURER Trustee or director, Officer | 2 | $0 |
| SANDRA D'ANGELO MD | DIRECTOR Trustee or director | 1 | $0 |
| REBECCA GLADDY MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| NADIA HINDI MD | DIRECTOR Trustee or director | 1 | $0 |
| TORSTEN NIELSON MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| ASHLEIGH GUADAGNOLO MD | DIRECTOR Trustee or director | 1 | $0 |
| SEBASTIAN BAUER MD | DIRECTOR Trustee or director | 1 | $0 |
| PAUL HUANG MD | DIRECTOR Trustee or director | 1 | $0 |
| ANA SEBIO MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| JASON SICKLICK MD FACS | DIRECTOR Trustee or director | 1 | $0 |
2 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ODION BINITIE MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| TOM CHEN MD | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 17 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BARBARA RAPP | EXECUTIVE DIRECTOR Officer | 30 | $278,000 |
| CAROL SWALLOW MD PHD | IMMEDIATE PAST PRESIDENT Trustee or director, Officer | 1 | $0 |
| DAMON REED MD | PRESIDENT Trustee or director, Officer | 2 | $0 |
| SILVIA STACCHIOTI MD | VICE PRESIDENT Trustee or director, Officer | 2 | $0 |
| ROBIN JONES MD | SECRETARY Trustee or director, Officer | 2 | $0 |
| MAUREEN O'SULLIVAN MD | TREASURER Trustee or director, Officer | 2 | $0 |
| INGA-MARIE SCHAEFER MD | DIRECTOR Trustee or director | 1 | $0 |
| HERBERT LOONG MD | DIRECTOR Trustee or director | 1 | $0 |
| CHANDRAJIT RAUT MD | DIRECTOR Trustee or director | 1 | $0 |
| NOAH FEDERMAN MD | DIRECTOR Trustee or director | 1 | $0 |
| SANDRA D'ANGELO MD | DIRECTOR Trustee or director | 1 | $0 |
| REBECCA GLADDY MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| NADIA HINDI MD | DIRECTOR Trustee or director | 1 | $0 |
| TORSTEN NIELSON MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| ASHLEIGH GUADAGNOLO MD | DIRECTOR Trustee or director | 1 | $0 |
| SEBASTIAN BAUER MD | DIRECTOR Trustee or director | 1 | $0 |
| PAUL HUANG MD | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 17 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BARBARA RAPP | EXECUTIVE DIRECTOR Officer | 30 | $350,000 |
| WILLIAM TAP MD | PAST PRESIDENT Trustee or director, Officer | 1 | $0 |
| CAROL SWALLOW MD PHD | PRESIDENT Trustee or director, Officer | 2 | $0 |
| DAMON REED MD | VICE PRESIDENT Trustee or director, Officer | 2 | $0 |
| SILVIA STACCHIOTI MD | SECRETARY Trustee or director, Officer | 2 | $0 |
| ROBIN JONES MD | TREASURER Trustee or director, Officer | 2 | $0 |
| BERND KASPER MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| MARGARET VON MEHREN MD | DIRECTOR Trustee or director | 1 | $0 |
| E ALEJANDRO SWEET-CORDERO MD | DIRECTOR Trustee or director | 1 | $0 |
| INGA-MARIE SCHAEFER MD | DIRECTOR Trustee or director | 1 | $0 |
| HERBERT LOONG MD | DIRECTOR Trustee or director | 1 | $0 |
| CHANDRAJIT RAUT MD | DIRECTOR Trustee or director | 1 | $0 |
| NOAH FEDERMAN MD | DIRECTOR Trustee or director | 1 | $0 |
| SANDRA D'ANGELO MD | DIRECTOR Trustee or director | 1 | $0 |
| REBECCA GLADDY MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| NADIA HINDI MD | DIRECTOR Trustee or director | 1 | $0 |
| TORSTEN NIELSON MD PHD | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 320574, ALEXANDRIA, VA 22320-4574
- Principal officer (990 for 2025)
- Barbara Rapp, PO Box 320574, Alexandria, VA 22320
- Signed the 990
- Barbara Rapp, Executive Director
- Phone
- (301) 502-7371
- Website
- WWW.CTOS.ORG
- Return prepared by
- Connective Tissue Oncology Society
Mission
THE SOCIETY'S PURPOSE IS TO PROMOTE EDUCATION, RESEARCH, AND PATIENT CARE THROUGH THE ADVANCEMENT OF CONNECTIVE TISSUE ONCOLOGY AND ONCOLOGY RESEARCH.
Program accomplishments
- ANNUAL CONFERENCE - HELD TO PROMOTE EDUCATION, RESEARCH, AND PATIENT CARE IN THE FIELD OF CONNECTIVE TISSUE ONCOLOGY.Expenses $1,974,041 · grants $2,000 · revenue $2,108,758
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 54-1753869
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1998
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Education (B99)
- Assets (IRS master file)
- $1,853,369
- Income (IRS master file)
- $2,352,142
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $2,352,142 | $2,195,866 | $1,853,369 | IRS |
| 990 | December 2024 | $1,823,765 | $2,048,655 | $1,717,562 | XML |
| 990 | December 2023 | $1,933,129 | $1,714,189 | $1,931,646 | XML |
| 990 | December 2022 | $1,806,146 | $1,637,580 | $1,703,294 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 54-1753869).
Questions about CONNECTIVE TISSUE ONCOLOGY SOCIETY
- What is the EIN of CONNECTIVE TISSUE ONCOLOGY SOCIETY?
- The employer identification number (EIN) of CONNECTIVE TISSUE ONCOLOGY SOCIETY is 54-1753869.
- Is CONNECTIVE TISSUE ONCOLOGY SOCIETY tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1998.
- Are donations to CONNECTIVE TISSUE ONCOLOGY SOCIETY tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CONNECTIVE TISSUE ONCOLOGY SOCIETY file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CONNECTIVE TISSUE ONCOLOGY SOCIETY due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CONNECTIVE TISSUE ONCOLOGY SOCIETY last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CONNECTIVE TISSUE ONCOLOGY SOCIETY?
- The 990 for the year ended December 31, 2025 names Barbara Rapp.
- Who are the officers and directors of CONNECTIVE TISSUE ONCOLOGY SOCIETY?
- The 990 for the year ended December 31, 2025 lists 17 people; 1 received compensation from the organization, the highest $286,320 (BARBARA RAPP, EXECUTIVE DIRECTOR).
- How much revenue does CONNECTIVE TISSUE ONCOLOGY SOCIETY have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $2,352,142, expenses of $2,195,866 and total assets of $1,853,369 at year end.
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