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Nonprofit · EIN 38-3225425

ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

Tax-exempt · SOUTHFIELD, MI 48075

Financials

$323K$221K2023$283K$201K2024
Revenue Expenses · by fiscal year end
Financials of ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
June 30, 2025990$283,334$200,994$82,340$1,698,825$0$1,698,825
June 30, 2024990$323,263$220,502$102,761$1,537,672$0$1,537,672
Financial details: 990 for the year ended June 30, 2025

Revenue

Contributions, gifts and grants
$195,616
Program service revenue
$0
Investment income
$83,143
Other revenue
$4,575

Expenses

Grants and similar amounts paid
$96,975
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Occupancy
$1,512
Program services (functional)
$120,569
Management and general (functional)
$80,425

Balance sheet and other

Total assets, start of year
$1,537,672
Total assets, end of year
$1,698,825
Total liabilities, end of year
$0
Net assets, end of year
$1,698,825
Publicly traded securities
$1,404,429
Gross unrelated business income
$83,143
Gross receipts
$283,334
Employees
0
Volunteers
100
Year formed
1995
State of legal domicile
MI

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended June 30, 2025, highest compensation first.

NameTitleHours / weekCompensation
Lynn EganDirector
Trustee or director
1$0
Kathy SharoDirector
Trustee or director
1$0
Mollie ErpenbeckDirector
Trustee or director
1$0
Sharon CiccodicolaDirector
Trustee or director
1$0
Bill GerberDirector
Trustee or director
1$0
Adalberto DuarteDirector
Trustee or director
1$0
Vicky PlattPresident
Officer
4$0
Gene AndrascoTreasurer
Officer
4$0
Heather GatesVice-President of Education & Family Support
Officer
4$0
Cate CohenSecretary
Officer
4$0
990 for the year ended June 30, 2024: 9 people
NameTitleHours / weekCompensation
Lynn EganDirector
Trustee or director
1$0
Kathy SharoDirector
Trustee or director
1$0
Mollie ErpenbeckDirector
Trustee or director
1$0
Sharon CiccodicolaDirector
Trustee or director
1$0
Bill GerberDirector
Trustee or director
1$0
Vicky PlattPresident
Officer
4$0
Gene AndrascoTreasurer
Officer
4$0
Heather GatesVice-President of Education & Family Support
Officer
4$0
Cate CohenSecretary
Officer
4$0

Address and contacts

Address (IRS master file)
2000 TOWN CTR STE 1900, SOUTHFIELD, MI 48075-1152
In care of
% LYNN EGAN
Principal officer (990 for 2024)
Vicky Platt, 2451 Chas Drive, Rolling Meadows, IL 60008
Signed the 990
Gene Andrasco, Treasurer

Mission

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.

990 for the year ended June 30, 2025

Program accomplishments

  • Grant given to Northwestern University to fund a fellowship for Dr. Jacqueline Leite to spend 12 months performing research on alternating hemiplegia of childhood in the laboratory of Dr. Alfred L. George, Jr.
    Expenses $35,000 · grants $35,000
  • The AHCF contributed to research at Brown University lead by Ann Hart to finish preliminary characterization C. elegans CRISPR knock-in models and identify robust phenotype-based assays that will facilitate using these C. elegans models to undertake efficient screening for conserved modifier genes and/or compounds that might ameliorate defects and increase our understanding of molecular pathways leading to AHC.
    Expenses $22,411 · grants $22,411
  • The AHCF contributed to research at iXCells Biotechnologies on Antisense Oligonucleotide Treatments (ASO Therapy). iXcells pilot study Stage 1: including small scale mouse cortical neuron isolation and assay optimization Stage 2 : custom mouse cortical neuron isolation for ASO Screen Stage 2 part 2: ASO screening using mouse cortical neurons
    Expenses $16,830 · grants $16,830
  • See Schedule O, Statement 1 The AHCF contributed to two other research projects (Jax Labs ASO Proof of Concept and SomaLogic ASO mouse models). We also sponsored the international ATP1A3 Symposium, hosted the Family Meeting, paid for a CNS sponsorship, and sent out family welcome packets.
    Expenses $46,328 · grants $46,328

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025June 30, 2026November 16, 2026Not due yet
2024June 30, 2025November 17, 2025990 on file
2023June 30, 2024November 15, 2024990 on file

IRS record

EIN
38-3225425
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1997
Accounting year ends
June
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H80)
Assets (IRS master file)
$1,698,825
Income (IRS master file)
$283,334

Filing history

FormYear endedRevenueExpensesAssetsReturn
990June 2025$283,334$200,994$1,698,825XML
990June 2024$323,263$220,502$1,537,672XML
990June 2023$349,997$198,796$1,359,089IRS
990June 2022–––IRS
990June 2021–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 38-3225425).

Questions about ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

What is the EIN of ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC?
The employer identification number (EIN) of ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC is 38-3225425.
Is ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1997.
Are donations to ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC due?
The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended June 2025.
Who is the principal officer of ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC?
The 990 for the year ended June 30, 2025 names Vicky Platt.
Who are the officers and directors of ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC?
The 990 for the year ended June 30, 2025 lists 10 people; 0 received compensation from the organization.
How much revenue does ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC have?
On its 990 for the year ended June 30, 2025 it reported revenue of $283,334, expenses of $200,994 and total assets of $1,698,825 at year end.

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