Nonprofit · EIN 52-1375827
NATIONAL SCLERODERMA FOUNDATION
Tax-exempt · DANVERS, MA 01923
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $6,628,652 | $6,783,274 | -$154,622 | $11,259,408 | $2,926,793 | $8,332,615 |
| June 30, 2024 | 990 | $4,941,722 | $6,956,852 | -$2,015,130 | $11,162,466 | $2,809,269 | $8,353,197 |
| June 30, 2023 | 990 | $6,915,898 | $6,461,742 | $454,156 | $12,897,422 | $3,086,186 | $9,811,236 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $5,597,175
- Program service revenue
- $0
- Investment income
- $1,165,141
- Net gain from sales of assets
- $931,487
- Net income from fundraising events
- -$133,664
- Other revenue
- -$133,664
Expenses
- Grants and similar amounts paid
- $1,199,988
- Compensation of officers, directors and key employees
- $549,811
- Other salaries and wages
- $2,056,745
- Salaries, compensation and benefits (total)
- $3,255,131
- Professional fundraising fees
- $0
- Legal fees
- $26,158
- Accounting fees
- $47,800
- Occupancy
- $177,362
- Travel
- $192,716
- Depreciation
- $28,704
- Program services (functional)
- $4,282,924
- Management and general (functional)
- $1,202,665
- Fundraising (functional)
- $1,297,685
Balance sheet and other
- Total assets, start of year
- $11,162,466
- Total assets, end of year
- $11,259,408
- Total liabilities, end of year
- $2,926,793
- Net assets, end of year
- $8,332,615
- Land, buildings and equipment
- $73,838
- Publicly traded securities
- $8,454,497
- Net assets without donor restrictions
- $4,595,071
- Net assets with donor restrictions
- $3,737,544
- Gross receipts
- $8,835,153
- Employees
- 33
- Volunteers
- 275
- Year formed
- 1993
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARY J WHEATLEY | CEO Officer | 37.5 | $253,027 | $24,976 |
| ASHLEY M PRUETT | VP OF COMMUNITY ENGAGEMENT Highest-paid employee | 37.5 | $144,410 | $25,629 |
| MICHAEL B HYDE | VP OF FINANCE Officer | 37.5 | $131,092 | $37,566 |
| CATHERINE M ANASTASIA | SENIOR DIRECTOR, MISSION DELIVERY Highest-paid employee | 37.5 | $113,309 | $15,021 |
| ELIZABETH J MULROY | SENIOR DIRECTOR, CHAPTER OPERATIONS Highest-paid employee | 37.5 | $113,580 | $3,892 |
| KEVIN BOYANOWSKI | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| CAROL FEGHALI-BOSTWICK PH D | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| BLAKE EMBREE | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| MARCIA WALKER | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| LINDA BORNSTEIN BAUM OD | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARY BLADES | DIRECTOR Trustee or director | 2 | $0 | $0 |
| COURTNEY CALIENDO ESQ | DIRECTOR Trustee or director | 2 | $0 | $0 |
| TERA CARTER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SCOTT CERESNAK MD | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ZEBA HYDER | DIRECTOR Trustee or director | 2 | $0 | $0 |
9 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| AJ NAHMAD | DIRECTOR Trustee or director | 2 | $0 |
| TRACY PORTER MED SPHR | DIRECTOR Trustee or director | 2 | $0 |
| NANCY WALTERMIRE | DIRECTOR Trustee or director | 2 | $0 |
| CHRISTINA LOCCKE | DIRECTOR Trustee or director | 2 | $0 |
| JANE LADAS | DIRECTOR Trustee or director | 2 | $0 |
| COS MALLOZZI | DIRECTOR Trustee or director | 2 | $0 |
| MARK OROZCO III MBA | DIRECTOR Trustee or director | 2 | $0 |
| J MICHAEL LEVENGOOD ESQ | DIRECTOR Trustee or director | 2 | $0 |
| PEGGY COLLINS | DIRECTOR Trustee or director | 2 | $0 |
990 for the year ended June 30, 2024: 19 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARY J WHEATLEY | CEO Officer | 40 | $235,945 | $17,580 |
| MICHAEL B HYDE | VP OF FINANCE Officer | 40 | $158,406 | $33,748 |
| ASHLEY M PRUETT | VP OF COMMUNITY ENGAGEMENT Highest-paid employee | 40 | $127,832 | $21,887 |
| COS MALLOZZI | DIRECTOR Trustee or director | 2 | $0 | $0 |
| COURTNEY CALIENDO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| CHRISTINA LOCCKE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARY BLADES | DIRECTOR Trustee or director | 2 | $0 | $0 |
| TRACY PORTER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARK OROZCO III MBA | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LINDA BORNSTEIN BAUM OD | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARCIA WALKER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ZEBA HYDER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| NANCY WALTERMIRE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| AJ NAHMAD | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JANE LADAS | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KEVIN BOYANOWSKI | CHAIR (INTERIM TREAS JUL 23-APR 24) Trustee or director, Officer | 2 | $0 | $0 |
| CAROL FEGHALI-BOSTWICK PH D | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| J MICHAEL LEVENGOOD ESQ | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| BLAKE EMBREE | TREASURER (SINCE APR '24) Trustee or director, Officer | 2 | $0 | $0 |
990 for the year ended June 30, 2023: 16 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARY J WHEATLEY | CEO Officer | 40 | $226,252 | $17,160 |
| MICHAEL B HYDE | COO/CFO Officer | 40 | $150,589 | $31,671 |
| COS MALLOZZI | DIRECTOR Trustee or director | 2 | $0 | $0 |
| COURTNEY CALIENDO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| CHRISTINA LOCCKE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARY BLADES | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JEANNE THEISSEN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARK OROZCO III MBA | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LINDA BORNSTEIN BAUM OD | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARCIA WALKER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ZEBA HYDER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MICHAEL PURSEL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KEVIN BOYANOWSKI | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| CAROL FEGHALI-BOSTWICK PH D | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| MIKE LEVENGOOD ESQ | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| CYNDY BESSELIEVRE CPA | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 55 FERNCROFT RD STE 315, DANVERS, MA 01923-4001
- Principal officer (990 for 2024)
- MARY J WHEATLEY, 55 FERNCROFT ROAD 315, DANVERS, MA 01923
- Signed the 990
- MARY J WHEATLEY IOM CAE, CHIEF EXECUTIVE OFFICER
- Phone
- (800) 722-4673
- Website
- WWW.SCLERODERMA.ORG
- Return prepared by
- BAKER TILLY ADVISORY GROUP LP
Mission
THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
Program accomplishments
- A RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA, THE NATIONAL SCLERODERMA FOUNDATION ADVANCES MEDICAL RESEARCH, PROMOTES DISEASE AWARENESS, AND PROVIDES SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. SUPPORTED BY A NETWORK OF THOUSANDS OF INDIVIDUALS ACROSS THE UNITED STATES, THE FOUNDATION IS THE LEADING NONPROFIT FUNDER OF PEER-REVIEWED RESEARCH TO DISCOVER THE CAUSE, UNDERSTAND THE MECHANISMS, AND OVERCOME SCLERODERMA FOREVER. SUPPORT: THE FOUNDATION SERVES PEOPLE LIVING WITH SCLERODERMA, AS WELL AS THEIR CAREGIVERS AND FAMILY MEMBERS BY PROVIDING ACCESS TO SUPPORT GROUPS. IN THE WAKE OF THE PANDEMIC, THE FOUNDATION PIVOTED FROM IN-PERSON TO VIRTUAL COMMUNITY SUPPORT, ALLOWING MEMBERS OF THE SCLERODERMA COMMUNITY TO CONNECT NO MATTER WHERE THEY WERE IN THE COUNTRY. THIS ALSO ALLOWED FOR THE CREATION OF MORE TARGETED, TOPICAL SUPPORT GROUPS SUCH AS ONE FOR MEN, WHICH MAKE UP JUST 20% OF THE POPULATION IMPACTED BY SCLERODERMA, AND BIPOC, AS WELL AS YOUNG ADULTS. EDUCATION: THE FOUNDATION PROVIDES EDUCATION ABOUT HOW TO LIVE BETTER WITH SCLERODERMA FOR THOSE AFFECTED BY THE DISEASE, AS WELL AS THEIR CAREGIVERS, FAMILIES AND SUPPORT NETWORKS. THE FOUNDATION IS ALSO A CME AND CNE PROVIDER, EDUCATING HEALTHCARE PROVIDERS ABOUT SIGNS AND SYMPTOMS, TIMELY DIAGNOSIS, AND CUTTING-EDGE TREATMENTS AND THERAPIES. THE NATIONAL SCLERODERMA CONFERENCE ATTRACTS MORE THAN 400 PARTICIPANTS ANNUALLY AND PROVIDES COMMUNITY SUPPORT, WORLD CLASS EDUCATION, AND NETWORKING OPPORTUNITIES FOR PEOPLE LIVING WITH SCLERODERMA, CAREGIVERS, FAMILY MEMBERS, AND FRIENDS. THE SEMINARS SERVE AS AN EXCELLENT RESOURCE FOR PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS, WHO ALSO NEED COMPREHENSIVE INFORMATION ABOUT THE DISEASE.Expenses $2,737,760
- RESEARCH: IN FY 2025, THE FOUNDATION MADE A COMMITMENT OF $1.2 MILLION TO FUND RESEARCH. THIS FUNDING AIMS TO STIMULATE AND SUPPORT INVESTIGATIONS INTO BETTER UNDERSTANDING THE MECHANISMS THAT CAUSE THE DISEASE, HOW TO PREVENT AND ACCURATELY DIAGNOSIS AND TREAT THE DISEASE, AND ULTIMATELY FIND A CURE FOR SCLERODERMA. EACH AWARD IS $200,000 SPREAD OVER MULTIPLE YEARS. IN FY 2025, FOUR AWARDS WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND TWO AWARDS WERE THREE-YEAR NEW INVESTIGATOR AWARDS. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIR AREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES. THE FOUNDATION'S PEER REVIEWED RESEARCH GRANTS PROGRAM PRIORITIZES SCIENTIFIC MERIT AND IS ADMINISTERED BY THE FOUNDATION'S RESEARCH COMMITTEE. THIS COMMITTEE, COMPOSED OF SCLERODERMA EXPERTS FROM ACROSS THE COUNTRY, MAKES FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS ANNUALLY AFTER A RIGOROUS PEER REVIEW PROCESS.THE PEER-REVIEW RESEARCH COMMITTEE IS COMPOSED OF HIGHLY RESPECTED SCIENTIFIC EXPERTS WHO REVIEW, CRITIQUE, AND RANK ALL APPLICATIONS BASED ON THE NATIONAL INSTITUTES OF HEALTH'S RANKING SYSTEM. ONLY PROJECTS OF SIGNIFICANT SCIENTIFIC MERIT ARE FUNDED. EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA. DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG. ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW AND ARE SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSAL. PEER REVIEW RANKINGS ARE SENT TO THE FOUNDATION'S RESEARCH COMMITTEE FOR QUALIFICATION BEFORE BEING PRESENTED TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL OF FUNDING. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS. ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S RESEARCH COMMITTEE TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, AND FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS.Expenses $1,545,164 · grants $1,199,988
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 52-1375827
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1985
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H400)
- Assets (IRS master file)
- $11,259,408
- Income (IRS master file)
- $8,835,153
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $6,628,652 | $6,783,274 | $11,259,408 | XML |
| 990 | June 2024 | $4,941,722 | $6,956,852 | $11,162,466 | XML |
| 990 | June 2023 | $6,915,898 | $6,461,742 | $12,897,422 | XML |
| 990 | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-1375827).
Questions about NATIONAL SCLERODERMA FOUNDATION
- What is the EIN of NATIONAL SCLERODERMA FOUNDATION?
- The employer identification number (EIN) of NATIONAL SCLERODERMA FOUNDATION is 52-1375827.
- Is NATIONAL SCLERODERMA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1985.
- Are donations to NATIONAL SCLERODERMA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL SCLERODERMA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL SCLERODERMA FOUNDATION due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL SCLERODERMA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of NATIONAL SCLERODERMA FOUNDATION?
- The 990 for the year ended June 30, 2025 names MARY J WHEATLEY.
- Who are the officers and directors of NATIONAL SCLERODERMA FOUNDATION?
- The 990 for the year ended June 30, 2025 lists 24 people; 5 received compensation from the organization, the highest $253,027 (MARY J WHEATLEY, CEO).
- How much revenue does NATIONAL SCLERODERMA FOUNDATION have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $6,628,652, expenses of $6,783,274 and total assets of $11,259,408 at year end.
Other nonprofits in DANVERS
- ONE CHILD ONE SMILE INC EIN 81-1073839 · last filed 990-N for 2025
- NORTHEAST ARC INC EIN 04-2232416 · last filed 990 for 2025
- CARE DIMENSIONS INC EIN 22-2873792 · last filed 990 for 2024
- NORTH AMERICAN FAMILY INSTITUTE INC EIN 23-7378470 · last filed 990 for 2025
- GORDON FOUNDATION EIN 04-2794647 · last filed 990-PF for 2024
- NEW ENGLAND HOMES FOR THE DEAF INC EIN 04-2104760 · last filed 990 for 2024
- COMMUNITY YOUNG MENS CHRISTIAN ASSOC OF DANVERS MA INC EIN 04-2308404 · last filed 990 for 2025
- HABITAT FOR HUMANITY INTERNATIONAL INC EIN 22-2672831 · last filed 990 for 2025
All nonprofits in DANVERS · Massachusetts · Medical research