Nonprofit · EIN 46-3343666
BARDET BIEDL SYNDROME FOUNDATION
Also known as BARDET BIEDL SYNDROME FAMILY ASSOC
Tax-exempt · WEST CHESTER, PA 19380
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| July 31, 2025 | 990 | $396,830 | $167,052 | $229,778 | $609,072 | $673 | $608,399 |
| July 31, 2024 | 990-EZ | $129,672 | $166,916 | -$37,244 | $378,621 | – | $378,621 |
Financial details: 990 for the year ended July 31, 2025
Revenue
- Contributions, gifts and grants
- $396,828
- Program service revenue
- $0
- Investment income
- $2
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $77,375
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $4,551
- Travel
- $12,671
- Program services (functional)
- $108,909
- Management and general (functional)
- $56,092
- Fundraising (functional)
- $2,051
Balance sheet and other
- Total assets, start of year
- $378,621
- Total assets, end of year
- $609,072
- Total liabilities, end of year
- $673
- Net assets, end of year
- $608,399
- Net assets without donor restrictions
- $608,399
- Gross receipts
- $408,900
- Employees
- 0
- Volunteers
- 10
- Year formed
- 2014
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended July 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TIMOTHY OGDEN | PRESIDENT Trustee or director, Officer | 5 | $0 |
| ALEX OGEKA | VICE PRESIDE Trustee or director, Officer | 1 | $0 |
| NATHAN ARNESEN | TREASURER Trustee or director, Officer | 1 | $0 |
| DAVE POTHIER | BOARD MEMBER Trustee or director | 1 | $0 |
| TARA KLASSEN | BOARD MEMBER Trustee or director | 1 | $0 |
990-EZ for the year ended July 31, 2024: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TIMOTHY OGDEN | PRESIDENT | 5 | $0 |
| ALEX OGEKA | VICE PRESIDE | 1 | $0 |
| NATHAN ARNESEN | TREASURER | 1 | $0 |
| DAVE POTHIER | BOARD MEMBER | 1 | $0 |
| TARA KLASSEN | BOARD MEMBER | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 403 OERMEAD LN, WEST CHESTER, PA 19380-1952
- In care of
- % TIMOTHY OGDEN
- Mailing address (990-N for 2018)
- 403 Oermead Lane, West Chester PA 19380
- Principal officer (990 for 2024)
- TIMOTHY OGDEN, 403 OERMEAD LANE, WEST CHESTER, PA 19380
- Principal officer (990-N for 2018)
- Timothy Ogden, 403 Oermead Lane, West Chester PA 19380
- Signed the 990
- TIMOTHY OGDEN, PRESIDENT
- Phone
- (801) 850-3750
- Website
- www.bardetbiedl.org
- Return prepared by
- BOUNTIFUL PEAK ADVISORS
Mission
THE ORGANIZATION'S MISSION IS TO BUILD A COMMUNITY OF SUPPORT FOR INDIVIDUALS AND FAMILIES, PROVIDE INFORMATION ABOUT BARDET BIEDL SYNDROME, AND PROMOTE SCIENCE AND RESEARCH TO IMPROVE THE LIVES OF INDIVIDUALS WITH BARDET BIEDL SYNDROME.
Program accomplishments
- RESEARCH THE ORGANIZATION PROVIDED RESEARCH GRANTS TO SUPPORT THE CRIBBS REGISTRY. ORGANIZATION LEADERSHIP ATTENDED SCIENTIFIC CONFERENCES TO ADVANCE RESEARCH EFFORTS RELEVANT TO THE COMMUNITY INCLUDING EMBO CILIA IN OCTOBER 2024 AND THE CHAN ZUCKERBERG INITIATIVE RARE AS ONE SUMMIT IN MAY 2025. PRESIDENT TIM OGDEN CO-AUTHORED A PEER REVIEWED PUBLICATION ON EFFECTIVE COLLABORATION BETWEEN PATIENT GROUPS AND RESEARCHERS.Expenses $79,365 · grants $77,375
- COMMUNITY SUPPORT THE ORGANIZATION CONNECTED FAMILIES AND SHARED INFORMATION ON RESEARCH, THERAPIES, AND CARE FOR BARDET BIEDL SYNDROME. THIS INCLUDED HOSTING A CONFERENCE FOR APPROXIMATELY 200 PEOPLE IN JULY 2024, AND A SERIES OF WEBINARS AND LOCAL MEETINGS FOR MEMBERS AND THE GENERAL PUBLIC.Expenses $29,544
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in July, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | July 31, 2026 | December 15, 2026 | Not due yet |
| 2024 | July 31, 2025 | December 15, 2025 | 990 on file |
| 2023 | July 31, 2024 | December 16, 2024 | 990-EZ on file |
IRS record
- EIN
- 46-3343666
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2014
- Accounting year ends
- July
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E60)
- Assets (IRS master file)
- $609,072
- Income (IRS master file)
- $408,900
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | July 2025 | $396,830 | $167,052 | $609,072 | XML |
| 990-EZ | July 2024 | $129,672 | $166,916 | $378,621 | XML |
| 990 | July 2023 | $372,565 | $172,225 | $415,865 | IRS |
| 990-EZ | July 2022 | – | – | – | IRS |
| 990-EZ | July 2021 | – | – | – | IRS |
| 990-N for 2018 Officer: Timothy Ogden | July 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-3343666).
Questions about BARDET BIEDL SYNDROME FOUNDATION
- What is the EIN of BARDET BIEDL SYNDROME FOUNDATION?
- The employer identification number (EIN) of BARDET BIEDL SYNDROME FOUNDATION is 46-3343666.
- Is BARDET BIEDL SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
- Are donations to BARDET BIEDL SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does BARDET BIEDL SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of BARDET BIEDL SYNDROME FOUNDATION due?
- The return for tax year 2025 (the year ending July 31, 2026) is due December 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did BARDET BIEDL SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended July 2025.
- Who is the principal officer of BARDET BIEDL SYNDROME FOUNDATION?
- The 990 for the year ended July 31, 2025 names TIMOTHY OGDEN.
- Who are the officers and directors of BARDET BIEDL SYNDROME FOUNDATION?
- The 990 for the year ended July 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does BARDET BIEDL SYNDROME FOUNDATION have?
- On its 990 for the year ended July 31, 2025 it reported revenue of $396,830, expenses of $167,052 and total assets of $609,072 at year end.
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