Nonprofit · EIN 36-3847816
INTERNATIONAL ESSENTIAL TREMOR FOUNDATION
Tax-exempt · LENEXA, KS 66215
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| March 31, 2026 | 990 | $1,495,117 | $1,031,771 | $463,346 | $10,665,862 | $89,708 | $10,576,154 |
| March 31, 2025 | 990 (amended) | $1,320,431 | $929,864 | $390,567 | $9,514,675 | $91,662 | $9,423,013 |
| March 31, 2024 | 990 | $820,747 | $904,730 | -$83,983 | $9,002,216 | $143,549 | $8,858,667 |
Financial details: 990 for the year ended March 31, 2026
Revenue
- Contributions, gifts and grants
- $976,264
- Program service revenue
- $11,285
- Investment income
- $504,223
- Net gain from sales of assets
- $238,983
- Other revenue
- $3,345
Expenses
- Grants and similar amounts paid
- $325,000
- Compensation of officers, directors and key employees
- $148,974
- Other salaries and wages
- $113,826
- Salaries, compensation and benefits (total)
- $287,365
- Professional fundraising fees
- $0
- Accounting fees
- $39,094
- Occupancy
- $24,973
- Travel
- $51
- Program services (functional)
- $820,389
- Management and general (functional)
- $177,022
- Fundraising (functional)
- $34,360
Balance sheet and other
- Total assets, start of year
- $9,514,675
- Total assets, end of year
- $10,665,862
- Total liabilities, end of year
- $89,708
- Net assets, end of year
- $10,576,154
- Publicly traded securities
- $10,378,302
- Net assets without donor restrictions
- $7,480,083
- Net assets with donor restrictions
- $3,096,071
- Gross receipts
- $4,725,878
- Employees
- 3
- Volunteers
- 55
- Year formed
- 1992
- State of legal domicile
- KS
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended March 31, 2026, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Patrick McCartney | Executive Director Officer | 40 | $126,213 | $16,489 |
| Kelly Lyons | President Trustee or director, Officer | 5 | $0 | $0 |
| Shari Finsilver | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Paul Rodden | Secretary Trustee or director, Officer | 5 | $0 | $0 |
| Nathan Fiser | Treasurer Trustee or director, Officer | 5 | $0 | $0 |
| Patrick Reidy | Board Member Trustee or director | 5 | $0 | $0 |
| Paula Nauer | Board Member Trustee or director | 5 | $0 | $0 |
| Claudine Boldridge | Board Member Trustee or director | 5 | $0 | $0 |
| Sue Moore Fenske | Board Member 1.1.26-3.31.26 Trustee or director | 5 | $0 | $0 |
990 for the year ended March 31, 2025: 8 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Patrick McCartney | Executive Director Officer | 40 | $120,099 | $14,982 |
| Kelly Lyons | President Trustee or director, Officer | 5 | $0 | $0 |
| Shari Finsilver | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Paul Rodden | Secretary Trustee or director, Officer | 5 | $0 | $0 |
| Nathan Fiser | Treasurer Trustee or director, Officer | 5 | $0 | $0 |
| Patrick Reidy | Board Member Trustee or director | 5 | $0 | $0 |
| Paula Nauer | Board Member Trustee or director | 5 | $0 | $0 |
| Claudine Boldridge | Board Member Trustee or director | 5 | $0 | $0 |
990 for the year ended March 31, 2024: 7 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| PATRICK M REIDY | BOARD MEMBER Trustee or director | 5 | $0 |
| NATHAN S FISER | BOARD MEMBER Trustee or director | 5 | $0 |
| PAULA NAUER | BOARD MEMBER Trustee or director | 5 | $0 |
| SHARI FINSILVER | VICE PRESIDENT Trustee or director, Officer | 5 | $0 |
| KELLY E LYONS | PRESIDENT Trustee or director, Officer | 5 | $0 |
| PAUL RODDEN | TRESURER Trustee or director, Officer | 5 | $0 |
| PATRICK MCCARTNEY | EXEC DIR Highest-paid employee | 40 | $0 |
Address and contacts
- Address (IRS master file)
- 13628 W 95TH ST, LENEXA, KS 66215-3304
- In care of
- % PATRICK MCCARTNEY
- Principal officer (990 for 2025)
- Patrick McCartney, 13628 West 95th Street, Lenexa, KS 66215
- Signed the 990
- Kelly Lyons, President
- Phone
- (913) 341-3880
- Website
- www.essentialtremor.org
- Return prepared by
- Support Kansas City
Mission
The IETF provides hope to the ET community worldwide through awareness, education, support, and research.
Program accomplishments
- Essential tremor (ET) is a neurological condition that mostly causes a rhythmic trembling of the hands while performing a task such as eating, writing, dressing, or drinking. (1) Each March the International Essential Tremor Foundation (IETF) hosts a special campaign to raise awareness about essential tremor during National Essential Tremor Awareness Month (NETA). Our goal is to achieve a greater understanding and acceptance of essential tremor. (2) Essential Tremor Research James Parkinson first distinguished essential tremor from other tremor disorders (including the disease that carries his namesake) in 1817. More than 200 years later, there are still many unanswered questions about essential tremor. However, researchers are moving our knowledge forward. It is vital to understand what causes ET in order to develop tailored treatment options and a cure for this life-altering condition. IETF Funded Research Essential tremor (ET) has no cure. If only we understood the cause of ET, then new, tailored treatments could be developed. Each year researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant funding from the IETF. To date, your research donations have provided more than $1,350,000 to fund numerous promising studies. (3) Educational Programs The IETF facilitates and shares information on a variety of educational programs to educate patients, caregivers, healthcare providers and the general public about essential tremor (ET). Programs may cover the following topics: the diagnosis of ET, current treatment options, research, support groups, assistive technology, and more.Expenses $820,389 · grants $325,000 · revenue $11,285
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in March, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | March 31, 2026 | August 17, 2026 | 990 on file |
| 2024 | March 31, 2025 | August 15, 2025 | 990 on file |
| 2023 | March 31, 2024 | August 15, 2024 | 990 on file |
IRS record
- EIN
- 36-3847816
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1995
- Accounting year ends
- March
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H80J)
- Assets (IRS master file)
- $10,665,862
- Income (IRS master file)
- $4,725,878
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | March 2026 | $1,495,117 | $1,031,771 | $10,665,862 | XML |
| 990 | March 2025 | $1,320,431 | $929,864 | $9,514,675 | XML |
| 990 | March 2024 | $820,747 | $904,730 | $9,002,216 | XML |
| 990-T | March 2024 | – | – | – | IRS |
| 990 | March 2023 | $2,020,359 | $825,598 | $8,330,203 | IRS |
| 990-T | March 2023 | – | – | – | IRS |
| 990 | March 2022 | – | – | – | IRS |
| 990-T | March 2022 | – | – | – | IRS |
| 990 | March 2021 | – | – | – | IRS |
| 990-T | March 2021 | – | – | – | IRS |
| 990 | March 2020 | – | – | – | IRS |
| 990 | March 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 36-3847816).
Questions about INTERNATIONAL ESSENTIAL TREMOR FOUNDATION
- What is the EIN of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION?
- The employer identification number (EIN) of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION is 36-3847816.
- Is INTERNATIONAL ESSENTIAL TREMOR FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1995.
- Are donations to INTERNATIONAL ESSENTIAL TREMOR FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL ESSENTIAL TREMOR FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION due?
- The return for tax year 2026 (the year ending March 31, 2027) is due August 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL ESSENTIAL TREMOR FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended March 2026.
- Who is the principal officer of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION?
- The 990 for the year ended March 31, 2026 names Patrick McCartney.
- Who are the officers and directors of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION?
- The 990 for the year ended March 31, 2026 lists 9 people; 1 received compensation from the organization, the highest $126,213 (Patrick McCartney, Executive Director).
- How much revenue does INTERNATIONAL ESSENTIAL TREMOR FOUNDATION have?
- On its 990 for the year ended March 31, 2026 it reported revenue of $1,495,117, expenses of $1,031,771 and total assets of $10,665,862 at year end.
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