2026-09-22T08:54:23-07:00 2026-03-31 311717077 Support Kansas City 6405 Metcalf Ave Suite 516 Overland Park KS 66202 990 2025-04-01 363847816 INTERNATIONAL ESSENTIAL TREMOR FOUNDATION INTE 9133413880 13628 W 95th Street Lenexa KS 66215 Kelly Lyons President 8168389599 2026-09-22 1 Lindsey Curfman P03228378 9138314752 2026-09-22 2025 Patrick McCartney 13628 West 95th Street Lenexa KS 66215 4725878 0 X www.essentialtremor.org X 1992 KS The International Essential Tremor Foundation (the Foundation), was incorporated on June 25, 1992, in the state of Illinois as a nonprofit organization. The mission of the Foundation is to provide funding for research on tremor disorders, educational information, services, and support to individuals who have been diagnosed with essential tremor (ET), their families, and health care providers. The Foundation is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by essential tremor. 8 8 3 55 0 0 924098 976264 31665 11285 364668 504223 0 3345 1320431 1495117 196050 325000 0 0 311677 287365 0 0 34360 422137 419406 929864 1031771 390567 463346 9514675 10665862 91662 89708 9423013 10576154 The IETF provides hope to the ET community worldwide through awareness, education, support, and research. 0 0 820389 325000 11285 Essential tremor (ET) is a neurological condition that mostly causes a rhythmic trembling of the hands while performing a task such as eating, writing, dressing, or drinking. (1) Each March the International Essential Tremor Foundation (IETF) hosts a special campaign to raise awareness about essential tremor during National Essential Tremor Awareness Month (NETA). Our goal is to achieve a greater understanding and acceptance of essential tremor. (2) Essential Tremor Research James Parkinson first distinguished essential tremor from other tremor disorders (including the disease that carries his namesake) in 1817. More than 200 years later, there are still many unanswered questions about essential tremor. However, researchers are moving our knowledge forward. It is vital to understand what causes ET in order to develop tailored treatment options and a cure for this life-altering condition. IETF Funded Research Essential tremor (ET) has no cure. If only we understood the cause of ET, then new, tailored treatments could be developed. Each year researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant funding from the IETF. To date, your research donations have provided more than $1,350,000 to fund numerous promising studies. (3) Educational Programs The IETF facilitates and shares information on a variety of educational programs to educate patients, caregivers, healthcare providers and the general public about essential tremor (ET). Programs may cover the following topics: the diagnosis of ET, current treatment options, research, support groups, assistive technology, and more. 0 0 0 820389 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 3 1 0 0 0 0 0 0 0 0 0 0 0 0 X 8 8 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 0 0 IL X X Patrick McCartney 9133413880 13628 W 95th Street Lenexa KS 66215 Patrick McCartney Executive Director 40 0 X 126213 0 16489 Kelly Lyons President 5 0 X X 0 0 0 Shari Finsilver Vice President 5 0 X X 0 0 0 Paul Rodden Secretary 5 0 X X 0 0 0 Nathan Fiser Treasurer 5 0 X X 0 0 0 Patrick Reidy Board Member 5 0 X 0 0 0 Paula Nauer Board Member 5 0 X 0 0 0 Claudine Boldridge Board Member 5 0 X 0 0 0 Sue Moore Fenske Board Member 1.1.26-3.31.26 5 0 X 0 0 0 126213 0 16489 1 0 0 0 0 0 0 0 0 0 976264 7162 976264 Industry Partner Email Communication Fee 900099 11125 11125 0 0 Special Edition - Tremor Talk 900099 160 160 0 0 0 0 0 0 11285 265240 0 0 265240 0 0 0 0 0 0 0 0 0 0 3469744 0 3230761 0 238983 0 238983 0 0 238983 0 Insurance Premium Rebate 900099 3345 3345 0 0 0 0 0 0 3345 1495117 14630 0 504223 X 250000 250000 75000 75000 0 0 0 0 148974 119179 22346 7449 0 0 0 0 113826 91061 17074 5691 0 0 0 0 6234 4987 935 312 18331 14665 2750 916 0 0 0 0 0 0 0 0 39094 0 39094 0 0 0 0 0 0 0 45039 0 45039 0 158495 126796 23774 7925 17170 13736 2576 858 26365 18370 3446 4549 25793 20635 3869 1289 0 0 0 0 24973 19978 3746 1249 51 41 8 2 0 0 0 0 15740 12592 2361 787 0 0 0 0 0 0 0 0 0 0 0 0 5119 4096 768 255 Postage and Prining 45523 36418 6829 2276 Copier Lease Payment 16044 12835 2407 802 0 0 0 0 1031771 820389 177022 34360 141202 128663 350840 102728 0 0 96044 1720 0 0 0 0 0 0 0 0 0 3058 87239 87239 0 0 8846118 10378302 0 0 0 0 0 0 80471 51391 9514675 10665862 13238 40365 0 0 0 0 0 0 0 0 0 0 0 0 0 0 78424 49343 91662 89708 X 6118905 7480083 3304108 3096071 9423013 10576154 9514675 10665862 463346 689795 0 0 0 0 X 0 1 X 1 0 X 1248005 1823851 629404 924098 976264 5601622 0 0 0 31665 11285 42950 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1248005 1823851 629404 955763 987549 5644572 402653 995607 41608 42053 244169 1726090 0 0 0 4781 0 4781 402653 995607 41608 46834 244169 1730871 3913701 125127 167796 203511 241079 265240 1002753 12544 44650 25778 0 0 82972 137671 212446 229289 241079 265240 1085725 0 0 0 0 0 0 0 0 0 0 3345 3345 1385676 2036297 858693 1196842 1256134 6733642 0.58122 0.46457 0.16124 0.10882 X Schedule A, Part III, Line 12 2025-2026: Insurance Premium Rebate. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 0 0 0 0 51239 51239 0 0 36000 36000 0 0 0 Lease Liability 49343 49343 X 2184912 689794 0 0 1 689795 1495117 0 0 0 1495117 1031772 0 0 0 1 1 1031771 0 0 0 1031771 Schedule D, Part X, Line 2 The Foundation is exempt from federal income tax under Section 501(c)(3) of the Internal Revenue Code and files the informational Federal Form 990. However, income from certain activities not directly related to the Foundation's tax-exempt purpose are subject to taxation as unrelated business income. The Foundation has also been classified as an entity that is not a private foundation within the meaning of Section 509(a) and qualifies for deductible contributions as provided in Section 170(b)(1)(A)(vi). The Foundation utilizes the provisions of FASB ASC 740-10, Accounting for Uncertain Tax Positions. The Foundation continually evaluates expiring statutes of limitations, audits, proposed settlements, changes in tax law, and new authoritative rulings. The Foundation believes that it has appropriate support for any tax position taken, and as such, does not have any uncertain tax positions that are material to the financial statements. Schedule D, Part XI, Line 2d Rounding. Schedule D, Part XII, Line 2d Rounding. 1 Dignity Health DBA St Joseph Hospital Medical Center 350 W Thomas Road Phoenix Phoenix AZ 85013 721561134 50c3 175000 Funds are for the annual Essential Tremor research grant. The Trustees of Columbia University in the City of New York 615 West 131st Street Mail Code 8749 New York NY 10027 135598093 501c3 75000 Funds are for the annual Essential Tremor research grant. 2 0 Scholarships 10 75000 Schedule I, Part I, Line 2 The IETF requires all research grant recipients to submit semiannual progress reports to determine how funding is being used and if future payments will be made. This report is reviewed by our medical advisory board chair and our board president. Form 990, Part VI, Section A, Line 8b During the tax year there were no committee meetings. Form 990, Part VI, Section B, Line 11b The Executive Director and Finance Committee review the Form 990 before the final copy is submitted for filing. Form 990, Part VI, Section B, Line 12c The Board is given a statement regarding IETF's conflict of interest policy. Each Board member must read and sign the statement annually. Form 990, Part VI, Section B, Line 15 The Board votes on a compensation package for the Executive Director, along with an annual performance and raise review. Compensation for staff is discussed and approved by the Board. Form 990, Part VI, Section C, Line 19 The organization made its governing documents, conflict of interest policy, and financial statements available upon request to the public during the tax year. Form 990, Part IX, Line 11g Public Relations and Marketing $155,845.23 and Janitorial Services $2,650.