2026-06-15T21:22:10-04:00 2025-07-31 460952065 BOUNTIFUL PEAK ADVISORS 1564 SOUTH 500 WEST SUITE 201 BOUNTIFUL UT 840107400 990 2024-08-01 463343666 BARDET BIEDL SYNDROME FOUNDATION BARD 8018503750 403 OERMEAD LANE WEST CHESTER PA 19380 TIMOTHY OGDEN PRESIDENT 2026-06-15 true true SHALAUN T HOWELL CPA P00969274 8012943155 2026-06-15 2024 2025-03-06 01:10:19Z TIMOTHY OGDEN 403 OERMEAD LANE WEST CHESTER PA 19380 408900 false X WWW.BARDETBIEDL.ORG X 2014 DE THE ORGANIZATION'S MISSION IS TO BUILD A COMMUNITY OF SUPPORT FOR INDIVIDUALS AND FAMILIES, PROVIDE INFORMATION ABOUT BARDET BIEDL SYNDROME, AND PROMOTE SCIENCE AND RESEARCH TO IMPROVE THE LIVES OF INDIVIDUALS WITH BARDET BIEDL SYNDROME. 5 5 0 10 0 140712 396828 0 11 2 0 140723 396830 127375 77375 0 0 0 2051 50592 89677 177967 167052 -37244 229778 378621 609072 673 378621 608399 X THE ORGANIZATION'S MISSION IS TO BUILD A COMMUNITY OF SUPPORT FOR INDIVIDUALS AND FAMILIES, PROVIDE INFORMATION ABOUT BARDET BIEDL SYNDROME, AND PROMOTE SCIENCE AND RESEARCH TO IMPROVE THE LIVES OF INDIVIDUALS WITH BARDET BIEDL SYNDROME. false false 79365 77375 RESEARCH THE ORGANIZATION PROVIDED RESEARCH GRANTS TO SUPPORT THE CRIBBS REGISTRY. ORGANIZATION LEADERSHIP ATTENDED SCIENTIFIC CONFERENCES TO ADVANCE RESEARCH EFFORTS RELEVANT TO THE COMMUNITY INCLUDING EMBO CILIA IN OCTOBER 2024 AND THE CHAN ZUCKERBERG INITIATIVE RARE AS ONE SUMMIT IN MAY 2025. PRESIDENT TIM OGDEN CO-AUTHORED A PEER REVIEWED PUBLICATION ON EFFECTIVE COLLABORATION BETWEEN PATIENT GROUPS AND RESEARCHERS. 29544 COMMUNITY SUPPORT THE ORGANIZATION CONNECTED FAMILIES AND SHARED INFORMATION ON RESEARCH, THERAPIES, AND CARE FOR BARDET BIEDL SYNDROME. THIS INCLUDED HOSTING A CONFERENCE FOR APPROXIMATELY 200 PEOPLE IN JULY 2024, AND A SERIES OF WEBINARS AND LOCAL MEETINGS FOR MEMBERS AND THE GENERAL PUBLIC. 108909 true true false false false false false false false false false false false false false false false false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 2 0 true 0 false false false false false true true false false false false false false X 5 5 false false false false false false false true false false false true true true true true true false false false X NATHAN ARNESEN 8018503750 403 OERMEAD LANE WEST CHESTER PA 19380 X TIMOTHY OGDEN PRESIDENT 5.00 X X 0 0 0 ALEX OGEKA VICE PRESIDE 1.00 X X 0 0 0 NATHAN ARNESEN TREASURER 1.00 X X 0 0 0 DAVE POTHIER BOARD MEMBER 1.00 X 0 0 0 TARA KLASSEN BOARD MEMBER 1.00 X 0 0 0 false false false 6463 390365 396828 2 2 12070 6463 12070 396830 2 X 77375 77375 4551 4551 46951 14331 32611 9 971 685 276 10 125 125 3343 2241 1069 33 12671 12671 12805 12805 BANK AND MERCHANT FEES 3556 1812 1744 FOOD AND BEVERAGE 3383 1472 1911 SUPPLIES 972 972 MISCELLANEOUS 255 255 94 94 167052 108909 56092 2051 376121 609072 2500 378621 609072 673 0 673 X 378621 608399 378621 608399 378621 609072 229778 X false false false X 74679 156491 372549 140712 396828 1141259 74679 156491 372549 140712 396828 1141259 1141259 11 2 13 1141272 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED GOLF TOURNAMENT 18533 6463 12070 12070 18533 6463 12070 12070 12070 false MARSHFIELD CLINIC HEALTH SYSTEM FOUNDATION 1000 NORTH OAK AVENUE 1R1 MARSHFIELD WI 54449 812822823 501C3 77375 MEDICAL RESEARCH SCHEDULE I, PAGE 1, PART I, LINE 2 GRANTS THE ORGANIZATION MAKES ARE SUBJECT TO CONTRACTS WHICH SPECIFY THE REQUIRED PERFORMANCE AND REPORTING OF USE FUNDS AND ACCOMPLISHMENTS BY THE GRANTEE. THE ORGANIZATION MEETS AT LEAST BIANNUALLY WITH GRANTEES TO REVIEW PROGRESS. FORM 990 - ORGANIZATION'S MISSION THE ORGANIZATION'S MISSION IS TO BUILD A COMMUNITY OF SUPPORT FOR INDIVIDUALS AND FAMILIES, PROVIDE INFORMATION ABOUT BARDET BIEDL SYNDROME, AND PROMOTE SCIENCE AND RESEARCH TO IMPROVE THE LIVES OF INDIVIDUALS WITH BARDET BIEDL SYNDROME. FORM 990, PAGE 6, PART VI, LINE 8B DURING THE YEAR, THE ORGANIZATION DID NOT HAVE ANY COMMITTEES WHICH HAD AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PAGE 6, PART VI, LINE 11B THE ORGANIZATIONS FORM 990 WAS PREPARED BY THE ORGANIZATIONS CPA. IT WAS REVIEWED IT DETAIL BY THE ORGANIZATIONS TREASURER FOR ACCURACY AND REASONABILITY. A COMPLETE COPY OF THE FORM 990 WAS PROVIDED TO THE ORGANIZATIONS BOARD OF DIRECTORS BEFORE IT WAS FILED. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION PROVIDES A COPY OF ITS CONFLICT OF INTEREST POLICY TO ALL OFFICERS AND DIRECTORS DURING ONBOARDING. IN ADDITION, A COPY IS PROVIDED ANNUALLY. ALL OFFICERS AND DIRECTORS ARE REQUIRED TO REVIEW THE POLICY AND SIGN A DISCLOSURE STATEMENT, WHICH ACKNOWLEDGES AND UNDERSTANDING OF THE POLICY AND DISCLOSES ANY POTENTIAL CONFLICTS OF INTEREST THEY ARE AWARE OF. ALL POTENTIAL CONFLICTS OF INTEREST ARE REVIEWED BY AN INDEPENDENT COMMITTEE APPOINTED BY THE BOARD PRESIDENT TO DETERMINE THE APPROPRIATE ACTION TO BE TAKEN TO ELIMINATE OR MITIGATE RISKS POSED BY THE CONFLICT. THE ORGANIZATION REQUIRES THAT BOARD MEMBERS WITH CONFLICT OF INTEREST BE RECUSED FROM THE DELIBERATION AND VOTING RELATED TO A TRANSACTION OR ACTION IN WHICH THEY MAY HAVE CONFLICT. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATIONS GOVERNING DOCUMENTS AND 990S ARE AVAILABLE UPON REQUEST TO THE ORGANIZATIONS OFFICE. IN ADDITION, THE ORGANIZATIONS 990S FOR THE PAST SEVERAL YEARS ARE AVAILABLE THROUGH CANDID.ORG AND THE ORGANIZATIONS ARTICLES OF INCORPORATION ARE AVAILABLE THROUGH THE DELAWARE DIVISION OF CORPORATIONS. FORM 990, PART IX, LINE 11G OPERATIONS 6,966 16,254 0 OTHER 6,918 16,113 0 GRAPHIC DESIGN 447 244 9 TOTAL 14,331 32,611 9