Skip to main content
IRS-authorized e-file provider · not the IRS

Nonprofit · EIN 37-1510354

CASTLEMAN DISEASE COLLABORATIVE NETWORK

Tax-exempt · PASO ROBLES, CA 93447

Financials

$979K$961K2024
Revenue Expenses · by fiscal year end
Financials of CASTLEMAN DISEASE COLLABORATIVE NETWORK by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$979,030$961,126$17,904$2,977,786$0$2,977,786
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$942,547
Program service revenue
$0
Investment income
$143,454
Net income from fundraising events
-$106,971
Other revenue
-$106,971

Expenses

Grants and similar amounts paid
$298,000
Compensation of officers, directors and key employees
$0
Other salaries and wages
$82,792
Salaries, compensation and benefits (total)
$95,861
Professional fundraising fees
$0
Accounting fees
$2,095
Travel
$13,453
Program services (functional)
$835,833
Management and general (functional)
$125,293

Balance sheet and other

Total assets, start of year
$2,959,883
Total assets, end of year
$2,977,786
Total liabilities, end of year
$0
Net assets, end of year
$2,977,786
Gross receipts
$3,640,991
Employees
3
Year formed
2005
State of legal domicile
CA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
KATHERINE HAEUSELDirector
Trustee or director
0$0
KEVIN SILKDirector
Trustee or director
0$0
BETTE JACOBSDirector
Trustee or director
0$0
PETER BUCKMANDirector
Trustee or director
0$0
TIM HUVALDirector
Trustee or director
0$0
CHARLYN PACHECOSecretary
Officer
0$0
GREG PACHECOChairman
Officer
0$0
JASON CLARK DIEFENDERFERVice President
Officer
0$0
DAVID FAJGENBAUMPresident
Officer
0$0
MICHAEL STIEFTreasurer
Officer
0$0

Address and contacts

Address (IRS master file)
PO BOX 3614, PASO ROBLES, CA 93447-3614
In care of
% CHARLYN M GIACOMAZZI-PACHECHO
Principal officer (990 for 2024)
GREG PACHECO, PO BOX 3614, PASO ROBLES, CA 93447
Signed the 990
GREG PACHECO, Chairman
Phone
(805) 238-4769
Return prepared by
Carter Accountancy Corporation

Mission

TO DEVELOP AWARENESS OF CASTLEMAN'S DISEASE AND TO RAISE MONEY TO FUND EDUCATION AND LABORATORY RESEARCH TO DETERMINE CAUSE, TREATMENT AND ULTIMATE CURE.

990 for the year ended December 31, 2024

Program accomplishments

  • IN 2024, COMMUNITY CONTRIBUTIONS, LARGE GRANTS AND FUNDRAISER PROCEEDS WERE RECEIVED AND USED TO HELP FUND A CASTLEMAN'S DISEASE EDUCATIONAL CONFERENCE HELD IN DECEMBER 2024 IN SAN DIEGO, CALIFORNIA. THE CDCN (CASTLEMAN'S DISEASE COLLABORATIVE NETWORK) HELD THE 13TH ANNUAL "ACCELERATING RESEARCH & TREATMENT FOR CASTLEMAN'S DISEASE WORKING DINNER" WHERE A DIVERSE GROUP OF HEMATOLOGISTS, PATHOLOGISTS, PHYSICIAN-SCIENTISTS, TRANSLATIONAL RESEARCHERS AND PHARMACEUTICAL PARTNERS ATTENDED. THE MEETING FOCUSED ON THE GAPS THAT EXIST IN THE CURRENT STATE OF KNOWLEDGE REGARDING THE DISEASE, DIAGNOSTIC CRITERIA AND RECENTLY APPROVED TREATMENT OPTIONS. FUNDS WERE EXPENDED FOR FACILITY RENTAL, TRAVEL, LODGING MEALS AND OTHER RELATED EXPENSES.THE FUNDS WERE ALSO USED TO SUPPORT AN EDUCATIONAL SUMMIT MEETING HELD IN JULY 2024 IN PHILADELPHIA, PENNSYLVANIA FOR PATIENTS AND LOVED ONES DEALING WITH CASTLEMAN'S DISEASE. THE PURPOSE OF THIS MEETING WAS TO PROVIDE SUPPORTIVE RESOURCES, UP TO DATE INFORMATION ABOUT THE DISEASE, CURRENT RESEARCH AND TREATMENT OPTIONS AND WAYS TO SUPPORT THE EFFORTS IN THESE AREAS. FUNDS WERE EXPENDED FOR PROMOTION, PATIENT LITERATURE, LODGING, TRAVEL AND OTHER RELATED EXPENSES.TO SUPPORT THE ONGOING RESEARCH FOR CASTLEMAN'S DISEASE CAUSE AND TREATMENT:IN 2024, CASH CONTRIBUTIONS TOTALING $298,000 WERE MADE TO THE UNIVERSITY OF PENNSYLVANIA AND THE UPLIFTING ATHLETES ORGANIZATION. THESE CASH CONTRIBUTIONS WERE MADE TO FUND FURTHER RESEARCH IN CASTLEMAN'S DISEASE. IN 2024 CASH EXPENDITURES OF $537,833 WERE MADE TO COVER CONSULTING FEES, PHYSICIAN EDUCATION, PATIENT EDUCATION AND MAINTAIN A DATABASE FOR RESEARCH TEAMS INVOLVED IN VARIOUS AREAS OF CASTLEMAN'S DISEASE RESEARCH. THESE RESEARCH STUDIES OFFER PROMISE TO UNDERSTAND THE CASTLEMAN'S DISEASE MECHANISMS AND PROVIDE INSIGHTS FOR DEVELOPMENT OF PERSONALIZED THERAPIES.IN 2025, FURTHER COMMUNITY CONTRIBUTION SOLICITATIONS AND FUNDRAISING EVENTS ARE PLANNED SO THAT MORE MONEY IS AVAILABLE TO FURTHER FUND THE EDUCATION, RESEARCH, CAUSE AND CURE OF CASTLEMAN'S DISEASE.
    Expenses $835,833 · grants $298,000

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
37-1510354
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2007
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H12)
Assets (IRS master file)
$2,977,786
Income (IRS master file)
$3,640,991

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024–––IRS
990December 2023$1,265,979$827,118$2,959,883IRS
990December 2022$898,672$442,509$2,521,021IRS
990December 2021–––IRS
990December 2020–––IRS

990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.

Questions about CASTLEMAN DISEASE COLLABORATIVE NETWORK

What is the EIN of CASTLEMAN DISEASE COLLABORATIVE NETWORK?
The employer identification number (EIN) of CASTLEMAN DISEASE COLLABORATIVE NETWORK is 37-1510354.
Is CASTLEMAN DISEASE COLLABORATIVE NETWORK tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2007.
Are donations to CASTLEMAN DISEASE COLLABORATIVE NETWORK tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does CASTLEMAN DISEASE COLLABORATIVE NETWORK file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of CASTLEMAN DISEASE COLLABORATIVE NETWORK due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did CASTLEMAN DISEASE COLLABORATIVE NETWORK last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of CASTLEMAN DISEASE COLLABORATIVE NETWORK?
The 990 for the year ended December 31, 2024 names GREG PACHECO.
Who are the officers and directors of CASTLEMAN DISEASE COLLABORATIVE NETWORK?
The 990 for the year ended December 31, 2024 lists 10 people; 0 received compensation from the organization.
How much revenue does CASTLEMAN DISEASE COLLABORATIVE NETWORK have?
On its 990 for the year ended December 31, 2024 it reported revenue of $979,030, expenses of $961,126 and total assets of $2,977,786 at year end.

Other nonprofits in PASO ROBLES

All nonprofits in PASO ROBLES · California · Medical research